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Do I have diabetes or not?

Good morning everyone

To begin with I would like to thank Eurobuff and Elizabeth for their support and encouragement in helping me move forward with my quest to get my health back on track. I think I would have given up the fight if it hadn't been for your support. Thank you!


Yesterday I finally went to see a different Doctor at my local surgery.

I went armed with my meter and printouts of all my readings over the last three months. Which he studied in great detail, to my amazement!

He agreed there's something very wrong going on with my blood sugars which need looking into ASAP. He has ordered a barrage of tests which includes a glucose tolerance test and a test for Lada at the Hospital and will be making a referral to a specialist as soon as the tests are all completed, even if the tests rule out diabetes. Throughout the visit which was well over half hour long he quoted the WHO guidelines and explained many of the things I was told on the forum. He also told me a number of things about recent findings in diabetes, which was encouraging, he agreed with a lot of the information I was told on the forum. He was actually singing from the same song sheet as many of the forum members.

He said an A1c test does NOT rule out diabetes
A 'normal' healthy persons blood sugars will 'seldom' go above 7.8 and will return to pre meal around the two hour mark
Normal fasting blood sugars do NOT rule out diabetes
Persistent 'Spikes' above 7.8 are not 'normal' and should be looked at because they are damaging particularly if BS do not return to post meal readings at the two hour mark
Two readings above 11.1 regardless of when they were taken 'are' a diagnosis of diabetes. As I have had dozens of readings above 11.1 it is highly likely I am diabetic, even allowing for the margin of error in lab results compared to meter readings.
There are many different types of diabetes which all act differently and he mentioned Lada as a possibility.
The extreme lows are worrying and there has to be an explanation for them, which needs investigating. I don't seem to have the lows as often as I did at the beginning but he was concerned I was taking 900mg of Gabapentin three times a day (a massive dose) which can cause low blood sugars so he told me to stop taking them immediately, which I'd recently done anyway.
He also said 'continue' taking my blood sugars and gather all the information I can because it was excellent evidence that the Endocronologist will look at and it will help lead to a diagnosis.
He told me not to mess with my diet at the moment and to continue as normal because he doesn't want a sudden change in diet messing with the results particularly the GTT.
He agreed only eating twice a day would lower the A1c test but already there is an upward trend in the readings which he thinks will likely continue. Stopping the Gabapentin may also mean the numbers will increase.
He apologised for the problems I'd had with the diabetic nurse and said none of what happened was my fault and any issues should not have been addressed with me.
I told him I'd been advised stress could affect my blood sugars and asked if it was possible I could just be suffering from stress which has impacted on my blood sugars. He said not to the extent he was seeing in my readings.

It is a huge relief I now have someone taking me seriously and willing to work towards a solution to get my health back on track, I almost gave up!
 
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That's such great news! It must be a huge relief to be taken seriously and have the situation addressed in detail. Congratulations! I hope they can help you fast.
 
That's such great news! It must be a huge relief to be taken seriously and have the situation addressed in detail. Congratulations! I hope they can help you fast.

Thank you it's not quite as scary now I have a Doctor on board.
 
Hi, I am a type 1 diabetic, not type 2. However, my mom is a type 2. She is 5ft 1 and 7.5 stone, never been overweight in her life. But she has pancreatitis. She “borrowed“ my old blood test monitor as she used to use it on me when I was a child, and my Father who also had type 1. So with 50 years worth of experience with type 1 , you can safely say that she knew her stuff. Her readings were going the same way as you described, but also going to 3.5 and collapsing. She was told the exact same thing by a nurse at the GP practice…. Stop doing blood tests. She felt understandably unsure about this, and continued to test herself.
she eventually starting showing hba1c levels of 9 and over, and was put on metaformin, but she had to argue all the way. it sounds like you are working your way to type 2, but there can be other reasons than lifestyle and weight. As for the hba1c being normal, I can get that too, but in reality my sugars have been spiking up and down. It’s just the line in the middle of it runs at that average. It doesn’t mean that you have been at a perfect line all along.
As said earlier by someone, I am no Doctor, I can only tell you our experience.
Hope this helps.
 
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