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LADA

K

Karolina16222

Newbie
Hello
I was diagnosed with LADA type 1.5 in August 2017 aged 46 and have been in the honeymoon phase since. I follow a strict low carb / medium protein/ healthy fat diet. If anyone has questions please feel free to ask or anything they'd like to share about their journey then please do. Have a great day!
 
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Hi,
I was diagnosed a few months before you, but I’m 62 . Eat mostly LCHF, though occasionally fall off the wagon when stressed at work. Not on insulin yet and hope to stay that way for a long time.
The most interesting thing I’ve read lately is about people getting their antibodies to back off using a combination of DHA, baby aspirin, and Vit D. Articles following

https://asweetlife.org/can-anti-inflammatories-prevent-type-1-diabetes/

http://preventt1d.org/how-to-prevent-type-1-diabetes/

Will this work? I have no idea, but I figure a bunch of vitamins is a lot less expensive physically as well as financially than being on insulin. Giving it a try. Will probably recheck my antibody levels in 3-4 months. Currently only GAD+.
 
Fenn said:
Please excuse my ignorance, i thought LADA was late onset Type 1? How can you not have insulin?
Click to expand...

Late onset type 1 can progress slowly. For example I was diagnosed 2.5 years ago but prior to that I lived with constant low sugar symptoms (quite bad sweating and feeling weak) for up to 7 years, which indicates I already had type 1 triggered then but lived without insulin.
 

Actually funny. My diagnosis started as Reactive Hypoglycemia. My doctor then referred me to an Endocrinologist. Further testing turned my diagnosis to early 1.5/LADA. I now call my pancreas slow & stupid. Slow because slow increases in glucose, like proteins, receive a slow response. Stupid because any rapid rise, like carbs, receives a stupid Over shoot resulting in Hypoglycemia. I wonder how many people with Hypoglycemia, not on insulin, are actually early diabetics with wacky insulin responses?
 
Thank you for sharing! This is very interesting and I will definitely be looking into this. Let me know how your antibody levels go down the track.

I'm currently taking 2 units of Lantus at 8pm every night and no fast acting insulin with meals. Dr Troy Stapleton, radiologist in Queensland, Australia, was diagnosed at 41 with LADA and was in the honeymoon phase for 5 years during which his diet was low carb based on Dr Richard Bernstein. He has done some very simple and interesting You Tube presentations about his diagnosis and diet.

I've been eating a cucumber every day as I read that cucumber is found to contain a hormone needed by the beta cells present in the pancreas.

My diet is also gluten free after reading this:

"It’s possible a gluten-free diet could help extend the honeymoon phase. Researchers in Denmark conducted a case study of a child with type 1 diabetes who didn’t have celiac disease.

After five weeks of taking insulin and eating an unrestricted diet, the child entered a honeymoon phase and no longer required insulin. Three weeks later, he switched to a gluten-free diet.

The study ended 20 months after the child was diagnosed. At this time, he was still eating a gluten-free diet and still didn’t need daily insulin. The researchers suggested that the gluten-free diet, which they called “safe and without side effects,” helped prolong the honeymoon period.

Additional research supports the use of a gluten-free diet for autoimmune disorders like type 1 diabetes, so a long-term gluten-free diet may be beneficial even beyond the honeymoon period."

Anything is worth a try!
 

I was on high carb diet pre-diagnosis and the symptoms I had was just like reactive hypoglycaemia. It was bad to the extent I always made sure I carry sugary drink or snack. I mentioned to several different GPs but they weren't interested. I'm now on insulin and low carb diet, hypo is rarer than I was on high carb diet without insulin
 
Don66 said:
Any ideas where is best to look for low carb and high protein diet
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There’s a low carb diet forum right here. I have found Pinterest a good source. You can just search low carb and then whatever type of recipe you want to try.
 
So I'd recommend researching Metformin and perhaps berberine. And if you like what you find out (based on diabetics talking about it) then I'd nudge your Hospital support team and or GP....GP's in my experience know very little about the condition and what treatment is best. If your body is producing insulin, but you are not able to use it efficently, then I suspect Metformin/Berberine will help. It has for me in a short period of time and I'm already cutting quick acting insulin back. Hope that as I lose more weight and get a bit healthier I will be able to cut long acting also.....
 
I was diagnosed with LADA a while ago after being diagnosed previously with type 2 in March 2017. My blood sugars were always super erratic on metformin/very low carb diet with huge spikes and drops. My GP then put me on the lowest dose of gliclazide 40mg and sent me to see a consultant who did various blood tests and diagnosed with me with antibody positive LADA . As I was doing so well on the gliclazide I opted to stay on it rather than switch to insulin and now, roughly 9 months down the line not much has changed. My last hba1c was 42, I eat lowish carb but not keto, and I rarely spike any more. I know that At some point in the future I may have to use insulin but intend to carry on with the gliclazide until my pancreas gives up on me. My consultant is happy for me to do this although he wants me always to have 3 monthly hba1c to monitor any deterioration.
 
Also diagnosed Aug 2017 in my 40s. Spent 2 weeks on gliclazide with my BG just showing as 'hi' on the monitor while my GP surgery insisted I was type 2. Finally one of the GP's sent me to A&E because my ketones were so high. Hba1c was 147

Been on insulin ever since. Positive on 2 anti body tests but c-peptide shows I am producing some insulin.

I thought the plan these days was to put all type 1 - even slow onset - into insulin to protect the remaining beta cells
 

Sounds like my story, but my readings were not as high as yours. Pills never worked other than Metformin lost me 2 stone with no effort. BG still mid to high teens consistently and HbA1c in the high 70s. Got C-Pep test and diagnosed LADA some 4 years later.....found to be insulin resistent too....on 2:1 fast and double long acting...but recently been on DAFNE course and it was suggested to me that Metformin may help with the insulin resistence...so being impatient I tried to get Metformin before I even got the prescription, and found Beberine.....so been on 1 500mg pill of that with 1 500mg metformin 3 times a day with meals and in a week I've had to reduce my fast acting to zero...and work up last two mornings very low, so today reducing my background also. Far too early to draw any conclusions and I've a doctors appointment tomorrow, so will mention all this to him, but suspect will need a diabetic specialist doctor for advice on next steps.
 
Don66 said:
Any ideas where is best to look for low carb and high protein diet
Click to expand...
I only eat chicken and fish which are personal preferences. The majority of my diet is wild caught skin on salmon with lemon juice. I bake with almond meal and almond flour followed by coconut flour and use grass fed butter. These are the websites I have personally found inspirational for recipes and motivation in general:

1. You Tube Dr Richard Bernstein, a very inspirational 84 year old type 1 diabetic and still practicing Endocronologist in USA.

2. You Tube "My Healthy Type 1 Son" by Lisa Scherger. She shows what her son eats followed by very impressive blood sugar numbers.

3. Ditch the Carbs
Salmon patties
Chicken nuggets - I use chicken tenderloins and crumb using the ingredients they mention.
Garlic bread - yum!
3 Seed Bread

4. Diet Doctor

5. Elana's Pantry
Homemade tomato sauce (which is really a vegetarian pasta sauce). I use this with zoodles (zucchini noodles) which replace pasta.

6. Martina Slajerov
I have been going ketogenic but you don't have to to enjoy her recipes.

7. Angela Coleb's Divalicious Recipes

8. Almond flour biscuits at Wholesome Yum

I hope these help.
 
Thats very helpful thank u x
 
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