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Newbie and feeling a bit overwhelmed

Kazzabon

Well-Known Member
Messages
46
Hi

Been a type 1 for around 25 years and the first to admit I have 'cuffed it' for a lot of those years. My consultant has been trying to persuade me to try the pump for the past 2 years as my HBA 1 never dip below 9. After a couple of years of feeling knackered and dipping in and out of the 'blues' I thought it time I grew up.

I have just come out of my week in hospital and my introduction/attachement to the pump (Animas 2020). All went well in hospital, my basal rates were set, my bolus around the same as I was taking pre-pump and I found a comfy place to wear it - All in all, I was feeling pretty confident - then I came home................. Bloods doing all sorts, having to changed the kit at midnight due to unexplained high, fiddling with my basals - well you can imagine what I'm feeling, pump-wise

I live on my own, in the middle of the backend of nowhere in France and although I can follow a lot of instruction in French I am feeling a bit over whelmed. I'm not expecting a miracle and the aim is to improve my bloods over a period of time as I hypo at around 5mmol due to my body being used to living with a higher count - so I'm aiming for a broad spectrum of 6 - 9.

Sorry for the long post - but any encouragement will be gratefully read!!!
 
Hi Kazzabon and welcome to the forum There are lots of pumpers on this forum who will be along soon to share their experience with you and answer any questions you may have. In the meantime here is some basic information for you to read, written by the Forum Monitors, which you might find useful even though you have been diabetic for 25 years. You might find this information a bit different from what you have been told up to now - give it a try

 
Welcome from another habitant of la france profonde. I also have a pump and love being able to adjust my insulin according to what I'm doing.
The course I had in hospital wasn't brilliant, and it was for me difficult to understand everything that was said, though it has the advantage of starting in a 'safe' environment.
For me the best source of information was an American book: John Walsh Pumping Insulin which I bought online from the UK. My consultant will talk with me on the phone, but I hate trying to talk in French on the phone so I avoid that where possible (the nurse is also available but tha'ts even more difficult as she has a strong local accent and speaks very rapidly, I can manage, to understand her face to face now, but that's taken 6 years )

I think a lot of the problems I had at the start are due to lack of confidence. It used to take ages to fill a reservoir and put in a new set (the very first time , at the hospital, I was shaking like a leaf when I tried and not surprisingly it wasn't very succesful) but 3 years down the line it is routine and I very rarely get canula badly placed or bubbles in the reservoir.
It does get easier, though I'm still learning how to tweak things even better.
 
Thanks Guys - just being able to off-load is a great help. I ordered the Pumping Book last week before my hook up in hospital as every thing I've read about it is good.

I do usually try to watch my carb intake, especially for the evening meal, so when I am back on track and have stopped over thinking everything will return to that. I 'm going to try not to keep fiddling with my basals and give things a chance to settle down (including my head) although I will keep the reduction of 0.1 of the one from midday to 10pm as I am more active at home than in hospital, obviously.

Again, thanks.
 
hi

the pump is alot of work but honestly when u get it right its fantastic we wouldnt be without ours after a month and a half of being on it, we had some sleepless nights and alot of jiggling but have finally got some sort of normality and have everything crossed for our next hba1c being under 10 as we havent managed that before.

perserveer alter things one at a time and u will get there, dylan had some lows today because we havent quite figured out the playing football matches right but hes back where he should be a few hours later so worry over, he also had a treat yesterday of a caramel egg he was 6 before he ate it and an hour and a half later we tested 6 again fabulous

anna marie
 
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