Sorry this reply is so late. I have previously posted elsewhere about my experience with statins so apologies if you have already read this, I took simvastatin for several years despite having good cholesterol levels even before going on them. Everything was fine except for some pain in my fingers and hips which I didn`t associate with statins, what became the deal breaker for me was that I started to get arrhythmia EVERY evening! this quite frankly frightened me and, as simvastatin was the only vaguely heart related med I was taking, I got suspicious. I decide on a trial separation for me and simvastatin and within 3 days the arrhythmia had gone, within a month the other pains had also gone.....coincidence? Needless to say our trial separation has now become a divorce and, as you say , how many other poor sods are having their lives ruined and don`t know why?The thing that bothers me most about statin side effects is that they are often delayed onset. Months after starting the tablets, apparently odd and random symptoms start.
How on earth is the average person going to connect their pain with the innocuous little tablet they have been taking for months? In addition, most statin users are older - prime candidates for odd, random aches and pains. Both they and their doc are HIGHLY unlikely to make the connection.
How many poor sods are there out there whose quality of life is being severely affected, and they haven't a clue that it is the statins causing the problem?
Change my lifestyle in what way do you mean, I'd be interested to hear...? I follow Lowish Carb Highish Fat , since I discovered this forum a couple of years ago. I don't do an awful lot of exercise apart from walking, which I love. Have been diabetic for 16 years, Type 2, but of course, at the time of diagnosis, none of us were as knowledgeable about carbs as we now are. Still only on Metformin though, as I do think I've been careful and I'm not a huge eater.
They say diabetes is a progressive disease and yes it is if you follow what the NHS recommend diet wise and I'm only sorry I didn't become diabetic later than I did and knew then what I know now
Cholesterol was 6.9 before taking Atvorstatin, then 4.1 after a couple of weeks, obviously a quick worker ! I've started taking Benecol again, as I used to think it was just an advertising con but have heard good reports. We shall see !
Interesting, just one small point, the manufacturers have known why statins cause muscle pain since 1990.Recent article on the mechanism of statins causing muscle damage:
http://www.medicalnewstoday.com/articles/298911.php
I sometimes wonder just how many times something is discovered, buried, then rediscovered before it becomes accepted in the mainstream? Side effects of statins being a major case in point.Interesting, just one small point, the manufacturers have known why statins cause muscle pain since 1990.
See Merck Pharmaceutical's patent application http://www.functionalmedicineuniversity.com/statin-CoQ10.pdf
I don't suppose anybody knows of any information on how to reverse the possible permanent damage done by this drug?
I also was pushed onto statins "as they reduce risk of heart attack" in fact after three days I had such severe muscle pains my wife thought I was having a heart attack, four years later and without statins my level last tested recently is 4.6If you have used multiple statins, answer Yes if any of the statins gave you side effects. Sorry I should have added that as another choice.
Then I developed polymyalgia rheumatica (PMR). This is a severe muscle complaint; I could hardly move to get out of bed! I stopped taking the statin and it took 18 months of steroids (and bone protection pills) to get me better.
The doctor then put me on 20mg of rosuvastatin. The muscle pains returned after a few weeks so I stopped taking them.
Later another doctor tried for 30 mins to persuade me to take statins again and when I absolutely refused put me an alternative. Forget the name (it was fibro something). I only got to pill number 4 before abandoning that too as the muscle pain was unbearable and getting worse with each dose.
I sometimes wonder just how many times something is discovered, buried, then rediscovered before it becomes accepted in the mainstream? Side effects of statins being a major case in point.
I've been trying to work out dates from various blood tests, but seems like I was on Crestor for maybe 9-10 months in 2008/2009. Strangely enough, I've since been diagnosed with two diseases that Wiki tells me may be related to statin use - interstitial lung disease and type 2. I doubt if I'll ever find out if the statin use was causative, but I'm really glad I stopped taking them instead of continuing. I have to wonder if I'd even still be here since the lung disease can be progressive and the stats on survival past 5 years out from diagnosis are not good.Having taken Atorvastatin and Simvastatin (because it was cheaper at the time) I'm well aware of the side effects that I experienced, they cannot be refuted because I know how I felt. My major concern at the moment are the long term effects which we may never be made aware of. I notice that there has been some research done suggesting that the aging process is affected. So, all those years ago, when I complained of thigh muscle pain and my doctor stupidly suggested it was old age (50s then), he may have been right, just that I was aging more quickly than I should have been.
I have a sneaky feeling that unlike the awful side effects of Thalidamide, I'll be long gone before the truth will come out about statins.
There are so many drugs that have ILD as a side effect including the simple aspirin!! It is thought likely that there are more than the approx 350 drugs that are already known. There are also in excess of 200 types of ILD and the causes are not always drugs. It is unlikely that the cause of your ILD will ever be known.I've been trying to work out dates from various blood tests, but seems like I was on Crestor for maybe 9-10 months in 2008/2009. Strangely enough, I've since been diagnosed with two diseases that Wiki tells me may be related to statin use - interstitial lung disease and type 2. I doubt if I'll ever find out if the statin use was causative, but I'm really glad I stopped taking them instead of continuing. I have to wonder if I'd even still be here since the lung disease can be progressive and the stats on survival past 5 years out from diagnosis are not good.
I doubt if I'll ever find out if the statin use was causative, but I'm really glad I stopped taking them instead of continuing.
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