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Type 1 Question Regarding Neuropathy.

dynamitedj

Member
Messages
6
Location
North Shields
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Diabetic problems
Hi Folks,

I'm a type 1 diabetic and have been since 2004, i was diagnosed with Diabetic Neuropathy approximately 18 months ago and after looking on almost every website i can find in google, i'm unable to find an answer to a question which has recently been affecting me, so i'm hoping now that someone on here may have experience or be able to offer some advice regarding this.

With my neuropathy i've no feeling in my hands or feet and i've recently been having falls which the doctor has said is related to my neuropathy, however for the last few days i've had severe burning pain in my knee and its come to the point where it appears the joint has locked up and i'm unable to stand, move or even get dressed without help of my wife (who's my main carer)

Today for example i was stuck in bed until my wife answered my shout and she had to swing my legs out and help me put my underwear and trousers on, she then had to help me up and it felt like my knee's were completely buckled and i couldn't straighten either leg, the pain is radiating in either knee however now appears to be moving towards my pelvic/hip region.

Can anyone possibly offer any assistance what could be the cause of this? or anything i can approach my GP with rather than them fobbing me off with we can't do anything.

ABOUT ME:

i'm a 31 year old male. Married, have 3 children with my ex wife who live in the South West
I Reside in the North East and i have completed the Dafne course (Dafne Graduate)
Diagnosed with Type 2 in 2003 however was told in 2004 that i was type 1 and now insulin dependent.
(2011-2012) Spent over a year on 2 background insulins due to mal-practice by my previous GP/Pharmacy & Hospital Consultant - During which time was admitted 3-5 times a week with either Hypoglycemia or Diabetic Ketoacidosis.

Medications:
Background
- Levemir - 15 units Twice a day (Morning and Night)
Quick Acting - Novorapid (Insulin Aspart)
Pen Type - Novopen Echo * 3
Needles - BD Micro-Fine 5mm (31Gauge)
Testing Meter - Bayer Contour Next USB (Microlet Lancets & Contour Testing Strips)

Other Medications
Atorvastatin - 80mg - Once at Night
Etoricoxib - 90mg - Once Daily
Levothyroxine - 100mcg - once daily
Paracetamol - 500mg - 2 * 4 times a day
Amitriptyline - 50mg - once at night
Lyrica (Pregablin) - 300mg - Once a day
Tramadol - 50mg - 2 * 4 times a day
Sildenafil - When required
Movicol Plain oral powder 13.7g sachets

Hopefully someone can offer some assistance with this matter or at least offer some enlightenment.
 
I think your best option is a referral from your GP to the pain clinic. This is why:-
What you're describing is certainly not what one associates with neuropathy. I have been taking pregabalin for many years and instead of one daily dose I am taking 375 mg spread over three doses. 125 mg at 6 AM, 150 mg at 2 PM and 100 mg at 10 PM. It took several months to work out the regime that I have found to be the most effective. Other painkillers that you are taking not ones that I would associate with neuropathy alone. Amitriptyline in a low dose at night is a very effective muscle relaxant, paracetamol (and your really banging on the top of what you can take) is just a general analgesic. Tramadol again is a general analgesic and you are once more taking the maximum dose. If your pain is with you constantly and it's worse in the morning when you're getting up then perhaps your GP might consider the slow release version of tramadol where you could ensure 24-hour coverage. Tramadol is highly addictive and in the main only used for short-term pain so there is a reluctance perhaps on the part of your GP to commit you to the substance long term: where should you stop taking it, you will suffer the withdrawal symptoms usually associated with coming off heroin .You really do need to speak to an expert in pain management. I don't think you should lay the blame solely on the neuropathy. Yes it is certainly a contributory factor in falling but the other medications you're taking also can cause dizziness! Make sure that when you go to the pain clinic you have all your medications listed along with the timeslot for each of them. Four times a day means every six hours. If your day starts at six and you go to bed at 10 you're asking a six-hour tablet to cover an eight-hour time period. My personal experience tells me that that does not work.
 
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