Jasmin2000
Well-Known Member
- Messages
- 184
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Good points @Hopeful34 - my GP said, "it's a pity we can't monitor your cortisol" and my endo didn't suggest it either - not sure why but maybe they assume cortisol is high and there's nothing you can do about it - is there? Not seen any meds, only whale music and early to bed.Sounds like you need to see an endocrinologist to get tests done that only they can order, and advise you on the results. Have you had your cortisol checked at all?
Also, how about asking for a pump?
If it's too high cortisol (I'm not a Dr and am not saying it is too high) it depends on why it's too high as to the treatment given. Sometimes medication can be used, so you really need the specialist tests.Good points @Hopeful34 - my GP said, "it's a pity we can't monitor your cortisol" and my endo didn't suggest it either - not sure why but maybe they assume cortisol is high and there's nothing you can do about it - is there? Not seen any meds, only whale music and early to bed.
I thought about a pump too, as I'm more or less pumping manually at the moment, but the need is not regular so I'd end up topping up on fast-acting or going hypo. A closed loop system would be better but I don't qualify (yet!).
Yes, those are good suggestions, thanks - especially the mental health and sleep issues. Need to read up on HCL systems to see what to be wary of - I'm sure it's not just plug and play.If it's too high cortisol (I'm not a Dr and am not saying it is too high) it depends on why it's too high as to the treatment given. Sometimes medication can be used, so you really need the specialist tests.
I'd say what you're having to do, would give you a good reason to push for a hcl pump. Things you could write in a letter to your endo if you want to could include - Despite doing absolutely everything you can, it's impossible to control your diabetes on injections. If it's affecting your mental health, constantly having to give extra injections, increased risk of very low hypo's etc include this. Inability to get a good night's sleep etc etc.
Whilst it is tricky to control cortisol, it is possible to understand your position a bit better.Good points @Hopeful34 - my GP said, "it's a pity we can't monitor your cortisol" and my endo didn't suggest it either - not sure why but maybe they assume cortisol is high and there's nothing you can do about it - is there? Not seen any meds, only whale music and early to bed.
I thought about a pump too, as I'm more or less pumping manually at the moment, but the need is not regular so I'd end up topping up on fast-acting or going hypo. A closed loop system would be better but I don't qualify (yet!).
Even the cheapo tests from Amazon are £60-80 for a single test so there's no way I can afford to do this for tracking - I need to know if there's variation throughout the day that corresponds to the BG mountains.Whilst it is tricky to control cortisol, it is possible to understand your position a bit better.
The cheapo, preferred test used is a 24 hr urine collection, whereas a saliva test, collected at specific times over a 24 hour period can be helpful. It is sometimes used for those with thyroid issues, impacting other hormones. You might have to press for it.
Cortisol is a circadian hormone, so varies during the 24 hour cycle. The urine collection test gives an average, in a similar way to the A1c does for blood sugar. Pretty useless really.
This sounds like a good plan - every hour for 8 hours would be perfect, but I don't have a medical need like Addison's, Cushing's syndrome, so I'm not sure the NHS will shell out. Usually they won't bother if there's no standard therapy to meet the testing at the end.My cortisol level is tested as a day curve. I go in to the day unit and have bloods taken ever hour for 8 hours. I have Addisons Disease so do not produce cortisol. My brother's was done as spit tests. Seems a sensible thing to get checked.
Have you had things like Addison's and Cushings ruled out then? If not, push for any tests that could help you get a reason for your symptoms/or rule out causes. No point in getting a pump to help regulate blood sugar, if there's something else going on.This sounds like a good plan - every hour for 8 hours would be perfect, but I don't have a medical need like Addison's, Cushing's syndrome, so I'm not sure the NHS will shell out. Usually they won't bother if there's no standard therapy to meet the testing at the end.
A salivary test should really be run by an Endo as, in my personal experience, GPs have, at best, a limited understanding of individual hormones.Even the cheapo tests from Amazon are £60-80 for a single test so there's no way I can afford to do this for tracking - I need to know if there's variation throughout the day that corresponds to the BG mountains.
This sounds like a good plan - every hour for 8 hours would be perfect, but I don't have a medical need like Addison's, Cushing's syndrome, so I'm not sure the NHS will shell out. Usually they won't bother if there's no standard therapy to meet the testing at the end.
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