New diagnosis/confused Mum!!

pearceam said:

No DKA as we saw the signs early enough to catch it before it got there thank goodness.

I think it's typical type 1 due to how quickly it all seem to appear but we'll find out soon enough. Just waiting for more tests (another 5 weeks to wait...!)

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5 weeks? Are they delivering the results by snail mail?

mist said:

5 weeks? Are they delivering the results by snail mail?

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That'll be the test to see if the antibodies are in the blood to show if the pancreas is working or not. Can take anything from 4 weeks to 8 weeks. :/

MrXile said:

That'll be the test to see if the antibodies are in the blood to show if the pancreas is working or not. Can take anything from 4 weeks to 8 weeks. :/

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Admin

Thanks for all your help and support - Amy's mum

Amazing :0) very helpful x

How does that work?

Can I join in? I have M&M's and am prepared to share

mist said:

Admin

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What's the admin tag for? Jeez.
Pathetic. I gave a reply to what I thought was a legitimate question.

Sorry for annoying your clear sense of snitching.

MrXile said:

What's the admin tag for? Jeez.
Pathetic. I gave a reply to what I thought was a legitimate question.

Sorry for annoying your clear sense of snitching.

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Umm, I don't think that was a tag. I read it as admin as in the admin involved in getting the blood test results back.

db89 said:

Umm, I don't think that was a tag. I read it as admin as in the admin involved in getting the blood test results back.

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I also read it this way. @mist please confirm and clarify your post.

I assumed wrongly perhaps. Maybe. It could have been mustered. The face plant just made me assume that it was a condescending emoticon post as if that blood test was common knowledge.

pearceam said:

Hello
Can we ask how your symptoms appeared? Was it a quick onset? Did you suffer with the insufferable thirst known to diabetes?
Thanks for helping x

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My diagnosis was almost identical. Quick onset, less than a week from NY day up to my admission to hospital on the 4th Jan this year.

In that week my eyes went blurry, I was visiting the toilet what seemed like every two minutes, I was gulping orange juice like there was no tomorrow as water tasted off, couldn't eat very well at all, lost all appetite, lost two stone in weight in 4 days and was very tired, oh and when I was standing I had incredible stomach ache which made me lie down.

I was rushed to hospital with 26 blood sugars and a DKA of 8 on admission.

My gad and c peptide tests came back last week, after being on insulin treatment as they assumed I was type 1. Turns out I'm type 2 and I'm currently being weened off of the insulin.

Specialist still can't tell me why my pancreas just stopped/took time out, but I'm just happy to not be insulin dependent.

I'm 42. Otherwise healthy.

PS. looks like I've repeated myself a little there too lol

MrXile said:

My gad and c peptide tests came back last week, after being on insulin treatment as they assumed I was type 1. Turns out I'm type 2 and I'm currently being weened off of the insulin.

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I would be dubious as to whether a negative gad test and a positive cpeptide test mean you are type 2.

A positive GAD test confirms type 1. But a negative GAD test doesn't confirm anything. About 25% of type 1 diabetics are GAD negative.

A recently diagnosed type 1 diabetic will be honeymooning and producing their own insulin. In a type 1 autoimmune attack on the insulin producing beta cells they don't all die off in one shot - it can take a while for the immune system to kill off all the beta cells. Especially with type 1 diabetics diagnosed later in life then the honeymoon period can be longer and can occasionally be strong enough to cease insulin for a short time.

Unless there's other clinical things going on it might be a little early to count on definitely not being insulin dependant.

@pearceam / @minx27 of course it's possible to be misdiagnosed type 1 when you are actually type 2. But there aren't any certain tests that can confirm one way or another. As above, a positive GAD test will confirm you are definitely type 1, but a negative GAD test doesn't meant you aren't type 1. If you clinical presentation on diagnosis was sudden onset, weight loss, blood sugar very high (30+) and ketones, that point to type 1. In addition, there is a genetic component to type 1, if you have daughter with type 1 that increases your risk of type 1. I know trial net will test anyone under 40 with first degree relatives with type 1 for the antibodies - so if a child is diagnosed they will test the siblings and the parents, like a strange looking backwards kind of testing. That's because we don't know what triggers the autoimmune disease to be active, but we do know the trigger can happen at any age.

So I guess if you end up with a negative GAD test you will, unfortunately, be left kind of uncertain to the diabetic type. But if you need insulin, you need insulin regardless of type so you would have to keep a close eye on blood sugar and keep in contact with your DSN and consultant to check your response to insulin and you insulin requirements seem to be as expected.

Awwww @minx27 and @pearceam - sending you each a hug. Keeping it in the family, eh?!

&

pearceam said:

Hello
Can we ask how your symptoms appeared? Was it a quick onset? Did you suffer with the insufferable thirst known to diabetes?
Thanks for helping x

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My first symptom was a sudden change in my eyesight.. I couldn't focus on distant objects. I was prescribed specs and found them great for 2 weeks then I couldn't wear them my sight had changed again. I went for another eyetest at a different optician who prescribed reading specs this time. The optician asked if I'd been drinking heavily which I had.. he suggested I see my G.P.
I had the insatiable thirst and a craving for milkshakes. I'd lost about 2 stone in weight over a 6 week period.
My G.P. told me that I was diabetic but could not confirm which type. 3 days later I met my Diabetic specialist nurse.. she was convinced that I would be late onset type 1 as I was not over weight.. only the Gad/C-peptide test results would confirm what type I am. The results took about 8 weeks to come back. during that time I was treated as type 1 due to the huge blood glucose levels. It turns out I am type 2. I do have Aunts and Uncles with type 2 also.
In addition.. my eyesight changed so much in those weeks.. but since treatment and better glucose levels my sight is more stable.. I still need readers whereas I didn't before but that could just be down to my age.