Stuart Jenkins
Newbie
- Messages
- 3
- Location
- London, England.
- Dislikes
- I dislike people who don't have a positive attitude to life and the living of it.
Hi Everyone,
I have been suffering with gastroparesis since 2000, although only officialy diagnosed in 2005. Unfortunately my gastroparesis is refractory to all the treatments that have been tried including botox injections to the pyloric sphincter. I vomit 10-20 times every day and am normally admitted to hospital as an emergency every 2-3 weeks due to acute renal failure caused by dehydration which in turn is caused by the continual vomiting.
My Conultants have told me I need to have a Gastric Electrical Stimulator fitted but as it's a fairly new procedure it's not yet approved by NICE and not funded by the NHS, therefore I've had to go to my local PCT for funding. The PCT have refused to fund the operation and now I'm appealing against their decision but I don't hold out much hope.
My diabetes has never been a problem for me and my HbA1c's have always been very good and in single figures throughout the 31 years I've been a diabetic so it's a bit of a mystery how I developed gastroparesis although the consultants think it may be that I play the Trumpet for my living (when I'm well enough, which isn't very often anymore).
I'd love to hear from anyone on this topic, this is truly the worst condition imaginable to deal with and any support/advice would be greatly appreciated.
Best Wishes to you all.
Stuart
I have been suffering with gastroparesis since 2000, although only officialy diagnosed in 2005. Unfortunately my gastroparesis is refractory to all the treatments that have been tried including botox injections to the pyloric sphincter. I vomit 10-20 times every day and am normally admitted to hospital as an emergency every 2-3 weeks due to acute renal failure caused by dehydration which in turn is caused by the continual vomiting.
My Conultants have told me I need to have a Gastric Electrical Stimulator fitted but as it's a fairly new procedure it's not yet approved by NICE and not funded by the NHS, therefore I've had to go to my local PCT for funding. The PCT have refused to fund the operation and now I'm appealing against their decision but I don't hold out much hope.
My diabetes has never been a problem for me and my HbA1c's have always been very good and in single figures throughout the 31 years I've been a diabetic so it's a bit of a mystery how I developed gastroparesis although the consultants think it may be that I play the Trumpet for my living (when I'm well enough, which isn't very often anymore).
I'd love to hear from anyone on this topic, this is truly the worst condition imaginable to deal with and any support/advice would be greatly appreciated.
Best Wishes to you all.
Stuart