Type 1 food

What are your numbers like if you are not eating/not eating carbs? I eat very few carbs, most meals with none and my numbers are actually much better without them so there is no 'need' to eat them if you can get good numbers without them. I do however have a pump so if I eat a small amount of carbs I can still take a very small amount of insulin and I do see how this could be more difficult on MDI, but maybe a half unit pen if you don't have one already may help if you are only needing small amounts of insulin to cover a small amount of carbs.

What type of Insulin are you on? Generally getting the basal dosage right is the basis for everything else as really your basal should be able to keep you in range all day without you eating anything, I know that sounds easier on paper than in real life but it really is the foundation for everything else so trying to get that right would be the first step. Once you have that right then working out what you need to cover food (or not cover food as the case may be!) is the next step. What are your numbers like first thing in the morning when you haven't been eating overnight? That can give an indication of how well your basal is working and once you get good waking numbers you can test your basal at other times of day to try and get it set right.

To be honest if you are having numbers that high then I'm not sure why trying to eat more carbs (which will raise your blood sugar) is being suggested as a solution. Is you DN a specialist at a hospital clinic or at your GP surgery?

Hi @muggle666, I think I remember you saying you're a type 3c. Type 3c is a form of brittle diabetes and it does take a while to get those blood down. (I know, after 8 months I celebrated a 13.6 the other night!!). Also type 3c can't generally LCHF because we can't digest fats properly so I'm guessing that's why your nurse is telling you to eat more carbs!! What I've done is try and work out the worst carbs for me - so I know pasta, potatoes and rice are my biggest problems, sending my blood sugars onto the high 20s, so I've cut them out. But I still eat weetabix for breakfast, and bread at lunchtime! As a 3c It would be better if you eat regularly, you body finds it hard to digest food so in my experience (15 years of the pancreatic bit), I find little and often is the easiest way, it reduces the nausea, whilst keeping up your nutritional needs. Sue xxxx

Hang on in there @muggle666 ! Don't forget you are trying to manage both your pancreatic problems and your diabetes at the same time, so lots of the usual diabetes rules go out the window! It is going to take a while to get the balance so be kind to yourself!! I remember the no appetite phase and being grossly underweight (I'm 5'7" at at one time was 6 stone - now 8 stone). Try soups, berry type fruit, jelly, dairy if you can manage it (I can't except abit of skimmed milk), chicken, veg. If you fancy a jacket potato or something carby, then have a small one and test 2 hours after to see what effect its had on your bloods. You will need the carbs because you need 'energy food', and you need to put some weight back on. It's just getting the balance right, it will come eventually. Sue xxxx

I can't remember @muggle666 are you on Creon? How are you taking it? What strength and how many? BTW, try angel delight (no added sugar one if course ), or no added sugar custard and chuck some chopped up fruit/berries in - good way of getting some extra milk down and it feels like you are having a treat! I know that horrid taste thing, but it does go eventually - honest!! Hang on in there! Sue xxx