Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Newly Diagnosed
Update - 1 month since diagnosis
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="Anthony_H" data-source="post: 1576724" data-attributes="member: 432448"><p>Hi SKB</p><p>I’m really sorry to hear you feel your experience of the treatment you’ve received has been a way down on what I’ve experienced. </p><p></p><p>Really, the reason I wrote the post was to show how thorough my treatment has been so others like yourself can gauge whether or not you’ve been getting an equally good treatment process or whether you could see gaps. </p><p></p><p>The fact you haven’t yet seen a dietician yet given that carbs and food stuffs in general play such a big part in our treatment is not only surprising but unfair IMO. I had a half hour with Jill during my 2nd visit, and easily less than a week following my diagnosis and walked out with a carbs and calcs book to get me straight into the process, along with a diary for writing down my food intake details in. </p><p></p><p>If I were you I’d seriously consider printing this post and taking it into your specialist nurse during your next appointment and ask why you aren’t getting the same help. The likely answer may be they are under staffed but that certainly isn’t the case up here. A lot of the staff working with me are brought in from outward lying hospitals where the population demand only requires a clinic one or two days a week. The rest of the time is spent in the larger hospitals where demand is greater and whilst they would prefer one base, I certainly haven’t felt any anxiety from them towards my treatment needs. Far from it in fact.</p><p></p><p>I was diagnosed with narcolepsy and cataplexy in 2008. I had private medical insurance at the time and consequently had a rapid appointment schedule once referred. However, once diagnosed, the consultant basically said there’s no cure and nothing further he can do so take these pills and come back in a year to keep DVLA happy as I was still commuting at the time. There was no NHS help thereafter and although my GP would be interested in talking about my growing problems with the conditions as things got progressively worse, there was no other person on their patient list with the same condition, I.e; the6 simply didn’t have any other experience to base my treatment on.</p><p></p><p>It ultimately took me 8 years before I got a balance of meds’ which could control both conditions to as best as I could expect given their opposite med requirements of stimulation for narcolepsy and what can probably best be described as a calming sedative for cataplexy. My daily intake has had to quadruple during the last 9 years and that was down to self experimentation rather than expert guidance through knowledge. By week two of my diabetes treatment I must admit I was beginning to feel pretty angry towards the abandonment of help I had to deal and struggle so much with, with respect to my other illnesses</p><p></p><p>Following my recent positive treatment experiences, I last week got my GP to refer me for consultation to the neurological ward of the same hospital in Dundee after I went in to see her specifically to discuss my ying yang experiences. She fully understood and agreed a referral was overdue so hopefully my pushing for help will improve my well-being one way or another, even if it’s simply piece of mind that I’m at the best level of compromise I could be.</p><p></p><p>Push for help and keep at them. You don’t deserve any less.</p></blockquote><p></p>
[QUOTE="Anthony_H, post: 1576724, member: 432448"] Hi SKB I’m really sorry to hear you feel your experience of the treatment you’ve received has been a way down on what I’ve experienced. Really, the reason I wrote the post was to show how thorough my treatment has been so others like yourself can gauge whether or not you’ve been getting an equally good treatment process or whether you could see gaps. The fact you haven’t yet seen a dietician yet given that carbs and food stuffs in general play such a big part in our treatment is not only surprising but unfair IMO. I had a half hour with Jill during my 2nd visit, and easily less than a week following my diagnosis and walked out with a carbs and calcs book to get me straight into the process, along with a diary for writing down my food intake details in. If I were you I’d seriously consider printing this post and taking it into your specialist nurse during your next appointment and ask why you aren’t getting the same help. The likely answer may be they are under staffed but that certainly isn’t the case up here. A lot of the staff working with me are brought in from outward lying hospitals where the population demand only requires a clinic one or two days a week. The rest of the time is spent in the larger hospitals where demand is greater and whilst they would prefer one base, I certainly haven’t felt any anxiety from them towards my treatment needs. Far from it in fact. I was diagnosed with narcolepsy and cataplexy in 2008. I had private medical insurance at the time and consequently had a rapid appointment schedule once referred. However, once diagnosed, the consultant basically said there’s no cure and nothing further he can do so take these pills and come back in a year to keep DVLA happy as I was still commuting at the time. There was no NHS help thereafter and although my GP would be interested in talking about my growing problems with the conditions as things got progressively worse, there was no other person on their patient list with the same condition, I.e; the6 simply didn’t have any other experience to base my treatment on. It ultimately took me 8 years before I got a balance of meds’ which could control both conditions to as best as I could expect given their opposite med requirements of stimulation for narcolepsy and what can probably best be described as a calming sedative for cataplexy. My daily intake has had to quadruple during the last 9 years and that was down to self experimentation rather than expert guidance through knowledge. By week two of my diabetes treatment I must admit I was beginning to feel pretty angry towards the abandonment of help I had to deal and struggle so much with, with respect to my other illnesses Following my recent positive treatment experiences, I last week got my GP to refer me for consultation to the neurological ward of the same hospital in Dundee after I went in to see her specifically to discuss my ying yang experiences. She fully understood and agreed a referral was overdue so hopefully my pushing for help will improve my well-being one way or another, even if it’s simply piece of mind that I’m at the best level of compromise I could be. Push for help and keep at them. You don’t deserve any less. [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Newly Diagnosed
Update - 1 month since diagnosis
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…