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Insulin Pump and diabetic nurse issues

Alicekat

Member
Messages
5
Type of diabetes
Type 1
Treatment type
Insulin
Hi so i am 22 and have had diabetes for 19years, in the past year i have been trying to get an insulin pump as my control has gone down hill. I believe its to do with insulin resistance and the fact my insulin will not always disperse properly. When broaching this with my D.nurse she seemed to brush it under the rug and told me to see the dietician, if she says i dont need to do a carb counting course (which im very up to date with anyway) then i can have the pump. well 3 appts later and still no pump, more excuses and just saying it must be me, my fault things are not working. This made me extremely angry as i do not like being high and feeling sick and doing multiple injections, let alone not going out because i feel so horrible. Is it possible to complain to someone or move hospitals as this has been ongoing and my diabetes is going downhill, which they dont seem to care for nly been admitted to hospital once through my diabetes and i dont want that to change.
Anyone experienced anything similar as i am starting to give up hope.

Also every injection will leave a massive lump.

Thanks in advance.
 
Hi @Alicekat
welcome to the forum !!
please don't give up hope -- you sound amazing !! and full of life !!
keep posting here and I am sure we can get you some sensible help towards your pumping goals.

Have you contacted http://www.inputdiabetes.org.uk/ for their help in obtaining a pump.

you should get in touch with them -- they are a charity that assists D's to get pumps and CGM.
 
Is there anyone else at your diabetes centre of hospital you could ask for a second opinion and additional support, @Alicekat ?

Have a look on the pump forum for all sorts of pump advice - http://www.diabetes.co.uk/forum/category/insulin-pump-forum.14/

The NICE criteria for pump therapy are here - if you fit these I understand they have to consider you for a pump - https://www.nice.org.uk/guidance/ta151

And this is from Input:

If you don’t meet the NICE criteria but you do fall under recommendations from the Association of British Clinical Diabetologists (ABCD), your clinic will need to make a strong case for you to be granted funding

ABCD recommends that insulin pump therapy is also considered in the following situations:
• Pregnancy
• Acute painful neuropathy or symptomatic autonomic neuropathy if
conventional treatment fails to enable adequate blood glucose control
• Hypoglycaemia unawareness
• Extreme insulin sensitivity
• Needle phobia
• Severe insulin resistance with poor blood glucose control
(especially if type 2)
• Specific quality of life issues:
– Pathological fear of hypoglycaemia
– Marked glycaemic excursions/dawn phenomenon
– Excessive number of injections for optimised control
– Impaired exercise capacity, abnormal eating behaviour or an unacceptable number of sick days
– Shift work or frequent travel across time zones
– In children: sub-optimal school performance, exclusion from aspects of a full school life; behavioural problems (for example, mealtimes); adverse impact on family dynamics

Consultant’s recommendation
Your consultant agrees you have a clinical need for an insulin pump and have the necessary commitment and skills to use the technology safely and effectively

http://www.inputdiabetes.org.uk/alt-insulin-pumps/is-it-provided-by-the-nhs/
 
hello @himtoo , thank you for the warm welcome, i have not heard of this thing you suggested, they help with CGM too ?diabetic nurse said i was not aloud one.

Thank you very much, i will look at it ASAP.
 



hi thank you for the response, i am currently unable to work due to such erratic blood glucose levels and still nothing is being done to help me, i will look at the links you ave suggested
thank you
 
mist said:
Welcome to the asylum
Click to expand...

Hi , well thank you sounds like my type of place !! currently battling with severe anxiety and depression and newly diagnosed with epilepsy.
very good idea 1 kittens always cheer you up
 
Hi,
Welcome!
In short. Don't rely on a D nurse to push anything through other than your blood sample to the lab...
 
Jaylee said:
Hi,
Welcome!
In short. Don't rely on a D nurse to push anything through other than your blood sample to the lab...
Click to expand...

unfortunately she is the only person seeing me main diabetic woman keeps cancelling appts and nurse at GP didnt even no what insulin resistance was ;/
 
Alicekat said:
Hi , well thank you sounds like my type of place !! currently battling with severe anxiety and depression and newly diagnosed with epilepsy.
very good idea 1 kittens always cheer you up
Click to expand...

I know anxiety and depression well. We have a mental health forum here that I'm usually hanging around in if you ever want to chat.

Dont be a stranger now
 
Alicekat said:
unfortunately she is the only person seeing me main diabetic woman keeps cancelling appts and nurse at GP didnt even no what insulin resistance was ;/
Click to expand...

Right...! I'm not actually a pumper. I'll tag in @catapillar

She's great on this subject..! Your already in the company of @Snapsy . I'll leave you all to get a "girl thing" going...
 
If you aren't getting any progress in accessing a pump from your current clinic you can ask to transfer to a different clinic. You can contact input diabetes for some tips on local hospitals that are supportive of pumps.

You would need to see your GP to get referred to your preferred diabetes clinic.

It's not unusual to be told you have to complete a carb counting course before starting a pump. That's fairly standard. So have they arranged a carb counting course or is that what seeing the dietician is for? Carb counting is an essential part of pumping so they need to be confident that you have that sorted before putting you on a pump.

If you think you are having problems with insulin dispersal and you're having lumps after injecting has the DSN checked your injection sites for lipohypertrophy? Are you using a fresh needle ever time and rotating sites?
 
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