Low blood pressure etc

TopoGigi said:

My symptoms are very much like yours Adele99.
I also have microvascular disease which has affected many organs, eyes, kidneys, heart, etc; I was diagnosed with cardio vascular disease last year resulting in me having to have a Pacemaker and two stents hence my pursuing further investigations at the Automatic Unit at the National Hospital for Neurology and Neurosurgery.
I had badly controlled type 1 Diabetes for 21 years, then as I mentioned I had a Pancreas Transplant over 17 years ago with a normal HbA1c during this time and still have touch wood, so you would think things would get better wouldn't you. Unfortunately due to the earlier years high sugars damage had already been done unbeknown to me until the last 7 years or so when more things are coming to light.
Never say "it won't happen to me," because it might just come back to bite you one day. You might be feeling ok now, so look after yourselves.

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deb1976 said:

What is wrong with your eyes x

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Adele99 said:

Can only sympathise Debs, maybe you need to give the medication time to work and try out the other things suggested to see if it makes any difference overall. Your flickering eyesight could be due to any number of other things not related to Auto nerve damage. Really your GP and diabetic clinic professionals are the people to investigate things and rule out other possibilities.

Can say if you're mainly sitting around most of the day , then it could very well make this symptom considerably worse as your blood will be pooling in the legs. Can you try moving around a bit more ? Obviously safely.

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Adele99 said:

Well I'm up sorting a low blood sugar. Just dawned on me flickering vision is sometimes the only warning I get to check my blood levels, as it means they're low. But it doesn't happen at any other time, and I only notice the flickering if looking at a light or PC screen.

I know doctors sometimes diagnose things based on what seems the most likely cause. I'm assuming they've already checked your pressures for orthostatic hypotension? And have ruled out any other obvious reasons like inner ear problems ?

If things don't improve , ask for a 2nd opinion . It certainly could be diabetic auto nerve damage causing this, but they should rule out other causes just in case. My sister once said when she was young and went to the doctor with a problem, she was told it was caused by a virus, now she's older she says anything she sees the doctor about, she's told it's her age. Lol.

Try not to worry about the unknown as it doesn't help , stay focused on doing what you can to help yourself, and don't be fobbed off if you're not happy with how things are going.

Look after yourself. I'm back off to bed.

Night.

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Adele99 said:

Found a good article for you on Ortho Hyptension. There's a couple of tiny , easy to read tables embedded in it which you need to enlarge to be able to read , with things you can do to help the symptoms. Some of them have already been mentioned but you could maybe print out or save these tables as a reminder.

Using a tablet and haven't learned how to post links so if you google - '
Preventing and treating orthostatic hypotension : As easy as A,B,C

And follow the link to the website for nim.nih.gov , you should be able to find it.

I learned a couple of things from the article as well, so maybe worth a look to see if anything helps. x

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