ShyGirl said:I think i'm right in my assessment of the situation- I probably have something called diabetic maculopathy and will be blind by the end of the year.
ShyGirl said:No. I suppose a doctor will as I only saw nurses (?) today but if i'm being seen so quicly they probably know what I have already and what treatment to give me.
ShyGirl said:I've had a small dot in one eye since Tuesday. Sometimes it's white and i've had some pain which feels like stress type headache.
The problem is I had to go to A&E last November after some vision loss but the opto said it wasn't related to my diabetes or retinopathy , it was arare type of migraine.
I've read some posts on here that mention they knew they had a bleed. How do you tell?
If you suffer other issues such as headaches , visual disturbances and migraines how do you know when it's a retinopathy issue or something innocent?
I can't go to A&E all of the time i've an eye change but the paranoid and stress is making me ill. I've never been lasered but know my time must be coming soon :cry:
ShyGirl said:Hi.
Hope this makes sense.
It looks like i'll be having laser soon but i'm not sure when. My next test will be another angiography in 5 weeks ish.
Doctor was nice and thinks I should call my nurse as I explained how I woke up in double figures even though I hadn't eaten anything carb laden yesterday (mum thinks stress is causing such high figures but i'm unsure. I have felt ill all week though) other than yoghurt , berries , omelette and one piece of burgen toast , so it's disappointing seeing levels I associate with illness or eating like a normal person.
He said i've a "bit of
maculopathy but it's reversible" (***?!) and what I can see in my vision is probably some loose jelly which shocked me a bit. I'm upset about having to give up diving lessons and the fact i'm in some horrible limbo but I feel slightly better.
I'm anxious about calling vnurse as she berated melast week when I told her i'd taken a metformin because after breakfast I was quite high but know my med regime isn't working and I refuse to sit at home with high levels waiting for "things to settle" given i've gone form 6% hab1c to over 8 in just a year after med changes , lack of help , med withdrawals and other bad luck I won't bore people with. Problem is i've used everything and it looks like Victoza makes me ill as I took an extra dose last night (2 x 0.6 mg) and felt so sick that I took to bed , had to fetch a bucket and find some old domperidone
Things are tough but I hope to stay strong and not give up.
Ill probably fail- there aren't any cures or guarantees once eye issues appear and i've a lack of support that makes it hard to get through each day- but right now I feel slightly calmer.
Unbeliever said:I have had maculopathy for five years and am not blind yet. Both eyes. I am going to the hospital tomorrow too for laser
Robin. Good luck to you too.
Try not to anticipate problems ShyGirl. These things take ime to develop and treatment slows them down. Nurses and biometrists generally do the angiograms in my hospital too. I dont' think it is always a case of results as such. It will probably be considered ogeher wih other informaion o tall hem what is wrong. An angiogram is not necessary for a diagnosis of maculopahy.
It's very hard to have any real confidence in them when there is no consistency :sick:ShyGirl said:Update for myself I suppose as this is a merry go round and it's time to keep a proper record.
My appointment this week was strange. I had been ill again so felt rotten/feverish and exhausted (I wish someone could explain to me why Metforim is so toxic for some as its cheap and the only meds I can now take are ones i'm not happy about ) and was saddened when my reading was 10 instead of my usual 5.4 (nurse panicked a bit and told doctor- very embarrassing) but long story short , and after lots of faffing about , I was told I don't need laser...but i'm being asked to go back in two weeks and there's no record of my last angiography which stunned me a bit.
I was also told that the doctor in May said the wrong thing as the "loose jelly in my eye that would need laser to seal it" wasn't true apparently.
I'm left feeling bewildered really as I still (obv)have bits of missing vision and every doctor tells me something different so i'm not expecting this post to be my last word on my eye issues.
I mentioned how confused I was and driving and was told modern lasers don't remove as much peripheral vision in the past (hmmm) and would I like a visual field test. I was surprised when he offered and even more so when I googled what one was exactly as I assumes some eye chart in dark room.
I wont be surprised if it's not been ordered but it was nice to speak to someone who knew about diabetes and ophthalmology .
Now i'm left wondering why i'm seen at an eye unit instead of the dedicated diabetic eye department , a place I last saw in 2009 ,and if continuing good control will be enough to keep laser at bay although with PDR and maculopathy I basically count the days and he did mention that they could laser or wait until problems appeared and do it then. I just have to calm down and focus on living with this constant limbo as it's drained me for years but it's out of my hands as to what happens next.
Just wish that I could see the same doctor each time. Being told "you need laser" then 9 weeks later "not at the moment" is crazy.
ShyGirl said:I went in for the results of my visual field exam but ended up having more tests and being told I had some fluid on my eye and would have to go back next week.
I'm very confused but they are vague when you ask questions (I know it's the "keep a close watch and intervene if needed" condition which makes it incredibly hard to know where you stand) and I was already upset/unable to concentrate due to the person I went with saying nasty things to me .
Not up to fighting my corner much and finding it hard to control stress levels what with so many non diabetes related issues going on.
I'm not sure what is happening but I still think i'll need laser by January despite what the doctor said. The only good thing about is that i'm finally seeing the same person instead of walking into a room with a stranger each time.
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