Hi everyone!
I was diagnosed with LADA in November in last year. I know a couple of T2 diabetics and a couple of T1 diabteics (including my dad) but I've never met or had the chance to talk to any fellow LADAs / 1.5s!
I guess I'm just interested to know what everyone's stories are, how and when they were diagnosed etc and what treatment they're on!
I'll start. I was originally misdiagnosed as T2 in April last year. One nurse I saw said I could be this inbetween type (LADA) but that I'd need a test for it and she'll refer me. The referral didn't get accepted and all the doctors kept saying I was T2 and I started on metformin. It was pretty frustrating, I just felt like no one was listening and I had to really fight to see a specialist. Anyway, eventually my sugars kept getting higher and it was obvious the metformin wasn't helping and so I got approved to get the antibodies test and was diagnosed with LADA in November last year. Since then I've been on insulin. I'm only on long acting, I take 12 units of Lantus in the morning. My hba1c was at 45 when I was last tested about a month ago which I'm quite happy with. I don't like injecting but sometimes I really wish I was on short acting too so I could eat without my sugars spiking!
Please share your experiences too!
Hi, I have enjoyed reading these experiences this morning - its nice knowing there are others with such similar experiences! I suffered a sudden and shocking bereavement 9 years ago and within a few months I was having weird experiences which I now know were exactly like hypos. At the same time I went to the doctors as I was dying of thirst and up and down all night drinking. I was told i was pre-diabetic and the hypo-like events were put down to hot flushes caused by the menopause as i was about 47yrs at the time. Eventually, after about another 6 years I was told I had type 2 diabetes. I decided to reverse it and did the 500cal for 8 weeks diet. My hb1ac came down from 51 to 40 and I was congratulated by my gp and signed off! Within a few months and despite sticking to a low carb diet my thirst was getting worse etc. I went back and insisted on a blood test and was officially type 2 again! At this point the gp commented that I did not present as a typical type 2 diabetic! So I started on Metformin - did nothing, dose doubled....did nothing on to the glicizide......nothing. Finally did the antibody blood test at the end of feb 2020. I got called in the week lockdown began and given two forms of insulin and a crash course in injecting! The insulin seems to have made me gain weight. It has stabilised after putting on 7kg in around 2 months but that was scary! I hate injecting so try to stick to a low carb diet and only do it once a day! The injection seems to sting immediately after it quite often. I was told I still have some of my own insulin but don't know how they know this. The test that is meant to be less than 5 was more than 3000? I try hard to ignore the diabetes as much as possible and get feel very awkward when I have a hypo in front of others! This has happened a few times as even walking seems to trigger big drops in my sugar. I would love a pump but there is no way I can afford one! Does anyone else think a traumatic event possibly triggered their diabetes?I was diagnosed LADA late February this year. I was misdiagnosed t2 in 2013, which came as a shock as I have no family history of diabetes t1 or t2 whatsoever. I wasn't overly overweight, a size 12. At that time my hb1ac was 78. I was put on metformin, and my hb1ac came down a bit to around 55. Over the years I just plodded along, my hb1ac went up and down the 50s, then it started to creep up and up. I was prescribed Dapagliflozin, and was on that along with metformin for another couple of years. Then last year my hb1ac went to 95. I was losing lots of weight, without trying. I often felt ill, nauseous, lethargic and really depressed. For a couple of years I had been asking my gp surgery if I could be type 1 but they kept saying no you're definitely type 2. I was eventually referred to a specialist diabetes clinic where the doctor said that I was LADA. It made me angry with my gp surgery that they didn't listen to me. Anyway I was put on Tresiba for the first week, started off at 8 units, then every couple of days it was increased. A week later I was put on Fiasp. I am now on 24 units of Tresiba and 1 unit per 10g. I also am now on the Freestyle Libre Sensor, which has greatly improved my control. I feel so much better, although since being on insulin my appetite has been enormous! I have put on 3 stone since lockdown!
Thats amazing! Well doneVery proud of myself today. Diagnosed in September with a HbA1C of 129. Results back today are an HbA1C of 49!
My heart really went out to you @Diabetic Vegan as I am very frustrated with the lack of competent medical care in my area. I was referred to a specialist and they were 400 miles away. I live on "The Lost Coast" area of California and we are truly at a loss up here, for a lot of things, especially medical and dental.Hi everyone!
I was diagnosed with LADA in November in last year. I know a couple of T2 diabetics and a couple of T1 diabteics (including my dad) but I've never met or had the chance to talk to any fellow LADAs / 1.5s!
I guess I'm just interested to know what everyone's stories are, how and when they were diagnosed etc and what treatment they're on!
I'll start. I was originally misdiagnosed as T2 in April last year. One nurse I saw said I could be this inbetween type (LADA) but that I'd need a test for it and she'll refer me. The referral didn't get accepted and all the doctors kept saying I was T2 and I started on metformin. It was pretty frustrating, I just felt like no one was listening and I had to really fight to see a specialist. Anyway, eventually my sugars kept getting higher and it was obvious the metformin wasn't helping and so I got approved to get the antibodies test and was diagnosed with LADA in November last year. Since then I've been on insulin. I'm only on long acting, I take 12 units of Lantus in the morning. My hba1c was at 45 when I was last tested about a month ago which I'm quite happy with. I don't like injecting but sometimes I really wish I was on short acting too so I could eat without my sugars spiking!
Please share your experiences too!
Anyway, I had a friend on my fitness site where I keep a diary of what I eat etc., and she mentioned that she didn't see me as a typical Type 2 so she wondered if I might have been wrongly diagnosed
I think so @KK123 , let me look at the post and I'll clip it for you:Hi G0ldengirl, did your friend say why? x
I think so @KK123 , let me look at the post and I'll clip it for you: View attachment 47524
I agree 100% @KK123 about the appearance and generalising. My grandmother for sure had diabetes but all I ever heard was "sugar diabetes" and I never knew her to test herself, or definitely not injections. She was careful and I remember back then, she had saccharin. I believe mine may have started some time ago, maybe years, but right now, I'm responding well to the dietary changes. I am now trying Extended Release Metformin and seem to feel almost normal this a.m. More will be revealed heyThanks so much for replying. The Professionals do tend to diagnose by appearance and this so called 'lifestyle' concept, but anyone (fat or thin, an exercise freak or a couch potato) could still be just about any type of course. They do like to generalise. Your friend is right in that many people DO get misdiagnosed so although it can be hard persuading GPs for the tests, it is definitely worth thinking about. x
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