Saw the BBC 3 programme

curly said:

Hi - just saw the programme on diabulimia on iplayer. Really upsetting. I don't have diabulimia, but I do have 'standard' bulimia together with type 1 and have spent literally the whole weekend bingeing and purging. Can't seem to get a grip on it. Not really had more than a couple of months healthy for the last 14 years. Feeling at breaking point - no energy, becoming overweight, mental health in the gutter, only just maintaining normal life. Always take my insulin and take extra to compensate for binges...but, still pretty impossible to get good control with the amount and type of food I am eating on a regular basis. No point getting 'proper help' - been there, done that, makes no difference. Need to get myself out of this. Really think it's nothing more than a habit, but for some reason can't break it. Hope I can use the forum as part of getting through it. Thanks.

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Lucy02 said:

Hi Jacq,

I've just been reading this thread and what Curly said is exactly what I'm going through- I had bulimia non purging since the age of 12 where I would diet excessively losing weight very quickly and then severe episodes of binging which could last weeks or months. Then when I was 21 I was diagnosed with Type 1 which completely exaserbated things and have been living in hell ever since I'm now 25. I have been through DBT and CBT at an eating disorders clinic but much like other people here I found none of the NHS professions knew anything about T1. The BBC documenaty really struck a cord with me and I'm just wondering where to turn, I've almost given up hope. Can you recommend any books to me? I've read dozens of books on ED recovery but none that relate to T1.

Thank you,
Lucy

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jacqfromdwed said:

Hi Lucy

My friend Dr Jen Nash wrote a book called Diabetes and Well being and that's quite good as an overview into sort of general psychologcial functioning with Diabetes. Dr Anne Goebel Fabri has written really good book called injecting hope - she was one of the very very first psychs to recognise diabulimia and how different it is to other eds. When I started getting better, don't laugh, I bought myself CBT and NLP for dummies and sort of made my own programme up using those principles for ages I didn't think it was working but then I sort of got better in spite of myself. Can I ask where about in the UK you are based in case I know anyone who might be local to you?

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Lucy02 said:

Thanks so much for getting back to me, I'm based in Hampshire quite near Southampton, also close to Portsmouth and Winchester. Thank you also for book recommendations I will look into those. If you could let me know of any local help that would be great. Thank you xx

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jacqfromdwed said:

Hi Lucy -I do know some people in and around Portsmouth and I know a D consultant there who I've worked with so I'll get in touch and see what the protocol would be to get you seen there - How are you doing today

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