mumroo
Newbie
- Messages
- 3
- Location
- Northumberland UK
- Type of diabetes
- Treatment type
- Tablets (oral)
- Dislikes
- Confrontation. Gossips.Bullies.Lying.All Wars and all Cruelty.
Thanks for your Posting.Yes I've had about 6 MRI and 4 CAT Scans. I had the Myodil Oil Based Dye injected into my spine in 1970, in betwen having Two seperate Lamanectomy's to have Discs removed. The Dye was banned in the Staets in1970 but in the UK not until 1987. !!This has resulted in my getting Adhsive Arachnoiditis, where the Dye has Set like cement. I have a clump at the bas of my skull and a larger clump in my Lumbar region.The problem is that once I was diagnosed with Type 2 in 2010 the Neurologist decided that my Neuropathy was caused by the Diabetes and not the Dye !! However the Diabetic Specialist said it was definately the Dye that was causing the problems, as I was only Border line Type 2. The result therefore has been that I don't see anyone at all except my GP and haven't since 2009 !!I was also told in 1990 that I had Fibromyalgia and was registered Disabled. When I asked my GP a month ago about seeing someone for my Fibro OR the Arachnoiditis he said " well really Fibromyalgia is just a name we give when we don't really know what is wrong" then he said,and I've seen this in my notes too, " you really should stop getting " hung up" about the Arachnoiditis". I just feel now I've reached 66 that they just don't care and I feel totally lost with it all. I'm carrying on with my Low Carb and I know my numbers are good, I've just had enough of all this pain.Thank you again for your help.I know I shouldn'tbut I can't help it I've tried but I can't stop myself anymore
I saw the title of this thread and my first thought was 'Can I have them?'
OK that done
Have you had an MRI of your brain and spine to rule out any other causes?
If not, I would persist in asking for it or pay for it yourself.
I found I had less of these symptoms of which you are suffering ...... once I was diagnosed as Diabetic and learned out blood sugar testing .... and got my blood sugar lower.
I still get them all pretty much, due to my spine and spinal cord injuries and Brain Injury.
BUT they're a lot better since controlling my Blood sugar and keeping it lower.
I also find that a vitamin e with mixed tocopherols (containing R alpha lipoic acid) helps me.
Hope you get some relief soon x
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