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Really confused

Dave Metric

Member
Messages
20
Type of diabetes
Type 3c
Treatment type
Insulin
Hi All,

In December 2024 I started to feel unwell and went to by GP. Had lots of tests for assorted abdominal cancers and over Christmas and New Year started to get really thirsty (6+ litres a day). Liver and bowel cancer was ruled out although I had a slightly fatty liver. Bought a BGM and had fasting BG of 20-odd and after meals was 33+ when the meter topped out. Was fast tracked to rule out pancreatic cancer. Ended up being admitted for DKA and put on insulin. CT revealed atrophy of the pancreas. Endocrinologist says I've got type 2, hepato-biliary surgeon says I've got type 3c so I don't know where I stand. currently running 85%-90% on 60 units of long acting a day with occasional boluses of fast acting. Managed to get HBa1c from 97 in Feb 25 to 41 in Jan 26. Because I've been ok at managing my time in range, I've not been given much other advice. I've put 7-8kg on in the last year. I'm really not sure where to go for advice. I've moved house and having to be treated as a new referral for my local diabetes service which currently has a 21 week wait for first appointments. The weight gain is really affecting my mobility as I'm a double below knee amputee (trauma related). I'm currently suffering a lot of bloating and nausea. Relatively small meals feel like a large Christmas dinner!

All the type 2 advice I can find is diet related and type3c advice is really hard to find.

Any pointers warmly welcomed
 
Ended up being admitted for DKA and put on insulin. CT revealed atrophy of the pancreas. Endocrinologist says I've got type 2, hepato-biliary surgeon says I've got type 3c
Type 3C is diabetes caused by damage to the pancreas, which seems obvious in your case.
Somrtimes HCPs class it as T1 or T2 because they think this is easier for the patient to understand, which makes no sense to me.
I'm currently suffering a lot of bloating and nausea. Relatively small meals feel like a large Christmas dinner!
Are you on digestive enzymes like Creon?
Exocrine pancreatic insufficiency (EPI) is very common in T3C.
In T1, it's mainly the beta cells that are affected (because of an autoimmune attack), those are the ones that produce insulin.
In T3C it can be the whole pancreas is affected, and the pancreas produces enzymes for digestion.

Have you found the T3C sub forum already? https://www.diabetes.co.uk/forum/category/type-3c-pancreatic-diabetes.73/
 
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