Hi thank you for your reply. Glad to hear that it's a good results feeling very happy and proud . I've always for yrs been on the really high side and have now problems with my eyes and nerve damage, and diagnosed in Dec with stage 3 chronic kidney disease. I take Toujeo and I think what has helped mostly is Mounjaro. Had to pay out of my own pocket for 8 months but waw the results all show in my Hba1c and my kidney results has come back from 20 to 11.7. But now I'm worried I've had to stop the mounjaro because of the price increase. I monitor my sugars with the libre sensor. But these last few weeks noticed a big change for the first time I'm having hypos, and they all happen mostly at nights.Hi, and welcome to the forum.
Firstly, yes you have created your first post absolutely correctly.
It’s very poor that you haven’t been able to talk to a diabetic nurse for that long.
41 is a very good result, and a massive improvement over your last result. What have you changed to achieve that? What insulins do you use?
How do you monitor your diabetes from day to day? Do you use a CGM (like libre or dexcom)?
My only worry with such a good result would be whether you are seeing any episodes of hypoglycaemia?
I monitor my sugars with the libre sensor. But these last few weeks noticed a big change for the first time I'm having hypos, and they all happen mostly at nights.
Thank you for that suggestion I'll deft try that when it happens . Thank youhave you tried asking the consultant that deals with your CKD to refer you to the DSN to see if that can possibly speed things up for you?
compression lows can occur without actually laying on it. if i sit down back against chair (not touching sensor it will show a little lower too). usually compression lows will from prior to laying down level in graph will pop up within a very short time of standing up (approx 10-15 mins lag) to where it was prior to laying down.
Ive been in contact with my doctor and the hospital and explained everything but still non the wiser with getting an app. I had laser on one eye and that's helped but the other eye..well...about 6 months ago they found that the optic nerve was swollen. Then about 2 months ago my eye sight started to go black just for few seconds and terrible headaches. I was rushed to hospital found that the optic nerve swollen even more. ( I do suffer from high blood pressure) I had a head scan and found i had pressure around the brain as well. Ended up having 2 scans a lumber puncture and an mri. But all clear. So still in the dark with what's happening. Going back on the 5th for more test. Ive now stopped the mounjaro because of the price but on the very low dosage of wegovy. None of the doctors have told me to stop it. Ive tried with my local nurse for now to change the dosage of my insulin to see if that helps with the hypos.It must be so frustrating to have to wait so long to see the diabetic nurse. I was referred to a hospital diabetic nurse and had to wait 4 months. Even that seemed like a lifetime. Only to be told they wouldn’t prescribe Mounjaro because I have background retinopathy and it isn’t appropriate where there are certain existing problems.
Maybe ask if you could see the DM urgently as you are now having recurrent hypos? It might bump you up the list. I’d discuss the Mounjaro and eye problems with them as well.
Yes I asked the ckd specialist but all he said was he will write to my doctors and say it seems the mounjaro is helping and need to see the diabetic nurse ASAP. Well that was about 5 months ago. Plus was supose to see my ckd doctor again about 2 months ago for a review still waiting. Fed up going after everyone when I'm strygling myself health wise and work. But with the checking my sugars I will try what u suggested thank youhave you tried asking the consultant that deals with your CKD to refer you to the DSN to see if that can possibly speed things up for you?
compression lows can occur without actually laying on it. if i sit down back against chair (not touching sensor it will show a little lower too). usually compression lows will from prior to laying down level in graph will pop up within a very short time of standing up (approx 10-15 mins lag) to where it was prior to laying down.
Yes I asked the ckd specialist but all he said was he will write to my doctors and say it seems the mounjaro is helping and need to see the diabetic nurse ASAP. Well that was about 5 months ago. Plus was supose to see my ckd doctor again about 2 months ago for a review still waiting. Fed up going after everyone when I'm strygling myself health wise and work. But with the checking my sugars I will try what u suggested thank you
Hi. I have been crosschecking my readings with a glucometer when it happens to go low and they match. I know my reasings are in range but when for nearly w0yrs when my readings been between 18 to 32 coming down to below 4 all of a sudden we'll....think it's just going to take some time for my body to come to use to such low readings.Re your CGM screenshots, I'm no expert, but I learned from an incident in which 3 successive newly attached Libre sensors read LO and 111 suggested I go to A&E, because I didn't have a glucometer to cross-check. My sensors were likely faulty (only time), but I have had readings just below range, like 3.6, and was told by doctor not to worry about it, as I'm not on medication which can cause hypos. Below 3.9 not unusual for non-diabetics. Those readings in red look scary, but it's to warn insulin users. Of course we should cross-check with fingerprick. I suspect your readings are not compression lows, but I could be wrong.
is that including checking via fingerprick in the middle of the night?Hi. I have been crosschecking my readings with a glucometer when it happens to go low and they match. I know my reasings are in range but when for nearly w0yrs when my readings been between 18 to 32 coming down to below 4 all of a sudden we'll....think it's just going to take some time for my body to come to use to such low readings.
Ive been in contact with my doctor and the hospital and explained everything but still non the wiser with getting an app. I had laser on one eye and that's helped but the other eye..well...about 6 months ago they found that the optic nerve was swollen. Then about 2 months ago my eye sight started to go black just for few seconds and terrible headaches. I was rushed to hospital found that the optic nerve swollen even more. ( I do suffer from high blood pressure) I had a head scan and found i had pressure around the brain as well. Ended up having 2 scans a lumber puncture and an mri. But all clear. So still in the dark with what's happening. Going back on the 5th for more test. Ive now stopped the mounjaro because of the price but on the very low dosage of wegovy. None of the doctors have told me to stop it. Ive tried with my local nurse for now to change the dosage of my insulin to see if that helps with the hypos.
I used to go to the hospital see the diabetic nurse and yes it's her I'm waiting to see. Doctors can only help me a certain amount. I need to contact the hospital again next week.That’s a really interesting side effect from Mounjaro. I wonder whether in the future it might be used as a treatment for eating disorders.
Just another thought. Is it the hospital nurse you are waiting to see? Could you try a complaint to PALs especially as your specialists have said you need to be seen urgently.
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