Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Diabetes Discussions
Well being diabetic gets tedious....
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="zoze_j" data-source="post: 1055932" data-attributes="member: 261782"><p>I can't believe this! I'm tonic-clonic too <strong>and</strong> I had it misdiagnosed as hypos for 14 years!! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite9" alt=":eek:" title="Eek! :eek:" loading="lazy" data-shortname=":eek:" /> Mine actually started as Myoclonic, which is why my mum didn't pick up on it when I was a child (funny you should mention the cup of tea - when I was about 14 or 15, I'd woken up with a "hypo", carried a glass of lucozade into the living room & bam! Massive arm jerk. There was an orange spatter on the lounge ceiling for about a year after that, until my mum redecorated! It was only a few years later, when I was later in my teenage years that we started to think something was wrong. We complained to the GP/hospital, but were told they were hypos (despite the fact I'd almost bitten my tongue off on numerous occasions! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite16" alt=":banghead:" title="Bang Head :banghead:" loading="lazy" data-shortname=":banghead:" /></p><p>Ok, this is getting creepy now! My seizures are brought on by stress/poor sleep too! Not alcohol though (which makes me very happy!)</p><p>I was in a really stressful job before I moved to my current employer, and after the last seizure I had before I was referred to my neurologist, after a particularly bad morning, I thought I was having a hypo, so grabbed a bottle of lucozade off the shop floor & got carried into the back by a colleague (again the myoclonic jerks hit!). Sat down, tried to drink my lucozade, then I remember nothing. I bit my tongue so hard my colleagues panicked - thinking I had blood coming up from my stomach! It was like something out of a horror movie, apparently. Obviously I have no recollection! Then I had to have my MRI & EEG on the same day. Sadly, the MRi was first. Being claustrophic meant I completely freaked out, after my EEG I felt the myoclonic symptoms coming on, then before I knew it, I'd hit the deck right outside the A&E department (hey, points for location right?!) where thankfully, there were half a dozen paramedics stood outside!</p><p></p><p>My neurologist put my on levitiracetam to begin with, but I had some really bad side effect - it started killing off my white blood cells & preventing me from making any more! So I've been switched on to lamotrigine which is fab. Been seizure free for 17 months now! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /><img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /><img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /></p><p></p><p>Haha really? I'm actually from Morecambe, but had to go to Preston because they don't do EEG scans at my local hospital. I used to work in Garstang many years ago too! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>Wow, this is a looooong post!! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite9" alt=":eek:" title="Eek! :eek:" loading="lazy" data-shortname=":eek:" /></p></blockquote><p></p>
[QUOTE="zoze_j, post: 1055932, member: 261782"] I can't believe this! I'm tonic-clonic too [B]and[/B] I had it misdiagnosed as hypos for 14 years!! :eek: Mine actually started as Myoclonic, which is why my mum didn't pick up on it when I was a child (funny you should mention the cup of tea - when I was about 14 or 15, I'd woken up with a "hypo", carried a glass of lucozade into the living room & bam! Massive arm jerk. There was an orange spatter on the lounge ceiling for about a year after that, until my mum redecorated! It was only a few years later, when I was later in my teenage years that we started to think something was wrong. We complained to the GP/hospital, but were told they were hypos (despite the fact I'd almost bitten my tongue off on numerous occasions! :banghead: Ok, this is getting creepy now! My seizures are brought on by stress/poor sleep too! Not alcohol though (which makes me very happy!) I was in a really stressful job before I moved to my current employer, and after the last seizure I had before I was referred to my neurologist, after a particularly bad morning, I thought I was having a hypo, so grabbed a bottle of lucozade off the shop floor & got carried into the back by a colleague (again the myoclonic jerks hit!). Sat down, tried to drink my lucozade, then I remember nothing. I bit my tongue so hard my colleagues panicked - thinking I had blood coming up from my stomach! It was like something out of a horror movie, apparently. Obviously I have no recollection! Then I had to have my MRI & EEG on the same day. Sadly, the MRi was first. Being claustrophic meant I completely freaked out, after my EEG I felt the myoclonic symptoms coming on, then before I knew it, I'd hit the deck right outside the A&E department (hey, points for location right?!) where thankfully, there were half a dozen paramedics stood outside! My neurologist put my on levitiracetam to begin with, but I had some really bad side effect - it started killing off my white blood cells & preventing me from making any more! So I've been switched on to lamotrigine which is fab. Been seizure free for 17 months now! :D:D:D Haha really? I'm actually from Morecambe, but had to go to Preston because they don't do EEG scans at my local hospital. I used to work in Garstang many years ago too! :) Wow, this is a looooong post!! :eek: [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Diabetes Discussions
Well being diabetic gets tedious....
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…