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advice needed please

A

Azzy

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3
new to this forum but not new to diabetes. Well am dave 26 been diabetic since i was 13 and my diabetes as always been bad. constantly high blood sugars with keytones and my hbc (think thats what its called) levels is always above 9 and i think its been as high as 13. Ive had argon laser twice in my left high and a 4mm by 4m scratch on me cornea in my right eye so saw a specialist last week who wants to do a corenal graft but instead of having it done by hand to replace the cornea he wants me to wait till a new machine comes out that does it and brings down the risks and healing time.

Anyway nearly ended up in a diabetic coma bout a month ago but the ambulance crew managed to bring me round and i refused to go to hospital as i really do hate them for my own personal reasons and experience. i have a habit of not taking my blood sugar levels and my insulin. I now have a diabetic nurse i started looking after myself and felt great i had loads of energy again and my moods stopped and felt great but now ive slipped back into my old habits and now i feel **** everyday again with mood swings and i feel down.. this is all started again since i came off sick and went back to work.

I think its because ive not accepted that am diabetic and for personal reasons from me being young till me getting diabetes and then other problems around the time i got it which i would rather not go into. winds me up though coz my 5 year old girl is diabetic and i i proper look after hers well when she stays with me always make sure i check her blood levels and work out her dosage of insulin to how many carbs shes having and give her both insulin on time everyday but yet i carnt do this for myself. diabetes doesnt run in family as my nans (rip) could'nt rember there nans or anyone having it so i was first as far as were was aware then my daughter got it when she was 2. shes very good with it however i feel guilty as like if i wernt her dad she would be like this.

anyway advice i need is that am thinking bout leaving my job and having a few month without working while i get on top of my health and get to bottom of why i never do what im suppose to do. if i left my job to do this would i be able to get any help paying my rent and council tax and how do i go about this ive worked since i was 16 and have never been out of work. tried ring citzens advice but can never get through and it just says ring back later and the people at job centre i rung for advise was about as helpful as a chocalate fireguard and put the phone down when i asked if they was actually listening to me.

sorry for long boring essay lol and hope everyone is keeping well and feels well lol
 
Hi Azzy,

Sorry to hear you are having problems with your diabetes management and hope that a Type 1 will be able to advise you.
I think if you leave your job because of health reasons and have no medical evidence to back it up then you will find it difficult to obtain benefits. You really need to talk this through with your G.P., explain how you feel and get his advice.

Hope this helps,

Catherine.
 
hiya catherine..

thanks for response,,,

yer guna go see diabetic nurse tmz see what she says. what u mean by medical notes there will be notes bout my eyes and my blood sugars always being hi and that with ambulance etc n everytime ive been that hi ive ended up in hospital. just wanting to take a few month and start from scratch and sort mesen out. worked since i was 16 with only have time off when my diabetes as made me poorly or when i got knocked off my motorbike, always go when ive flu or anything like thats its just diabetes when i start throwing up and ave zero energy. my manager is being good about it but carnt lay me off or say ive failed me probation and sack me because when ive been there my peformance at work as been very good so he will end up in trouble if they check up. carnt keep been poorly and having days off here and there coz ive rent to pay.
 
hi im type 1 diabetic and was diagnosed about 3 years ago now and inject 5 times a day, i work fulltime as a support worker with disabled people and never get time to sit down , thing is l dont think any of us really come to terms with having diabetes ,when l was diagnosed to start with they thought l was type 2 and put me on metformin , thought to myself only tablets to take , then 6 weeks later told l actually should have been on insulin ,cried for weeks every time l thought about it ,you can suffer depression my mood was low for a while ,but l think on it now as l need to take insulin and medication if l want to live ,l do still get down at times , ive got to arrange things around my insulin times ,my employers and my colleagues have been really good and supportive , what you have to tell your self is you need to look after yourself for your sake and your little girls , if she can handle having diabetes so can you , your daughters young and if she sees your neglecting dealing with your treatment she might think its ok not doing hers , hope this helps you in some way , best wishes and take care
 
yer went to see diabetic nurses today and had alittle heart to heart why i keep letting myself go and why i can do it for me daughter but not me. they think ive never accepted it and am still rebelling, they asked me how i felt bout it and personal things around the time i got it when i was 13 so i opened up abit to them but im not one for talking much about how i feel so i shut back up. i had 2 diabetes specialists asking me and being very supportive something i feel ive never had. I dont talk to my family much but my girlfriend and her family are being very supportive. they put me on sick again to try get me in a routine and i have to go see a Counciller to try and open up and get over this mental hurdle i seem to have. need to get it sorted because i have a few complications now. but its only me then can do this no matter how much support i get. hows yours going anne am glad your work are being good about it because some companys are not so understanding
 
anne 37 said:
thing is l dont think any of us really come to terms with having diabetes
Click to expand...

Whilst that is generally the case, myself and one or two diabetics I have met (out of hundreds) have handled it very well.

From day 1 of diagnosis as a type 1, I was on insulin, 4 times daily. Changed my diet overnight, and because I was so pro-active about my disease I was put on a DAFNE course almost immediately. I now carb count, and have managed to get my hba1c to a very good level, rarely go above 9mmol and even rarer go below 4mmol.

My eating habits are quite mechanical, I eat fairly regularly during the day, nothing in between, no snacks outside those times. Perhaps I'm not an addictive person, but there were times I would go through quite a few biscuits, but that all stopped with diagnosis.

Perhaps it is because my wife was 8 months pregnant when I was diagnosed and simply didn't have the time to think about it.

So whilst I agree that some diabetics don't come to terms with it, or take a while, many do. My diabetic nurse has been a fantastic support, and I would advise the OP to discuss everything they have said here with them. They have seen these situations many times and will be able to give you support, advice and help to achieve your goals.
 
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