Lada type 1

Welcome to the half way house :lol: You'll find a few of us LADA or slow onset T1s about here.

I'm a recently diagnosed one.

How frustrating it must have been for you to go through all that you must have been pretty ill too.

LADA/Slow onset T1 is tricky because you produce some of your own insulin intially. I'm on very small amounts of insulin and I ended up being switched to a child half unit insulin pen because I was going into low glucose levels within 2-3 hours of eating.

Your Diabetes team will encourage you to test yourself and perhaps keep a daily diary. I'm 6 weeks in and although it's a pain having to remember to note everything down it's certainly helping me and my Diabetes team to assess and change my dosages quickly.

So, you're amongst friends here - ask any questions you wish, we all do and although we can't give medical diagnosis sometimes it's just nice to know you're not going through it alone.

Hello Christine,
Your story is almost identical to mine. I too sat on a wrong diagnosis for some years and it was only on my insistence on seeing a diabetes specialist that I got my LADA diagnosis and now I am treated as Type 1 too.I think the problem comes when docs. make assumptions about 'Type' due to age particularly. I was in my mid forties when first diagnosed as diabetic and it was the kind folks on here who told me about such things as GAD tests etc. which sent me off to ask for referral, well-informed. My subsequent GAD test did indeed come back as positive, which is when I got a correct 'Type' diagnosis.
It's not so much the 'Type' label that is so important but getting the correct treatment and I hope you are now getting all the help you need from your medical team.
Kind regards,
Chocoholic

Hey Christinelh!

Just wanted to say welcome! I too am LADA and was also originally misdiagnosed as Type 2. I've been on insulin for more than a year now and feel much better. I have times when I've no idea what my pancreas is doing and it can make insulin doses a bit interesting to say the least! I got used to it pretty quickly though. Stick around the forum and ask anything you need - everyone's really helpful and you can learn a lot which makes managing the condition much easier.

Good luck with the insulin

Smidge

i was diagnosed with LADA when i was 21. having been told i was type 2 an put on a diet only plan. i was so ill, that was in may, but aug 09 i couldn't function properly. thank god i went to my check up when i did as he put me on insulin straight away. Told me it was latent autoimmune diabetes in adult. but thats all i know, found out bits on the internet, my diabetes nurse doesn't even now. at 1st i was doing really well. taking my insulin on time.... all the time. but by november i just gave up. i now struggle, my diabetes is well out of hand an i don't know who to talk to about it. i snap, i'm always tired and have no will power whatsoever. how can anyone help me if i can't help myself??

:thumbdown:

We really are similar Christine. I already had alopecia areata (an auto-immune thing) prior to diabetes diagnosis and now think WHY did doc. not pick up on the two things possibly being linked, as your doc. should have. My own research had me find out if you have one auto-immune thing, you are much more likely to get another and Type 1 being an auto-immune disease, should have been an obvious consideration for our doctors.Makes you mad, doesn't it?
Still, onwards and upwards 'eh? One thing I will say to you,Christine, is if you have any questions, the folks on this particular forum are enormously helpful and knowledgeable. I don't get on here much now but something told me yesterday to log on, which is when I spotted your post.If ever you get stuck with a diabetic problem, it's always worth trying the folks on here for advice but hopefully your diabetes specialist will also be onto things more helpfully now too.