Problems at school - Urgent advice needed please

My 5 year old daughter is T1 and has been pumping since April. She also has selective mutism so has been given 32.5 hours a week funding for a 1:1 carer at school. Since September I have helped access training and supported her TA's with learning to use the pump. By half term it became clear that the team of 1:1's (4 different people) were not getting enough time with Lottie to practise the skills necessary to look after Lottie.

One of Lottie's 1:1's had made numerous mistakes with Lottie's care ranging from not treating hypos to giving insulin when it was not needed or authorised. There were 8 incidents such as this in the forst two weeks after half term, when she was flying solo.

I went to the head and expressed my concerns and the 1:1 numbers were reduced to one morning and one afternoon carer. However, the person who had made the mistakes continued to do the mornings. I arranged for extra training, for her and the new afternoon 1:1, from the consultant and I had a two hour meeting with Lottie's DSN and Consultant to review and simplify Lottie's care plan and daily routine, to make it foolproof. I also produced Lanyard cards to be worn at all times with all the necessary info on them.

Yesterday Lottie was 22.5 at break time and was given a 1.5 unit correction bolus. Lottie's care plan clearly states that if she is over 20 mmols then her parents need to be contacted and that correction boluses can only be given up to 1 unit without parental authorisation.

If this was your child what would you do?? I have taken action but apparently I am over reacting.

I would like some views from other parents of T1 children.

Hi cearapeter,

Yes Lottie is statemented for her Diabetes and Selective Mutism. She has been give 32.5 hrs funding per week. I have spoken with the headmistress, who was very rude and hurtful, saying that Lottie's issues had marred the Christmas week for her and her staff. She told me to keep Lotts away from school in January until this is sorted out and that I may want to look for another school as they obviously can't meet my 'high' expectations. I feel that this is quite discriminative towards Lottie as I do feel I'm being unreasonable. I just want her to be safe.

1:1 care is where my daughter has one person who is responsible for her only her care at all times. If she did not have this I would have to be with her at school. Lottie's diabetes is so variable that she needs constant supervision. I have to ba available to support the school if anything goes wrong too. This is normally 2-3 times a week.

The school employs them. The government pays their wages in the firm of funding that my daughter qualified for and they are trained by her consultant to provide care for her.