Could it be B12?

What book?

Carol
Haven't read the book but I had need for B12 injections every 3 months years before diagnosed with LADA (1.5).
The diabetic nurse said it was the same rascals that had been attacking my good pancreatic cells.
Had to have internal cameras to confirm this.

how about strong B12 pills in mega doses... have you tried them first +

carol43 said:

I have borderline B12 but GP says it's fine

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What are the actual levels?
The reference levels vary throughout the country. You could be OK in E. Lancs but deficient el;sewhere1

mist said:

What book?

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I think @carol43 maybe referring to this book:
Could It Be B12?: An Epidemic of Misdiagnoses
by Sally M. Pacholok, Jeffrey J. Stuart

The word "epidemic" is a bit of a stretch..

.....or. http://www.goodreads.com/book/show/30160947-could-it-be-b12-pediatric-edition

Freema said:

how about strong B12 pills in mega doses... have you tried them first +

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Pills have issues with absorption for some people - those with pernicious anemia, those taking acid suppressing drugs, those on metformin, those with digestive issues, etc. Injections or sublingual absorption provides better bioavailability. There's also the issue that the B12 in OTC supplements is generally the non-activated/non-bioavailable form (cobalamin) rather than the activated methyl version.

Some resources for people with B12 issues that I found posted on another forum by someone who has gone through the wringer with this isssue - they may now how permanent nerve damage as a result of medical incompetence and they're not the only one I've read about

http://healthinsightuk.org/2016/10/...cy-a-case-of-risk-benefit-balancing-gone-mad/
http://www.nhs.uk/Conditions/Anaemia-vitamin-B12-and-folate-deficiency/Pages/Causes.aspx
http://www.b12d.org/
http://pernicious-anaemia-society.org/

Indy51 said:

Pills have issues with absorption for some people - those with pernicious anemia, those taking acid suppressing drugs, those on metformin, those with digestive issues, etc. Injections or sublingual absorption provides better bioavailability. There's also the issue that the B12 in OTC supplements is generally the non-activated/non-bioavailable form (cobalamin) rather than the activated methyl version.

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yes I know that but if ones ability to uptake B12 is only halfway reduces it somtimes help to take really large doses of the vitaminB12 oraly

Metformin also in long sight can make people Loose theri ability to uptake vitamin B12

It's a great book -- well worth reading and I don't think 'epidemic' is overstating things. I had symptoms of nerve damage caused by severe B12 deficiency for many years and was treated by different specialists for everything but that - no one ever thought to check. Too late to repair the damage now, but it could have been treated so easily.
One extra warning about injections. 'Every 3 months' is an arbitrary guideline that is mostly followed. My GP (whom -- needless to say -- I switched from soon afterwards) insisted it was every 4 months and was furious when I asked why not 3. The unspoken answer, of course, was expense. Given that my level was off the bottom of the scale at 73 and the nerve damage was severe and documented, that was a bit much even for the NHS.