Chronic Pancreatitis & T1

Hi. I'm 41. Without going into a massive essay about my history I have had chronic P for 10 years (plenty of acute attacks before that) and have always been told that diabetes will ensue at some point. Up until now have always escaped diabetes and insulin dependency. In a minor miracle I've left the pain of CP behind for the previous 8 months and my consultant thinks I'm experiencing "pancreatic burnout syndrome". For reasons not worth going into unless it becomes relevant I've been pricking 2 hourly for the last week and every reading is consistently high. High for me means nearly 9.0 even hours after eating whereas the last time I pricked regularly (years ago) things were normal or low. I wouldn't say I have an excessive thirst or urinate more than usual. Sometimes though when I go to the toilet I end up urinating when I didn't have the urge. Anyway, for reasons unrelated my pain clinic want me to go to the GP to arrange hormone tests and to start reducing the opiates as I no longer feel I need them. So I need to see the GP anyway. Should I inform the GP of my high readings or should I not even be worrying about this unless my pancreatic consultant directs me to do this (pricking)?
I'm worried about the high levels but at the same time I don't really understand what it means, I just know it is not normal or within normal range.
I am knackered most of the time but I just put this down to having a full time job, busy life, 6 year old energetic son, etc.
Any advice appreciated.
DumpTruck.

Thanks you guys so much for your replies. To answer your questions:-

I got diagnosed just over 10 years ago and the cause of the first AP attack was idiopathic although I was later found to carry the CF gene. Anyway I've had 13 acute attacks 10 of which hospitalized me. I've had several CT scans, MRCP's, ERCP's, thoracic x-rays, surface scans, etc. I've had a cholecystectomy (its' function was less than 10%) and shortly after that my current hepato-pancreato-biliary consultant informed me I had all but 3 of the markers for CP. A Frey procedure was discussed but never got done for one reason or another, mainly that the insulin producing cells were intact. And as far as I am aware I am still producing insulin. I also suffer from GERD and NAFLD mainly due to malabsorbtion. I take Creon with everything. He has commented in the past that for someone with CP who has had repeated AP attacks my pancreas is "in good shape", but that was a few years ago.

Anyway I struggled for years with nausea and to find the right painkillers and as I said in my earlier message the pain suddenly stopped 8 months ago. My consultant said there is a phenomena called 'pancreatic burnout syndrome' where (my understanding is) the necrosis in CP is that advanced that it also destroys the nerve endings which report pain and hence no pain. Whatever happened I wasn't complaining. But of course he said that's equally as dangerous because now with the absence of pain you have lost your body's "early warning system" that things are wrong, hence why he advised me to prick.

But like I said I don't really know what I'm looking for. In the past 8 days the average has been 6.8 (min 5.2 max 8.8) and I did a fasting one this morning which was 5.6 when I woke up.

I need to see the GP anyway about this hormone thing so I will take your advice and start with him, he is normally quite good with me. I can't remember when I'm due back at the HPB unit to see my consultant.

Thanks so much for your advice,
DT