Thankyou for your reply, she is on the aviva insight pump, i would be happy to fund it myself if this was the only option, i will take a look at the links and speak to her dsn and thankyou !!!If what you are looking for is something to alarm and wake you up in the night if your daughter went low it would be a CGM you should look at rather than a libre, because the libre doesn't alarm, you need to scan it to get the readings.
The first step to getting CGM would be to ask your consultant whether they would support an application to the CCG for funding - have a look at input diabetes on more information on when NHS funding might be available - http://www.inputdiabetes.org.uk/cgm/cgm-costs/
Alternatively you could self fund (if that is within budget for you) a dexcom works out at annual cost of less than £1,700, and is approved for use in those aged 2 and over. There are some threads on CGM costs - http://www.diabetes.co.uk/forum/threads/cgm-gm-price-comparison.75106/
What pump does your daughter have? The animas links up with the dexcom CGM and I think you get better prices if buying via animas. The minimed links up with the enlite CGM.
Does anyone know how old children have to be to go on to cgm and how would i go about getting one of these, my daughter is nearly 3 and is on the insulin pump but getting lots of night time
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
She is having her basal rates changed every other day but still getting the lows, i test every 2 hours and have done sonce she went on the pump, this is why im wanting a cgm as im so tired with getting up every 2 hours in the night for the last 4 weeks, and then having to wake her up to treat the hypos and het her back to sleep, and some one mentioned to me about cgm that can alarm when theae are happening, in order to get a bit of sleep as i cnt sleep just incase she goes hypo and i dnt wake to test her, im no good to her being a zombie.. her dsn has no idea why she keeps goin low as changin her basal rates is not working and changin her ratios is not doing anything!!!If your daughter is getting hypos at night then you need to do some basal testing and then lower her basal amounts where needed, which would be 2 hours before the hypo.
Depending on your pump ie if a vibe or a Medtronic then they have the receiver built in so you need the sensor and transmitter to use the features. These can be bought from the pump supplier.
Dexcom which is Vibe compatible is approved from 2 years. No idea about the others.
Invest in the book pumping insulin which can be found on amazon it's the best book out for learning about pumping and how to use the pump properly.
Does anyone know how old children have to be to go on to cgm and how would i go about getting one of these, my daughter is nearly 3 and is on the insulin pump but getting lots of night time
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
Do you know how they got these was it funded or did they have to get there own !!!A friend of mine has three type 1 children and all have a cgm. oldest is 16.
Do you know how they got these was it funded or did they have to get there own !!!
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
I would suspect she is hypoing due to her honeymoon period, ie her pancreas is coughing and spluttering whilst it produces the last of her own insulin.She is having her basal rates changed every other day but still getting the lows, i test every 2 hours and have done sonce she went on the pump, this is why im wanting a cgm as im so tired with getting up every 2 hours in the night for the last 4 weeks, and then having to wake her up to treat the hypos and het her back to sleep, and some one mentioned to me about cgm that can alarm when theae are happening, in order to get a bit of sleep as i cnt sleep just incase she goes hypo and i dnt wake to test her, im no good to her being a zombie.. her dsn has no idea why she keeps goin low as changin her basal rates is not working and changin her ratios is not doing anything!!!
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
Hi no ive not tried any other insulin she is on novarapid, i wasnt aware there was any others, other than the levamere she had on the pen therapy, regarding the cgm i would be happy to fund it myself i just dont know how to go about it as her dsn as never mentioned it, i only heard about cgm from another mum !!Its just a suggestion but have you tried a different insulin? I do suspect your daughters problems are due to her honeymoon period and it doesn't matter whether she is on a pump or injections if her pancreas is chucking out insulin at odd times then she will hypo.
Also if you feed pasta rice or other long acting starchy carbs then avoid these for the time being as they can cause havoc with blood sugars.
All you do is ring up and order the system yourself you can have the G4 or the G5 http://www.dexcom.com/en-GBHi no ive not tried any other insulin she is on novarapid, i wasnt aware there was any others, other than the levamere she had on the pen therapy, regarding the cgm i would be happy to fund it myself i just dont know how to go about it as her dsn as never mentioned it, i only heard about cgm from another mum !!
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
Do you know how they got these was it funded or did they have to get there own !!!
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
Ok thankyou for that, well she deffinatly has hypo unawareness, but ive been told i need to self fund the dexcom and its nearly £2000,Hi @Layah2013, sorry for the late reply.
The children I mentioned were offered a 2 week trial through the hospital. If they wanted to continue after the 2 weeks, they could keep the scanners, but had to buy the sensors. So granddad, Nana and mother/father fund the sensors.
Last week I asked my diabetes Doctor about getting one on loan, but he said they were only on loan to patients with hypo unawareness or high BS, so I didn't qualify, but, I am still thinking about it.
Ok thankyou for that, well she deffinatly has hypo unawareness, but ive been told i need to self fund the dexcom and its nearly £2000,
Sent from my SM-A300FU using Diabetes.co.uk Forum mobile app
I think they have to be 4 years old and upwards to use that and she is only nearly 3, i dont know what else i can try i was thinkin of trying a hypo alarm bracelet on her but dont know of any children that use it, and if it actually works on kidsThe price of the dexcrom is so expensive, have you had a look at the Freestyle Libre Cgm ?
https://youcandoit.freestylediabete...9_vRv-O6nF5KN03wpAKvsXIA8mzeNjUnsOhoCnlvw_wcB
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?