Oh yes! I do this with colleagues who are doing the diabetes training to support students who are unable, for whatever, to do their own diabetes care. It's been invaluable for all kinds of reasons. Part of my work when I actually am at work with my students with multiple additional needs, not supporting from a distance via the mediums of video calls, e-mails and the Royal Mail involves direct support with T1D students.
Now, this year, I've been lucky and all I really need to do to support is confirm the numbers on both meters and insulin pens, and ensure the food is actually eaten! Or deal with the hypo brain. Apparently, I have a reputation as a bit of a specialist for support with diabetes of all kinds with all its curveballs...
It's highly entertaining when I have to go through the training myself, which is absolutely essential for me to do this well, and I won't do it if my training is not up to date, but luckily I am now known to the training providers and they are more than happy for me to provide practical, hands-on examples and kit for those brave enough to try. Especially when the kit they bring doesn't match anything either I or the current batch of students use. I do agree to behave myself... With my direct colleagues, they are all allowed to practise doing blood tests on me, if they wish, which has probably been more helpful to them than anything else, they say. I also, if we have to do carb counts for students, make them practise working out my lunch.
I have to confess I find my mum's attitude towards me being T1 really annoying! It's lucky I was diagnosed in my 40s because I dress to think how she would have coped if it has been diagnosed in childhood.
I know some T1s can eat anything, inject and be ok - I can't. Visiting is hard because she insists on carb loaded meals with big desserts. And then she gets upset because I don't each much....
Oh and I've had the "I read in the Mail that it can be reversed by 800cal a day diet" stuff.
**sigh**
This - so much! I am so, so thankful, from a diabetes point of view, my mum died long before both dad and I were diagnosed (Dad 15 years or so ago, me, more recently) because her only way of coping would have been to place large carb-laden meals in front of us, meals of a kind I certainly can't just carb-count, inject for and hope for the best! Then we'd be getting told off by her for not losing weight or controlling our blood sugar numbers better whilst simultaneously being told to eat everything we were given, whether we wanted to or not, and "Just once won't hurt".
I have to confess I find my mum's attitude towards me being T1 really annoying! It's lucky I was diagnosed in my 40s because I dress to think how she would have coped if it has been diagnosed in childhood.
I know some T1s can eat anything, inject and be ok - I can't. Visiting is hard because she insists on carb loaded meals with big desserts. And then she gets upset because I don't each much....
Oh and I've had the "I read in the Mail that it can be reversed by 800cal a day diet" stuff.
**sigh**
So now I have an appointment for September to discuss treatment. If that doctor says the words ‘poorly- controlled diabetes’, I swear I’ll swing for him.
It feels good to get that off my chest. Thank you.
I’ve been trying to convince my brother for 69 years how difficult it is to cope with T1 am I banging my head against a wall, you bet I am, I’ve just given up on anyone understanding even some of the so-called specialist who say they understand. MalcolmMy neighbour and older sister literally have no idea what a life with T1D means even though I have explained it multiple times.
Don’t you guys just hate it when people don’t want to understand. They think I’m being over the top by carb counting and prebolusing for meals. They refuse to understand that everything practically has carbs in it and my body makes no insulin at all so every bit of stuff I eat makes my BG rise and even without food my BG rises due to dawn effect, stress, illness and so forth.
Is it just me that experienced this with people around me?
Edited by moderator to remove inappropriate content
My neighbour and older sister literally have no idea what a life with T1D means even though I have explained it multiple times.
Don’t you guys just hate it when people don’t want to understand. They think I’m being over the top by carb counting and prebolusing for meals. They refuse to understand that everything practically has carbs in it and my body makes no insulin at all so every bit of stuff I eat makes my BG rise and even without food my BG rises due to dawn effect, stress, illness and so forth.
Is it just me that experienced this with people around me?
Oh yes I’ve been at it for 47yrs and family are ok but work colleagues and fiends just don’t get it. It’s certainly a daily battle trying to maintain blood levels and it still drives me crazy. Covid hasn’t made it easy as some people think it’s just diabetes ‘you’ll be fine you don’t need to worry!’
Keep with it !
Edited by moderator to remove inappropriate content
if they havnt got diabetis they dont understand what its all about and how hard it is to eat meals that u like and not worrying about the carbsMy neighbour and older sister literally have no idea what a life with T1D means even though I have explained it multiple times.
Don’t you guys just hate it when people don’t want to understand. They think I’m being over the top by carb counting and prebolusing for meals. They refuse to understand that everything practically has carbs in it and my body makes no insulin at all so every bit of stuff I eat makes my BG rise and even without food my BG rises due to dawn effect, stress, illness and so forth.
Is it just me that experienced this with people around me?
Edited by moderator to remove inappropriate content
It’s not really so much about my care but they act hostile thinking I’m exaggerating which is annoying me.
My sister does cook for me but I don’t have specific dietary requirements apart from knowing the carbs. Everyone around me is so interventionist, you would know if you were me. I have some random aunties I never knew who call in to say I should eat cinnamon and yoghurt which will stabilise my BG apparently. It just frustrates me hearing people say such things and I really don’t care about if they understand my disease or not but it’s just the repetitive unsolicited advice they give as if they have any clue. And I give them the basic information they need to know yet they’re so clueless and still try to give me advice.
It just makes me so angry hearing people like my mum and sister say “oh you were eating fast food often that’s why you have diabetes” despite me explaining the autoimmune nature of T1D and the most accepted scientific theory is a virus triggering it along with several other factors such as low vitamin D.
Just to let you know, it’s not me who keeps talking about my diabetes and bragging about it. It’s the people around me who are always trying to give me advice and force me to eat their food— I’m sure you’d agree this is really annoying
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