Newly Diagnosed Type 1

SherwoodT1 · Oct 31, 2022

Hi all. I've lurked on this forum for a month or so, and thought it best to finally make an account and engage in the community directly! I think it'll help to talk to people experiencing the same things etc. In late June of this year, I was diagnosed with Type 1 diabetes and Coeliac disease after a bout of Covid. After an introduction to Type 1 through DKA, I'm feeling physically much better! So, hello from a newly diagnosed type 1, trying to get by each day as best as they can!

Antje77 · Oct 31, 2022

Hi @SherwoodT1 , welcome to the forum!

Niamh1 · Oct 31, 2022

Hi hope you are well. I got diabetes after covid if you need any help please ask

Sandra_Azucar · Oct 31, 2022

SherwoodT1 said:
Hi all. I've lurked on this forum for a month or so, and thought it best to finally make an account and engage in the community directly! I think it'll help to talk to people experiencing the same things etc. In late June of this year, I was diagnosed with Type 1 diabetes and Coeliac disease after a bout of Covid. After an introduction to Type 1 through DKA, I'm feeling physically much better! So, hello from a newly diagnosed type 1, trying to get by each day as best as they can!

Welcome! Have you noticed any difference in your blood sugars after eliminating wheat/grains due to Coeliac?

NewT1Kn · Nov 1, 2022

SherwoodT1 said:
Hi all. I've lurked on this forum for a month or so, and thought it best to finally make an account and engage in the community directly! I think it'll help to talk to people experiencing the same things etc. In late June of this year, I was diagnosed with Type 1 diabetes and Coeliac disease after a bout of Covid. After an introduction to Type 1 through DKA, I'm feeling physically much better! So, hello from a newly diagnosed type 1, trying to get by each day as best as they can!

Hi,
I was diagnosed last year in my 50’s. If you have a twitter account it’s worth having a look at #GBDoc I found them end of last year and peer support there is fab!

SherwoodT1 · Nov 1, 2022

Thank you all for the warm welcome!

Thank you for the kind offer, @Niamh1, it's comforting to hear some one has a similar experience with covid.

@Sandra_Azucar, honestly, it's hard to say right now. I've been switched to and from a Gluten free diet since my diagnosis. I can't say I have noticed anything directly changing when I've switched to being gluten free. But, I've also had a difficult time finding a correct carb: insulin ratio while in the honeymoon period. So that could very well be masking any changes. But I'm anticipating my bloods increasing in the near future as my gut recovers from damage caused by the coeliac disease and I get better absorption.

@NewT1Kn, I have stumbled upon #GBDoC. I have to say, the online community has really taken me aback.

Sandra_Azucar · Nov 1, 2022

SherwoodT1 said:
Thank you all for the warm welcome!

Thank you for the kind offer, @Niamh1, it's comforting to hear some one has a similar experience with covid.

@Sandra_Azucar, honestly, it's hard to say right now. I've been switched to and from a Gluten free diet since my diagnosis. I can't say I have noticed anything directly changing when I've switched to being gluten free. But, I've also had a difficult time finding a correct carb: insulin ratio while in the honeymoon period. So that could very well be masking any changes. But I'm anticipating my bloods increasing in the near future as my gut recovers from damage caused by the coeliac disease and I get better absorption.

@NewT1Kn, I have stumbled upon #GBDoC. I have to say, the online community has really taken me aback.

Best wishes @SherwoodT1! The coeliac may be a blessing in disguise. If you can stick to 100% avoidance (coeliac diet), sometimes the pancreatic function improves in a T1D. That's per others' experience. There is such a strong connection between the 2 disorders, that I personally eat a coeliac diet! I'm just a long-time (30+) year T1D who researches extensively on how to improve BGs or achieve full remission. Yes, I will never give up on that.

My stats: diagnosed T1D in high school with a BG of 500. No info on remission back then or on coeliac connection to T1D. Ate a so-called "healthy" diabetic diet and kept learning. BGs were on a rollercoaster for 9 years due to that diet and bad insulin options. Then went on a pump (miracle) for 20 years. BGs stabilized and went below the 7% A1C range. Began a low carb diet (coeliac - no grains at all) 5 years ago. This dropped my BGs into the low 6% range with much less effort on my part.

I'm considered in "partial remission" - which is weird because I am still on insulin - but it just means I'm on a low dose for my weight while maintaining a non-diabetic A1C. My blood sugars are stable and low as long as I continue on this coeliac style diet. Others like me choose a full carnivore diet and achieve the same or better!

