• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

HI, i have addisons disease & any advice welcome on blood su

emf

Newbie
Messages
1
Hi, i was diagnosed with addisons disease about 7 years ago. i had been living with a blood sugar of 2 for around 15 years. my blood sugar fluctuates between 19 to 6. I eat slow release carbs and lots of veg. My fasting blood sugar test was 7 and that what it is most days. My feet hurt. I get pins and needles in my fingers and toes. I take prednisilone and fludrocortisone. Anybody else in my situation? im 40, and was misdiagnosed for 15 yrs. i have renal failure and a host of other things. i have looked and looked for help since diagnosis. im told i have diabetes then i'm borderline! I dont know where to get advice, gp isnt very forthcoming. ive purchased a blood sugar monitor machine myself and lanclets etc. Can you self refer to a dietician or diabetes nurse? Any advice welcome.

esther :?
 
Re: HI, i have addisons disease & any advice welcome on bloo

Hi emf and welcome to the forum I can't help you with your other problems, but I can help you to control your diabetes as well as possible. You would do well to cut down on the carbs you eat as your levels post meals are going too high. In the information below there is a guide to the levels you should try to get, or even lower is better. You have done a good thing getting yourself testing equipment. It is important to test before and 2 hours after meals then you can see what each food does to your levels. Then you can experiment with decreasing portion size or cutting out that particular food. Even though you are not newly diagnosed, I think this information for new members will be helpful to you. Ask as many questions as you like as there is always someone here to help.

 
Re: HI, i have addisons disease & any advice welcome on bloo

Hi That is disgusting that it has taken 15 years to get diagnosed with the Addisons :shock: :evil: You really need to find a good ,skilled endocrinologist (not easy) who knows what they are doing. Living for 15 years with that must have been so difficult for you but I have read that a lot of people do find it hard to get a diagnoses, and yes it will damage your kidneys undiagnosed for that length of time, I'm so sorry to hear what you must be going through.

I honestly think you may have more than the Diabetes that can be controlled with diet alone and if you carry on with sugar fluctuations like this ,like you did with the undiagnosed Addisons you will end up with another host of problems. You must feel terrible with those fluctuations. I don't want to alarm you but I really feel you need to get fully checked out for Diabetes...if you have already then get checked again, as BG in those ranges are not good.

Corticosteroids will raise your BG but if they are set at the right level for your Addsions then they really should not raise them to that extent.
I was told that by my Endo that Type 1 Diabetes and Addisons are closely linked...also get checked for Thyroid disease as this also goes hand in hand for a group of people. If you get no joy from your Doctor please bang on some more doors ,ask for referrals and get the help you are entitled to.

Get as much info about your condition that you can and take it to appointments, it might get on their tit's but unless you get someone who is specialised in the field of Endocrinology it really is like flogging the proverbial dead horse...I know I have been there.

Are you under the hospital or GP for your ongoing care? How do you find them?

I can't believe that they are letting someone who already has kidney damage live with sugars going up to 19 :evil: :evil:
 
Cookies are required to use this site. You must accept them to continue using the site. Learn More.…