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Hate feeling low when your BG is above 5!

Danielle Rafter

Well-Known Member
Messages
77
I feel like that sometimes and my brain can't do the right things and I start struggling to speak, feeling hungry like when you're low and tired like you haven't slept.

It's hard to express the feeling to people who are not a diabetic but some of them do understand, I keep hearing that people's son's/daughters and even parents have been diagnosed with diabetes and it's sad because they have to suffer what I went though because I was diagnosed at age 3 and its horrible. My mum and dad used to inject my insulin and I used to run away because I hated it and I also used to hide away but when I was 7 I was put on the pump which changed my life but it had the lead to it and it always used to catch on all sorts and it pulled out and I was screaming


When I was 11/12 I was put on the omnipod and that changed my life again because it's Bluetooth waterproof and no wire included and I can do anything, it's like a fairy tail that came true to me haha. 2 years ago I was put on the dexcom G5 and yet again it changed my life again
I find it easier to use than just a pump and also pricking your fingers constantly it was annoying trying to make it bleed because it wouldn't pierced the skin properly so a very little blood came out
 
If you feel low at 5, are you used to having much higher levels most of the time? Just curious, as I’ve got my Omnipod set to aim for 5 in its bolus calculator.
 
Mel dCP said:
If you feel low at 5, are you used to having much higher levels most of the time? Just curious, as I’ve got my Omnipod set to aim for 5 in its bolus calculator.
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I'm not really used to have my BG high because it's mostly low but I might be used to the feeling of being low and that might be why I'm not sure.
 
Danielle Rafter said:
I was diagnosed at age 3 and its horrible. My mum and dad used to inject my insulin and I used to run away because I hated it and I also used to hide away
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Same here diagnosed at age 3, was forced so self inject via a diabetic camp one summer aged 5 and never really looked back.
 
Hi there Danielle.

Have a bit of a similar problem - I get tired, when my BS is around 5.3 mmol/l (with a little + or - variation).
I also think you are quite right, in assuming it is because of having low BS often - at least I think that's the case for me.

Yup, remember those days, when I was a little kid, although for me, that was about 50+ years ago...
 
O_DP_T1 said:
Same here diagnosed at age 3, was forced so self inject via a diabetic camp one summer aged 5 and never really looked back.
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Same I hate to look back but I talk to people on here where they can't have a pump and they have to self inject and I'm like wow how can you go through that 8 times a day it's just really sad
 



Awh bless, my child hood was scary and very lonely because I fainted in my mums kitchen and had first because of my BS shocking my body in the most horrific way
But it hasn't happened since (touch wood)
 
If you have hypo symptoms when not clinically hypo, it's probably because your BGs are consistently higher than what the should be. If you have an extended period of good control, avoiding hypos and highs, then hypo symptoms should return when you are clinically hypo
 



Probably but my BG is hardly high yeah maybe 12 but not higher but depending on weather changes with mine and it makes my blood go all over the place
 
12 is too high for everyday readings and may eventually lead to diabetic complications. Your doctor shouldn't really be allowing you to stay at that level at all. You are experiencing feelings called a false low. Why? Because your sugars are running higher most of the time and only returning to near normal levels occasionally. Your body is used to a high level as it's normal, and sees the lower levels as a low, when it isn't really.
 
Yes - I have to agree with previous statements. 12 is a bit too high, and that will probably give you false hypos, when your glucose levels are going down. Especially if BS is going down fast...
 
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When my doctor downloads my pump the highs are in red and lows are in purple but 12 isn't red but I'm mostly under 10
 
Obviously we are all different, but it's my understanding that the body needs to get used to lower blood sugars, at which point the horrible low feelings will stop. At 5 it isn't a true low, and running your sugars much higher than that will definitely cause issues in the long run, such as the dreaded diabetic complications such as retinal damage leading to blindness, or diabetic neuropathy, which can lead to amputations.
Have you heard of Dr Richard Bernstein? He has really good recommendations for T1s and their management, and he knows what he's talking about, having been T1 now for about 50 odd years.(He has no complications at age 86). His books are available on Amazon etc, or possibly a local library might obtain them for you.
 



I'm not really a book reader but it's good that a diabetic has written something where others can and get information we need about our needs for insulin checking out BG and getting the help we need but on paper, so many things today that are created that are amazing and I was shocked about him being 86 that's a good age for anyone with a disability like diabetes and etc
 
Hello again!

The following link is quite known around here - maybe worth reading. It points out the importance of trying to keep ones blood sugar levels within NORMAL limits. You can find quite a lot of information about these things via Mr. Google.

https://www.bloodsugar101.com/organ-damage-and-blood-sugar-level

(Could be, that I don't have rights to copy a functioning link directly, but you can put the link above "as is" into a web-readers address-field)

Edited to say:
OK - the link is a functioning link. I checked it...
 
That’s a really useful link, I’ve got all my insulin calculators aimed to point me at 5mmol.
 
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