Hello,
I also had a total Thyroidectomy many years ago (and have not been the same since...major weight gain as well), and then ended up getting Type 2 Diabetes. I don't know the answer as to whether the first caused the second, but I would also like to know, and to hear from others who suffer with both. I feel like we are living a never-ending balancing act! It's a "new normal" for us.
I came down with Hepatitis A several years ago from bad shellfish. That attacked my liver and threw me into liver failure! But that's not really my point....My point is that those things caused my blood sugar to go over 600 and my thyroid hormones to go off the charts!!! In other words, a completely separate illness that should have been manageable, almost killed me because of the other conditions (diabetes and lack of thyroid)!!
I am constantly checking my blood sugar and having my A1C checked. And for the most part, I have felt somewhat ill, in pain (neuropathy, fibro which developed after thyroidectomy, frequent brain fog, weakness and often somewhat lousy infor a decade now). On good days, I'm a 6 or 7 out of 10. This combo of no thyroid and diabetes has also affected my mental health.
How I manage, and have improved the quality of my life is that I went on an antidepressant (depression is a known side effect of both conditions). I also research and take various supplements which have helped strengthen my immune system, heart, digestion, and mental clarity. I try to maintain a lower carb diet. No added salt on anything. No fried foods, no bread, and limited sweets. Cutting down on artificial sweeteners helps me to feel better too. I get more sleep, like 9 or 10 hours per night, and nap when I feel the need. Try to avoid stress and things that I know will trigger me (like certain people, topics or activities I'm not fond of). I just have to be more careful with "me". I look out for my needs more than ever before. My husband and daughter are great at helping me with that and being supportive. Having family or friends who love, try to understand and accept you unconditionally is very beneficial. If someone doesnt have that, there are support groups for both conditions as well as mental health support groups. Some kind of support is vital.
I'd like to hear from others who are living their lives with diabetes and a total Thyroidectomy.
I had a half my thyroid removed about a year and a half ago. It was because of a benign tumour so my half thyroid which is left seems to coping. However I have just been diagnosed with pre- diabetes, although my last fasting test was up to 7. 2 which is a bit depressing. I've started the low GI diet and I'll let you know how I get on. Nobody seems interested in testing my thyroid function so I just have to assume everything is OK.
Hi,
Yes I've been on Armor Thryoid for about 8 years and have had my T2 and TSH and other levels tested regularly and they are in the normal range. I was on Synthroid for 10 years prior to that, and felt much worse. Are you taking Synthroid? If so, maybe your doc will let you try Armor. Don't listen to anyone who says that thyroid replacement hormones work just like a thyroid! That's a lie! The thyroid gland affects everything, which is why I have never been the same since the thyroidectomy.
I'm sorry you're struggling and that it's hard to get the right kind of care for your thyroid there. I'm in the US, but even here I had to go to 5 different Endo's before finding one who would really listen about my 'lack of thyroid' issues, and not just look at my numbers. Keep shopping for the right Endo (if you can). They are out there, but they are few and far between! Blessings to you.
I had a total thyroidectomy operation several years ago and never felt well after the surgery. I started to feel totally exhausted and although I was not overweight at the time of the surgery, I started to put weight on around my middle. My GP told me that my weight gain was 'middle-aged spread' and kept testing my thyroid hormone levels to explain my weight gain and tiredness. I was taking on replacement thyroid hormone tablets and this went on for at least 4 years until I became so ill that I could not function at work and was sleeping for hours during the evening and at weekends, and had a terrible thirst. I lost my job as I fell asleep at work. Finally at the routine blood test at the surgery, I asked the phlebotomist to tick the box for blood sugar on the form and I was called into the surgery two days later as my blood sugar was over 30 and I was told that I had Type 2 diabetes. Does anyone know if Thyroid problems/removal predisposes a person to diabetes?
After a total thyroidectomy, you have no thyroid left to respond to the TSH hormone, so measuring TSH is no longer very useful.
After a total thyroidectomy, you have no thyroid left to respond to the TSH hormone, so measuring TSH is no longer very useful.
Measuring TSH has only limited value for any patient, in that measures how much stimulant is created, not whether the thyroid reacts to it. It's a bit like saying if you press the starter button on your car and the engine turns over it runs fine. That there may be no spark, never mind combustion is just white noise to many medcis.
Yet another condition where the patient really must self-educate, then share those learnings with their HCPs.
Maybe look into a low carb diet?I had a half my thyroid removed about a year and a half ago. It was because of a benign tumour so my half thyroid which is left seems to coping. However I have just been diagnosed with pre- diabetes, although my last fasting test was up to 7. 2 which is a bit depressing. I've started the low GI diet and I'll let you know how I get on. Nobody seems interested in testing my thyroid function so I just have to assume everything is OK.
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