RuthW
Well-Known Member
Typically nerve damage is bilateral - it occurs on both sides simultaneously. And there shouldn't be any swelling. Swelling is more typical of a clot. I think you shouldn't wait. I think you should go to A&E.
This is one of the things I am confused about though. There was no nerve pain when I was diagnosed, as my hba1c has come down the sensations are getting worse and the area affected has increased in size around 8 times. It seems to be the opposite way round to what should be happening!
Typically nerve damage is bilateral - it occurs on both sides simultaneously. And there shouldn't be any swelling. Swelling is more typical of a clot. I think you shouldn't wait. I think you should go to A&E.
This is one of the things I am confused about though. There was no nerve pain when I was diagnosed, as my hba1c has come down the sensations are getting worse and the area affected has increased in size around 8 times. It seems to be the opposite way round to what should be happening!
Sounds like the same as mine.
Never like to hear of anyone in pain, but relieved to hear others have been through what I'm currently experiencing and have improved! I was getting scared this was my future. I was given Amitriptyline, but it didn't help and I'd terrible side effects, now been on Pregabalin for just a couple of days and have had a fairly decent nights sleep for the first time since all this nerve pain started, so feeling a bit more hopeful. Still don't really understand why this happens to some people and don't like to "just keep taking the tablets", so I understand how annoyed you must be Lunar. I'm lucky that all the medical folks I've been involved with have taken the time to explain (as best they could !)what's going on. As the others have said, push for a better explanation, and don't let them make you feel stupid! Hope things improve soon!My BG was >40 MMOL when I was diagnosed, and apparently had been high for a very long time, a couple of years. The explanation my consultant gave as I had no nerve pain prior to diagniosis, was that the pain was down to a massive adjustment in BG in bringing it into control, which affected my nerves. I found it hard to understand as I didn't have the nerve pain when I had diabetes and it was untreated and undiagnosed. The reality is that I had massive nerve pain when I was diagnosed, and made the transition to managing it with insulin.
2.3 years after being diagnosed I don't have any nerve pain. Hope you can get to a similar position.
Never like to hear of anyone in pain, but relieved to hear others have been through what I'm currently experiencing and have improved! I was getting scared this was my future. I was given Amitriptyline, but it didn't help and I'd terrible side effects, now been on Pregabalin for just a couple of days and have had a fairly decent nights sleep for the first time since all this nerve pain started, so feeling a bit more hopeful. Still don't really understand why this happens to some people and don't like to "just keep taking the tablets", so I understand how annoyed you must be Lunar. I'm lucky that all the medical folks I've been involved with have taken the time to explain (as best they could !)what's going on. As the others have said, push for a better explanation, and don't let them make you feel stupid! Hope things improve soon!
Hopefully you will see some good results from the pregabalin, it wasn't strong enough for me on it's own but I know others have been successful with it. Mine was pretty severe as my sugars had been high for 6 years. This meant the pain effected my entire body. I spent 12 months in the house in tears, we took multiple trips to a & e where I was sedated because honestly the pain was so bad I wanted to die! I could only leave the house in a wheelchair and even the bumps in that going over the pavement was too much to take. I would have 3-4 baths during the night to try and distract me, it was honestly the worse time of my life and I can look back now feeling so grateful that I got through it.
Pain is such a terrible thing to live with, I feel for anyone going through it.
Never like to hear of anyone in pain, but relieved to hear others have been through what I'm currently experiencing and have improved! I was getting scared this was my future. I was given Amitriptyline, but it didn't help and I'd terrible side effects, now been on Pregabalin for just a couple of days and have had a fairly decent nights sleep for the first time since all this nerve pain started, so feeling a bit more hopeful. Still don't really understand why this happens to some people and don't like to "just keep taking the tablets", so I understand how annoyed you must be Lunar. I'm lucky that all the medical folks I've been involved with have taken the time to explain (as best they could !)what's going on. As the others have said, push for a better explanation, and don't let them make you feel stupid! Hope things improve soon!
Thanks Gemma! It's early days for me. My pain is primarily in the lower half of my body and a bath is the only thing that makes it feel normal!
I agree with others that you do need further testing to exclude any thing else, but given the time of onset the other explanations are more likely - i do not know why you were not told, as i was, years ago, that the introduction of insulin causes all sorts of new problems which may take as long as you have had undiagnosed high blood glucoses to resolve - this can be years, and, for some things, it was for me. I had severely swollen and heavy legs, i could hardly lift them at all, after i was out of intensive care, and I could hardly see - fortunately these resolved over time, the leg swelling in about 3 months, - then, much later, only when the HbA1c had been normal for a while, severe pain kicked in, not all the time, but it was debilitating, and at the same time there were times of long term sharp pinpricks over the whole body, but worst legs and feet, also feelings as if water was trickling down my legs, all sorts of strange feelings,interspersed with numb areas, as this improved i started getting really sharp almost electric shock sensations in my legs, it could make me jump, - i did not know it at the time, but this is probably good, if you get this, do not panic, as it seemed to show that my nerves were sorting out. Much later, as the hand sensations had started later and lasted longer, i was referred for testing in a lab, but things, at least by that time, were ok. Many many years later i am fine - i hope yours sorts out also - good control, at least for me - was the clue to improvement. If you are not on the pump, get one if you can, i could not, at that time, and that made recovery all the more difficult. Best wishes, AnnThis is one of the things I am confused about though. There was no nerve pain when I was diagnosed, as my hba1c has come down the sensations are getting worse and the area affected has increased in size around 8 times. It seems to be the opposite way round to what should be happening!
I agree with others that you do need further testing to exclude any thing else, but given the time of onset the other explanations are more likely - i do not know why you were not told, as i was, years ago, that the introduction of insulin causes all sorts of new problems which may take as long as you have had undiagnosed high blood glucoses to resolve - this can be years, and, for some things, it was for me. I had severely swollen and heavy legs, i could hardly lift them at all, after i was out of intensive care, and I could hardly see - fortunately these resolved over time, the leg swelling in about 3 months, - then, much later, only when the HbA1c had been normal for a while, severe pain kicked in, not all the time, but it was debilitating, and at the same time there were times of long term sharp pinpricks over the whole body, but worst legs and feet, also feelings as if water was trickling down my legs, all sorts of strange feelings,interspersed with numb areas, as this improved i started getting really sharp almost electric shock sensations in my legs, it could make me jump, - i did not know it at the time, but this is probably good, if you get this, do not panic, as it seemed to show that my nerves were sorting out. Much later, as the hand sensations had started later and lasted longer, i was referred for testing in a lab, but things, at least by that time, were ok. Many many years later i am fine - i hope yours sorts out also - good control, at least for me - was the clue to improvement. If you are not on the pump, get one if you can, i could not, at that time, and that made recovery all the more difficult. Best wishes, Ann
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