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How do you keep it up day after day?

abbyfuller

Newbie
Messages
1
Hi,
I have had Type 1 diabetes since I was 21 (9 years). At times I can keep control of my blood sugars but I have a sweet tooth and I love socialising and I find it difficult to keep my levels between 4-8. I hate going low as in HATE going low and I feel distressed, guilty, sad when my blood sugars are high. My highs are generally around 14-16 it makes me feel sick but I dont understand how on earth to keep them constant.
If anyone has any advise I'd love to hear it. Going to see a nurse helps to keep me motivated but of course I cannot go every week. I am very happy in life other than this massive issue!!!
abby
 
Here is the advice we give to new Diabetics so some of it may be of help to you in trying to control your levels.

 
abby,

Without stating the obvious, 14-16 is way to high and you are in danger of ketoacidosis running bg this high, as well as the risk of long-term complications. Ask your nurse to enroll you on the DAFNE course, this is a carb counting course for type 1's and will teach you to adjust your insulin to the amount of carbs you consume (insulin/carb ratios) which should keep you within the recommended guidelines.

Remember this will only work if you are willing to put the effort in, so you may have to ditch the sweet tooth or keep treats to a minimum, but no reason why you can't enjoy yourself and keep socialising with your friends. Do ask about DAFNE!

Nigel
 
Nigel I am T2, but I find it dammed hard, and sometimes it just seems seems so relentless.

I have managed to work out through testing what has the least effect on my BG, for example I have found when socialising, that I can have a small desert made from merangue occasionally without too much damage to my BG levels. But there is no way that I can eat a large chocolate gateaux.

I can get away with a reasonable portion of proper chips, made from real potatoes but not the frozen reformed type. But if I do that, then I can't have the desert as well. Sadly I can't drink alcohol at all, wereas my diabetic brother finds a moderate drink of red wine helps him

It is trial an error to find what effects you the most if you get to know your body then you can work your social life around your diabetes, but you do have to adapt to the diabetes, it won't adapt to your lifestyle. If you have good friends, train them well and they will help you if they know what to do and to look for. If we eat out, my friends will make sure it is somewhere which has a menu that I can eat, if they are catering likewise.
 
Hi
I am a type 2 only diagnosed about a year ago Ihave found that sometimes you have to think outside the box for eg if you go for a meal and it is chips with everything I have found that if you ask if it would be ok to have salad with your meal or extra veg and no chips you usually get a better deal .I have been to buffets where every thing was sandwiches or sausage rolls I have taken the fillings out of the sandwiches trawled the tomato lettuce etc that they use to make things look nice :!: and ended up with a nice ham or chicken salad . Disposing of the bread can be a challange but I put half on my husbands plate and smile sweetly but really it doesnt matter what anyone thinks we have our health to think of and we dont want to go hungry because everyone else is scoffing carbs.
CAROL
 
abby,

Firstly, you are not alone. It is very hard to balance blood glucose, especially with type 1. We are all struggling with it.

Is it that you love sweet stuff and don't know how much to inject to cover it? Or that when you are socialising it's harder to find time/places/motivation to inject? Or that you inject to cover it, but that makes you hypo? (I find that injecting to manage very sweet things can be tougher to calculate and manage).
 
Hi Abby,

I was diagnosed Type 1 at the age of 21 too.

For the first year I didn't want to deal with it. I hardly ever checked my blood sugar and didn't inject the right amount of insulin for the food I was eating.

Once I'd come to terms with it I did start to improve my contrl but struggled. I also have a sweet tooth.

In January 2009 I went on the Dafne course and it was the best thing I ever did. Not I can eat what I like (including cake chocolate etc.) in moderation and still have well controlled blood sugars.

If you've not been on DAFNE yet, try and get on to a course.

I do have hypos but I can treat them and because I check my blood through the day I see them coming before they get dangerous.
 

Hi Abby, Can I make a suggestion that you speak to your GP or Diabetic Nurse and ask to go on the DAFNE course. I had the same issue for a number of years. I have been T1 for nearly 30 years and found the course extremely helpful. Well worth doing and you actually realise that you are not the only one who has problems. It also can save any long term problems arising.
 
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