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Reactive Hypoglycemia - Can Anyone Help Please?

TMEUK

Member
Messages
12
Location
Swindon
Hi,

I'm new here so sorry if I am posting in the worng place. I am bit confused over a recent diagnoses and wondered if anyone might be able to point me in the right direction? I know any advice ofered will be of an experiance nature and not medical, but it may just help me out.

About 20 months ago I was admitted to hospital with a suspected heart attack. After investigation it was decided I was not cardiac, but needed to see the Endocrine team.

After many months of tests for just about everything from Thyroid to Carcenoid, I was told the results of a fasting blood test revealed Reactive Hypoglycemia.

My results on fasting were 13.5, followed by 4.5 after being given Glucose and then droping out an hour later to 3.5.

For the past 2 weeks I have had a blood monitor, given to me by the Diabetic Nurse. My readings are always with in the normal range or very close, with the lowest ever being 4.5. My average over 2 weeks is 6.0.

However I am still experiancing, very bad headaches, which I was told was because the sugar goes to my brain! My vison is all over the place and I am very tired and fed up.

I think my blood sugar levels are good, so am not sure if this is normal?

Can anyone suggest anything? or has anyone had experiance of this. I don't even know if Hypoglycemia is Diabetes.....

Thanks in advance

Simon
 
http://en.wikipedia.org/wiki/Reactive_hypoglycemia

I find this slightly confusing, but the description does say "in people who do not have diabetes".

However the picture this paints for me is someone having a hypo after a high carb meal because they over produce insulin, which in turn suggests that blood sugar would tend to be normal to low.

You report a high fasting blood sugar which was knocked down by giving you glucose - which sound to be a demonstration of (over)production of insulin after a high carb meal. However I can't really understand where the high fasting blood glucose came from. If you over produce insulin then I can't really see how you could have high blood sugar unless there is a mechanism beyond the normal monitoring of the blood glucose level by the body coming into play.

This is the general thing that is confusing me.
Apparently the sufferer gets a dip in blood glucose after a meal due to over production of insulin.
This is treated by giving glucose/food to bring up the blood glucose.
So why does this not trigger yet more over production of insulin?
Or is it just high carbohydrate meals or high doses of oral glucose and not small amounts of oral glucose or medium to low carbohydrate meals which trigger the over production of insulin?

Sounds like a recipe for uncontrollable weight gain to me if every time you eat all the glucose in your blood stream is flushed out to your tissues, requiring you to eat more to compensate.

Someone will no doubt come along who understands this.

Anyway, as something related to glucose control a diabetes forum is not a bad place to ask a question.

Another thing - you say that from regular testing your average blood glucose is 6.
When are you testing?


So an average of 6 sounds a little bit high.
A fasting BG of 13.5 sounds like full blown diabetes but then as stated above I don't really understand reactive hypoglycemia.
What were your highest readings during your testing campaign, and when (in relation to time after last meal)?

Cheers

LGC
 
Hi LGC,

Thanks for the information, I'm glad I am not the only one who can't get their head around it and now I dont feel so stupid because you obviously have some experiance of these type of things and still don't get it.

OK, I wont give you the full blown 14 day account but if we consider the last few days it would be as follows:

11/08/11 - 12.54 Just before lunch 6.7
11/08/11 - 21.03 2 hrs after evening meal 7.5
12/08/11 8.53 Just before breakfast 5.9
12/08/11 10.46 2 hrs after breakfast 5.2
12/08/11 - 17.45 Just before evening meal 7.4
12/08/11 - 22.14 2 1/2 hours after evening meal 5.5
13/08/11 - 17.55 Just before evening meal 4.6
13/08/11 - 20.20 2 hours after evening meal 5.7
14/08/11 - 8.19 Just before breakfast 6.0

I havent done any further tests today as I havent eaten much as am feeling so rubbish.

Does that mean anything to anyone? Is it good, bad or neither.

