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Confused

Elaine9791

Newbie
Messages
3
Type of diabetes
Type 2
Hi all. I'm a tad confused. I have t2 but am told I'm in between 1 and 2 so being treated currently as 2. Have been put on several different meds to stabilise which hasn't really worked. Metformin has been a long running med but have also been tricked with gliclizide, alogliptin, and bydureon. So far I have not been able to fully get rid of thrush and it's getting me down. Don't know what else to do as my nurse seems pretty unsure herself. What I'm very confused about though, is Diet. I thought that as I was to avoid sugary foods, eating fruit was the healthy option. My last visit with nurse resulted in her telling me not to eat any, only 2 bits a week as I will be dead by 44 if I don't deal with this. Anyone shed any light or pointers please?
 
Welcome Your nurse sounds like a right charmer! Do you have a glucose meter to test yourself?
 
Hi and welcome,

How do they know you are halfway between D1 and D2? This is actually impossible. You are one or the other, although it is possible to be both. They are different diseases with different causes. There is another possibility, and that is LADA. This is actually Type 1 but is a late onset T1 that attacks adults. There are tests available to determine which type you are.

Diet.
Your nurse is correct about fruit. It is full of sugar and raises blood sugar levels. Bananas, grapes, dried fruits, tropical fruits are the worst. Berries are the best choice.

You also need to be aware of the role of all carbohydrate, especially potatoes, rice, bread, pasta, cereals and flour.

I'll tag @daisy1 who has some valuable information for newcomers.
 
Hi @Elaine9791 .. and welcome
Your nursie sounds nice .. what she won't tell you is that managing and controlling your diabetes through exercise, diet and testing your Blood Glucose seems to be the best way forward for many people. For me, committing to an LCHF (Low Carb High Fat) lifestyle and testing 3-5 times a day seems to be working and you'll find that there is a wealth of info, relevant advice and positive support about LCHF on the forum ..

I see that @Bluetit1802 has already tagged @ daisy1 for you and I would suggest that you read up on the Low Carb Program in the information that she will soon be sending you. You might also find the discussion on the Low Carb Diet forum helpful .. and the following Diet Doctor websites ...
Low Carb Intro and Information
Low Carbs in 60 Seconds

If you have not already done so, I strongly recommend that you get yourself a meter for testing .. I suggest that you try the website at:
https://homehealth-uk.com/product-category/blood-glucose/
for the SD Codefree meter, which costs £12.98 (you don't pay VAT) or:
http://spirit-healthcare.co.uk/product/tee2-blood-glucose-meter/
who distribute the TEE 2 meter, which is free.
I have both for comparative purposes and I have never found any significant difference between them. Unless you are prescribed test strips by your doctor (unlikely), the costs of testing comes down to the ongoing charges for test strips and lancets. I'm testing 3-4 times a day which works out at around £10 to £12 per month for either of the two packages above but, more importantly, I now know what my BG levels are .. and I can now manage them
Hope this helps
 
I have t2 but am told I'm in between 1 and 2 so being treated currently as 2.

I woul agree with @Bluetit1802 , it's not possible to be between type 1 and type 2. Nor is it really possible to be both, although some type 1 diabetics with insulin resistance refer to it as double diabetes this isn't clinically correct, it's not possible to be a type type 1 diabetic, who doesn't produce insulin, and be type 2 diabetic, a key characteristic of which is hyperinsulimia.

Things that would suggest type 1, rather than type 2 would be inability to control blood sugar with diet and exercise and oral meds and continued untried for weight loss due to high blood sugar. If those things ring a bell it would be worth seeking further investigations to get type 1 excluded, that would be a GAD test and a cpeptide test. It would be worth querying this as if it is LADA and you want to extend the honeymoon period some oral meds, like Gliclazide, are not recommended.

Chronic thrush is probably caused by high blood sugar, yeast infections feed on sugar, so if you're peeing out sugar getting rid of thrush will be challenging. If your blood sugar is over 11 you will be peeing out sugar.

Fruit does contain sugar. Just because it's natural sugar doesn't make it not sugar. So if you think you're following a diet that avoids sugary foods, fruit isn't really going to form a part of it.
 
Thank you to all who replied. Most appreciated
at the moment the nurse has said it's a case of trial and error with all of the meds and I must be more strong willed in following the diet. I guess I will have to wait 3 more weeks until I see her next to discuss what real options they have for me.
 
Eating fruit (other than the suggestion of others re berries with which I agree 100%) is just dumb and as for the nurse? Pass on that one but you must test. Change nurses as she is mistaken ... full of sugars (most of them) and not good for anyone.
 
Last edited:
@Elaine9791

Hello Elaine and welcome to the Forum Here is the Basic Information we give to new members and I hope you will find it useful. Ask more questions and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Yes I have a meter but they wont prescribe me any strips or sharps any more as they say I don't need to test as I'm not insulin dependent
This is a bogus NHS moneysaving exercise dressed up as science. Of course you need to test! This is the only way you will be able to tell which foods you can tolerate and which you cannot plus the effects of exercise and illness on your blood glucose levels. In post #4 above there are links to a couple of meters with lowish cost strips. Testing will be an eye-opener. Good luck!
 

Yes, we should all ignore NHS BS on this. They make the rational decision that 135 amputations/week is cheaper than treating people properly. On Friday, my doctor told me I'm probably the fittest diabetic at the practice. I wanted to say that is only by ignoring all you advice regarding diet and testing; and because you don't bother to treat people properly. But it had all been going so well up until that point, I hadn't the heart. There is no doubt that the NHS should be doing all it can to help diabetics to normalise their BG levels. Instead, we still hear that they are good enough for a diabetic, and all that nonsense.
 
Oh you hit the post there! A chance to tell the doc that the prescribed advice wouldn't have worked for you.

I must be very rude as I just tell them
 
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