is it just me???

hi there, you are not alone! it is a struggle and can be **** hard work at times! I am type 1 and a mother (daughter isn't diabetic though) so I can relate to everything you have said, but in reverse (if that makes sense!) Lots of Mum's on here with type 1 children so no doubt they will be along in a minute to offer advice you don't mention your sons insulin/dosage? does he carb count? does he inject himself/test himself etc yet? Bottom line, it is a lot of work to keep blood at an 'acceptable' level but it is possible I'm not sure what affect being Coeliac will have on his BG (my daughter has a friend who is Coeliac so I know a bit about it) but I'm sure your DN will be able to help??

well done to your son for injecting on his own! that is quite an achievement at this age I wonder if it's not the insulin but the wrong dosage? the carb counting course will change your life, I am sure of it, I actually don't know how I managed until I did mine?! Try and get on the course as soon as you can, your son will reap the benefits as he will be able to be more flexible with his food choices (unless he's a fussy eater like my daughter!) and at the same time, he will be able to keep his BG levels under control as he will be adjusting dosage for every meal time, rather than sticking to 7,5 and 5. How long ago was his diagnosis?

heavens, can't believe the hospital sent him home like that! poor chap can only imagine what that must have been like for him and you.....it is a lot for him to deal with so kudos to him for being able to inject by himself, I'm sure he'll realise that by doing it himself it will hurt less too! He must rotate sites though, very important as I'm sure you know...

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Hi, my daughter is 8 and she was diagnosed at 4. We also tried different insulins as control was tricky to start with. We're on Levemir and Novorapid now and that is working quite well for us, although we do still have days where we seem to lose steady control and have a wobble. But mostly we seem to be doing okay.

If you don't carbohydrate count then getting accurate dosage according to what is eaten must be very difficult. Have you tried doing a few fasting tests at various times of the day and night to make sure that his Levemir is correct? If his Levemir is incorrect it can affect his control and make things difficult for you. When Levemir (of basal) dose is correct then working out the bolus (Novorapid) is much easier and you'll get more consistent readings. If you haven't already read this book (Type 1 Diabetes in Children, Adolescents and Young Adults: How to Become an Expert on Your Own Diabetes) then I recommend you get a copy and read through it. It was a very useful tool in getting my daughter's readings under control.

Before going onto the Levemir/Novorapid regime we used Novomix 30 and also tried the Mixtards - our HbA1C's were mixed, ranging from between 7s to 8s but with lots of hypos. Since changing to Levemir and Novorapid and counting carbohydrates we've had one HbA1c with a result of 7.7 but during this time Jess has swine flu, our next one is due in April and we're hoping or expecting a better result.

Well done to your son for learning to do his own injection. My daughter only recently started doing her own injections so I know what a big achievement that is.

hi again, 8 units of Novorapid is a large correction dose, if he is still going high then you should probably be looking at his Levemir, have you tried splitting the dosage? Read the books people have already suggested and call your DN for advise on correcting the high if it keeps going up. Check again in an hour or so, Novorapid should be peaking by then so BG should be dropping......he might need a snack too!!

phew! I've over corrected myself before so it makes me nervous :lol: sounds like you need to get yourself a Ketone meter (ask your DN) so you can keep an eye on those 'HI' levels. 27 is majorly high (as I'm sure you know) so if your son is producing Ketones too that can be dangerous. Water is good, but correction doses are also needed. Good news about the Levemir, hope the change helps

Hi, No it's not just you! Looking after a diabetic child can be a challenge at times, but as so many of the other posts have mentioned, by learning to carb count it does make the management easier and will hoepfully give you less volatile readings.

I have 3 children, 2 of which have type 1. I have to keep a food diary for both of them and this enables me to work out insulin doses. Carb counting is not an exact science and I often get readings that are unexplainable, but by knowing what insulin to give depending on what consumed is a big advantage in managing this condition and will give you better control which in turn will mean you won't be worring so much about his readings.

Soon after my kids were diagnosed I was getting fed up of people not really understanding their condition and it would upset me when people asked me lots of questions (even though they meant well). In the end I drafted a document which basically outlines their condition, treatment and info about hypo's. Now i simply hand this out to any parent who is interested and to those who are having my kids to play.

I think it's great that your son is doing his own injections. It always amazes me what our kids can do and it just goes to prove what little STARS they really are. Good luck

you mentioned that your son complained of feeling un well and you checked his BG and he was high - the school need to know that highs are not good, just like lows! Education is key, can you talk to someone there one to one? the books already recommended are all excellent 'tools' (I personally have 'think like a pancreas' and it's a enlightening read, not just a load of data which weighs you down!)

anyway, good luck with it all, keep at it and insist on that carb counting course!!

No, it isn't just you! I have just caught Khaleb's Cold so we are both a bit worse for wear at the moment.

We go through stages where all is well and then struggle at other times. Overall the levels are under control and hba1c in range but it isn't easy. I've never been on a carb counting course (not something offered here) but I do count them myself (but not exactly). Khaleb gets about 1 unit insulin/kilo body weight. Keeping meals small and spaced out through the day keeps levels a lot more even. Khaleb really has 6 meals a day (3 large and 3 small).

Anyway, it's hard to find that middle ground to have a normal childhood and good control. Sometimes the balance is a little off.