Kylie_Baker
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Hi everyone,
I've just had my first followup with the consultant after being 'diagnosed' in November '11 as T1. My HbA1c came back at 6.1 It was 13 when I was diagnosed. I've now been discharged from the consultants care back to my GP (!?) armed with advice to raise my HbA1c to around 6.5 and to lower my Lantus to avoid morning hypos.
It was a good appointment as I felt I was armed with more knowledge about my condition. Though have come away feeling very disappointed as the consultant was not 100% that my diagnosis was correct. Rather that there was really no way for anyone to tell what type of diabetes I had and that as I was responding to insulin very well, that I would just need to keep going on this path.
So, a little history. I was 29 at the time and diagnosed with Gestational Diabeties in the 35th week of pregnancy November '10. Big baby came along and everything returned to normal. I then had a miscarriage in June '11 that led to me being severely anaemic and being offered a blood transfusion. 2011 was a very stressful year. August '11 saw the classic signs of diabetes thirst/massive weight loss etc. My GP initially treated me for T2, Metformin then Gliclazide, then after some persuasion I was sent to the DSN who diagnosed me as T1 and to start insulin right away. I asked at this time for further testing but was told that we should look at this once I had stabilised (now I know that was NOT a good idea!).
Today, the consultant has told me that it is too late for a GAD test, and that in my case there is a likely link between the Gestational and T1. He can't be sure if I am T1, but is happy enough for me to carry on under this banner as long as my results stay stable. That's all good and well, but given the risk of long/short term complications etc, I really want to know exactly what I am dealing with here. I was told that misdiagnosis was common and made in about 30% of all diabetic cases. I was also told that I would most certainly need to go onto tablets (statins) in about 10 years. But that FOR NOW everything was fine and that was the main thing.
So my question really is where to do I go from here? Do I just take this as gospel and continue along this path, waiting for the next hiccup? Should I be satisfied with this? Have I missed anything?
Hopefully someone can help me.
Thank you for listening and any help.
Kylie
I've just had my first followup with the consultant after being 'diagnosed' in November '11 as T1. My HbA1c came back at 6.1 It was 13 when I was diagnosed. I've now been discharged from the consultants care back to my GP (!?) armed with advice to raise my HbA1c to around 6.5 and to lower my Lantus to avoid morning hypos.
It was a good appointment as I felt I was armed with more knowledge about my condition. Though have come away feeling very disappointed as the consultant was not 100% that my diagnosis was correct. Rather that there was really no way for anyone to tell what type of diabetes I had and that as I was responding to insulin very well, that I would just need to keep going on this path.
So, a little history. I was 29 at the time and diagnosed with Gestational Diabeties in the 35th week of pregnancy November '10. Big baby came along and everything returned to normal. I then had a miscarriage in June '11 that led to me being severely anaemic and being offered a blood transfusion. 2011 was a very stressful year. August '11 saw the classic signs of diabetes thirst/massive weight loss etc. My GP initially treated me for T2, Metformin then Gliclazide, then after some persuasion I was sent to the DSN who diagnosed me as T1 and to start insulin right away. I asked at this time for further testing but was told that we should look at this once I had stabilised (now I know that was NOT a good idea!).
Today, the consultant has told me that it is too late for a GAD test, and that in my case there is a likely link between the Gestational and T1. He can't be sure if I am T1, but is happy enough for me to carry on under this banner as long as my results stay stable. That's all good and well, but given the risk of long/short term complications etc, I really want to know exactly what I am dealing with here. I was told that misdiagnosis was common and made in about 30% of all diabetic cases. I was also told that I would most certainly need to go onto tablets (statins) in about 10 years. But that FOR NOW everything was fine and that was the main thing.
So my question really is where to do I go from here? Do I just take this as gospel and continue along this path, waiting for the next hiccup? Should I be satisfied with this? Have I missed anything?
Hopefully someone can help me.
Thank you for listening and any help.
Kylie