Diabetes clinics at hospital

I also found that once you departed from paediatric clinic you were pretty much left to your own devices.
I went without a clinic appointment for 6+ years. I got my repeat prescriptions so carried on regardless. It was only when they stopped producing one of the insulins I used that I found myself back in the 'system'.
Chase up the admin at your local hospital or see if there is another hospital near that you could switch to?
I don't use my nearest hospital as the chief Endo is a complete cretin who said upon departure from paediatric clinic and entering adults that unless I became pregnant or had a problem I wasn't his concern?!?! ***?!?!

Damonite said:

How often are you supposed to get your diabetes checked up on surely I think the main clinics are every 3 months?

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If the person is well controlled and has no issues with their diabetes then its a check-up every 12 months, for those struggling it will be more often.

Why don't you ask your gp to write to the clinic and chase things up.

Yes if well controlled then a yearly check up is ample in my opinion but I know very little about type1.
As a type2, most are seen yearly at their gp surgery. As there seems to a epidemic of type2, s it's harder to get that yearly check up
At the moment my t2 is all over the place with other issues and I am fighting a losing battle at my surgery to getting help. The one thing I Don, t want to happen, is to get the unwanted things that can go wrong with unstable t2 which can lead for more nhs help but my surgery Don, t seem to want to help

I was a;ready in remission by the time I got my first appointment at the diabetes clinic at the local hospital. So don't expect to be going back any time soon.

Though did get a gad test as consultant was uncertain as to my status as I was too slim according to him.

Any chance of your care being taken over by your GP?

As a T2 I seem to have the option of care through the GP surgery or the specialist clinic at the local hospital.

I think even with specialist hospital clinic your GP should still do some of the other tests such as checking your feet. This is an "interesting" area of split responsibility.

In my biased opinion the hand over between child and adult care programmes for T1s is a crucial area and where some T1s are at present let down by the system.

Damonite said:

Whats the deal with diabetes clinics?!Seriously

How often are you supposed to get your diabetes checked up on surely I think the main clinics are every 3 months?

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Some very useful information here. Fifteen things to expect as an adult type I diabetic. You can click on any of the 15 expectations to get further information.

https://www.diabetes.org.uk/Guide-to-diabetes/Managing-your-diabetes/15-healthcare-essentials/

Damonite said:

My hospital is **** at helping

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Have you told them? They're ordinary people trying to do a difficult job under difficult circumstances. I'm not excusing them for any of their faults, but your situation has changed and I think it would help if you discussed your concerns with them. I expect you will get different answers from different forum members simply because we all live in different parts of the United Kingdom.

Damonite said:

Since moving to adults they don't give a **** about you.

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You must find out what the NHS is meant to do for you, then tell THEM if they're not up to standard.

We can all commiserate for the next decade, but nothing will change unless you explain to them that you're not happy.

There again, if your hospital is **** and they don't give a ****, there is always the private option.

LittleGreyCat said:

Any chance of your care being taken over by your GP?

As a T2 I seem to have the option of care through the GP surgery or the specialist clinic at the local hospital.

I think even with specialist hospital clinic your GP should still do some of the other tests such as checking your feet. This is an "interesting" area of split responsibility.

In my biased opinion the hand over between child and adult care programmes for T1s is a crucial area and where some T1s are at present let down by the system.

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I was going to write exactly this but LGC got to it first.

As I understand it, once my diabetes has stabilised I'll be looking at annual eye, kidney and feet screening appointments which will be hospital-managed, and an annual review with my Diabetes Nurse through my GP surgery.

I know you're frustrated, @Damonite but it's important to (try to) forge a partnership with your health care team. You need to find a fit that works for you, and I'm a bit worried that you're feeling so negative and disengaged. There must be another way - is there anyone in your life who can help you find it?

Good luck, eh?

Sock x

SockFiddler said:

it's important to (try to) forge a partnership with your health care team. You need to find a fit that works for you,

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Good point.