RoughcutAU · Nov 2, 2022

Welcome to the gang! Diagnosed August last year …. Learnt so much from this forum. Agree the Honeymoon period can be both a blessing and a curse.

SherwoodT1 · Nov 2, 2022

@Sandra_Azucar, I've read similar, at least pertaining to prolonging the honeymoon period. I'm glad to hear the gluten free diet is working out for you. It's taking a bit of adjusting to get used to. Biggest hurdle honestly is while shopping - when it's not by choice, most shelves are just a reminder of the things I can't have any longer! But I'm sure I'll get used to it, and find alternatives which are just as good!

Thank you for the welcome @RoughcutAU. I have to say, the forum and online community as a whole has been a god send!

hboyt · Nov 2, 2022

Sandra_Azucar said:
Best wishes @SherwoodT1! The coeliac may be a blessing in disguise. If you can stick to 100% avoidance (coeliac diet), sometimes the pancreatic function improves in a T1D. That's per others' experience. There is such a strong connection between the 2 disorders, that I personally eat a coeliac diet! I'm just a long-time (30+) year T1D who researches extensively on how to improve BGs or achieve full remission. Yes, I will never give up on that.

My stats: diagnosed T1D in high school with a BG of 500. No info on remission back then or on coeliac connection to T1D. Ate a so-called "healthy" diabetic diet and kept learning. BGs were on a rollercoaster for 9 years due to that diet and bad insulin options. Then went on a pump (miracle) for 20 years. BGs stabilized and went below the 7% A1C range. Began a low carb diet (coeliac - no grains at all) 5 years ago. This dropped my BGs into the low 6% range with much less effort on my part.

I'm considered in "partial remission" - which is weird because I am still on insulin - but it just means I'm on a low dose for my weight while maintaining a non-diabetic A1C. My blood sugars are stable and low as long as I continue on this coeliac style diet. Others like me choose a full carnivore diet and achieve the same or better!

That is interesting @Sandra_Azucar I've had type 1 for over 25 years and the pump now 6 years and even tho the pump and CGM were miracles for me too I still feel there is room for improvement! I'll have to look into the coeliac diet. Is there good websites to refer to?

SherwoodT1 · Nov 2, 2022

hboyt said:
That is interesting @Sandra_Azucar I've had type 1 for over 25 years and the pump now 6 years and even tho the pump and CGM were miracles for me too I still feel there is room for improvement! I'll have to look into the coeliac diet. Is there good websites to refer to?

A good start would be Coeliac UK - I'd post the link but I think the age of my forum account may just throw a spanner in the works!

Sandra_Azucar · Nov 2, 2022

hboyt said:
That is interesting @Sandra_Azucar I've had type 1 for over 25 years and the pump now 6 years and even tho the pump and CGM were miracles for me too I still feel there is room for improvement! I'll have to look into the coeliac diet. Is there good websites to refer to?

Hi Hboyt! I found some helpful resources under these low carb websites, which are fully coeliac-friendly (zero grains) and also T1D-friendly since both aspects are important:

1) Dr. Berg: https://www.drberg.com/the-healthy-keto-diet-for-beginners, and
2) Low Carb Down Under: https://lowcarbdownunder.com.au/directory/lchf-and-diabetes/. There are also some recipes.

Both of these organizations have great Youtube channels with supportive videos, in addition to the info on their websites. This is how I found education/fellow low-carbers in my journey. Just search on YouTube to find their videos.

Highly recommend both! I hope you find an extra amount of success!

hboyt · Nov 3, 2022

SherwoodT1 said:
A good start would be Coeliac UK - I'd post the link but I think the age of my forum account may just throw a spanner in the works!

Ok thanks for that. I'll check it out

hboyt · Nov 3, 2022

Sandra_Azucar said:
Hi Hboyt! I found some helpful resources under these low carb websites, which are fully coeliac-friendly (zero grains) and also T1D-friendly since both aspects are important:

1) Dr. Berg: https://www.drberg.com/the-healthy-keto-diet-for-beginners, and
2) Low Carb Down Under: https://lowcarbdownunder.com.au/directory/lchf-and-diabetes/. There are also some recipes.

Both of these organizations have great Youtube channels with supportive videos, in addition to the info on their websites. This is how I found education/fellow low-carbers in my journey. Just search on YouTube to find their videos.

Highly recommend both! I hope you find an extra amount of success!

And wow these too!....will be very helpful. Thanks so much!!

Newly Diagnosed Type 1

SherwoodT1

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