Hi All,
My daughter Sarah was born on the 28/11/08 at 31 weeks gestation weighing a tiny 735 grams.
Upon birth she was hyperglycemic and was placed immediately on an Insulin infusion. her bowels where malrotated and she had surgery in the first week.
At 3 weeks of age still being Insulin dependent we met with her Drs to be told that she had an incredibly rare condition of "Pancreatic Agenesis", she had been born without her Pancreas, they told us that she would likely pass away within the next few weeks.
Well she showed them what she was made of and bet the odds, she spent 16 weeks in Intensive Care before we got to bring her home and today she is 6 months old!!!!
She was on an Insulin infusion for the first 9 weeks, then we trialled lantus before going onto a Insulin Pump at 11 weeks when she weighed 1800 grams, she is on a Animas pump and going as well as expected.
Just wondering if there is anyone here with experience with Neonatal Diabetes
Cheers
Karina