Thanks again

Simon
 
Quick reply - not eating because you feel rubbbish isn't really going to help.
This is more likely to mess with your BG.
Try following a low carb regime and eating regular moderate size meals.

The numbers you have posted don't look too bad so I am still puzzled over your high fasting BG when you had your earlier test.

Not seeing any really low hypo style readings either.

Not seeing any trends.

O.K. - I am baffled (however this is not too hard to achieve).

So probably best to just make sure you eat regular meals but avoid high sugar and carb intake.

Cheers

LGC
 
Hi LGC,

I am still trying to get my head around the whole low carb thing. I did eat yesterday during theday, just not much, I had a slice of toast (Granary bread) and peanut butter mid afternoon, with a cup of tea and 2 rich tead biscuits.

For your information, my levels yesterday were at 5.0 at 6.30 before my evening meal. I then had Lamb steaks with mashed potatoe (small amount) and caluiflower, carrots and gravy. 2 hours later i was at 7.3.

I then woke up in the night feeling very rubbish like I had low BG so tested at 2.40 am and got 6.5. This morning I am at 5.9!

Not knowing much about the condition they say I have or Diabetes in general I dont find those readings alarming or am I missing something? I am taking in to account various articles I have read about natural peaks and lows in BG regardless of your medical condition.

I am now just so confused!

Regards

Simon
 
Hi there,

you are right, your blood glucose readings seem nice and steady at the moment, nothing to be alarmed about. But if you are still feeling rubbish then presumably something is still wrong somewhere, even if it isn't your blood sugar doing it. In your position I think I'd go back to the doc with the readings you've done and ask them to have another think about it... I wouldn't expect those bg readings to be causing you any problems, so maybe something else is afoot.
 
Hi Snodger,

Thanks for your reply. I think I will go to the docs. The diagnosis was made at St Barts Hospital in London, but I think something must have just been a miss that day that gave strange readings. I know they also mentioned high growth hormone levels and that on a PET Sacn all sugar had gone to the brain area.

The starnge thing is all my symptoms apart from BG do point to diabetes, but I feel like im on a consant crash!
 

Ummm......
If that is what you are eating during the day then this may be why you are feeling rubbish.
You don't say what you are eating for breakfast.

On the low carb front you are doing practically everything wrong!

Bread (granary or otherwise) is a major carb source.
Rich tea biscuits are packed with carbs and sugars.
Mashed potatoes are carbs processed to be rapidly absorbed.

In my view to low carb you should be eating a protein rich breakfast (quite a large one if you can manage this), protein snacks (e.g. chicken salad) and NO BREAD during the day and no potatoes, pasta, rice, bread etc. in the evening.
In dietary terms it is generally not good to load your eating towards the evening meal - your evening meal would have been much better as a mid day meal.
However people who are working are often constrained by their environment and find it difficult to have a reasonable mid day meal.

Given the blood sugar readings you report I don't think you are suffering from diabetes symptoms - you may be feeling rough because you are messing around with your diet, not eating regular meals, and generally worrying about it all or there may be some other reason.

Certainly skipping a midday meal then snacking on high carb/sugar items in the afternoon is not going to help (although I suspect that is how a lot of people 'diet').

Sorry I can't be much help.

Cheers

LGC
 
Hi LGC,

Thanks again for you input, much appreciated. I think it's a valid point on the diet front. Have started a food diary today to go with BG readings so I can see what foods if any are effecting me.

I think then it's a trip back to the docs, evidence in tow and furthering discussion as to what is wrong!

Regards

Simon
 
Hi Simon

I think some basic information might help you to control your levels - you will understand better what you can and can't eat. Eating less carbs will ensure more stable levels helping to avoid the peaks and the troughs. Here is some information written by the former monitors for new members (even if not diagnosed) which I hope will help you to obtain better, more even, levels.

 
Thanks everyone for your advice, there are certainly some things to consider. This forum is a great source of information, so long may it continue.

Regards

Simon
 
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