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Service Dog

casandra

Newbie
Messages
2
I moved from the USA to North Wales to be with my partner in 2005. I am now a dual Citizen. I have had very little help or care with regards to my type 1 diabetes which I was diagnosed with in April 2004. I am currently on a sliding scale with Novo Rapid, and I take Levemir every night for my long acting insulin.

Since moving to the UK, I have access to the NHS and I have only had 1 HBA1C done. I have not had any help from my GP with regards to getting in touch with a Hospital Diabetic Consultant until three months ago, when he finally said he would write a letter to the hospital in order to refer me. I received a letter from the hospital yesterday, offering me an appointment for the 21st of August. I don't know how I am going to get through this.

When I first moved here, I had been in an education program regarding starting life with the insulin pump, but my hospital refused to continue with that for me. I also asked about continuous glucose monitoring and I was also shot down within seconds of asking. This was Autumn of 2006. Since then I have had no contact with any Diabetes specialists since then. I feel like I have been left to my own devices. I have not had a single day since I moved here where my glucose levels have been even somewhat normal, its like a yo-yo. Due to the lack of professional care, I have developed a very alarming condition. I can no longer tell when my blood sugar is going low, which is pretty bad considering I am only 20 years old. I wont feel anything until my glucose level is less than 2.9 mmol/l or 50mg/dl. I don't feel safe in public on my own anymore as I have had episodes everywhere from College to the supermarket. I also get minor seizures/blackouts due to lows.

Despite all of my issues, I lead a very active life. I get in excess of 60 minutes a day where my heartrate is in an elevated range, and I stay away from junk food. I haven't had soda or crisps in the past 4 years and I mainly live on lean meats, veggies, fruits and pulses.

I recently got fed up with the NHS and started researching Service Dogs. I am looking to train my own (not yet purchased) pup to be an Assistance dog, that would be able to detect abnormal blood sugars by scent and sight. I have spoken to many charities who would be willing to help me, but they have a 2 year waiting list.

Does anyone have any experiance with Diabetes alert dogs? I have the basic gist of alert training, and I have done advanced obedience with dogs for many many years now. Whatever the case, I will be receiving my puppy within the next coming months, I havent been able to find an appropriate temperment in a pup as of yet, and I will probably create a blog or diary on my website or the forum for the future reference of others.

Thank you for any help/advice you can offer!
 
Hi,

Sorry to hear of the bad time you are having, I think it's completely unacceptable.

I cannot give you any advice re the alert dogs, but I would say to push ahead with going to see a diabetes consultant and if you are not satisfied with the service, see if you can be referred to another centre.

I gather you are Type 1 and would like to go on a pump? I have heard that Gloucester Royal Hospital (not a million miles from North Wales!) have been putting quite a few adults on pumps and have quite a good reputation, I believe, although I have no direct experience of the adult diabetes clinic there. My two girls are both on pumps and have HbA1c's every 3 months. We also have access to coninuous blood glucose monitoring if there are problems that might be helped by doing that. The children's clinic has a continuous blood glucose monitor that they lend out for a few days at a time. To my knowledge no-one has this 24/7 on a permanent basis. Your problems with hypoglycaemic unawareness would make your case for a pump quite strong I would have thought. You really need to get a consultant who is clued up and forward looking. You may have to fight for this, but it will be worth it in the end.

By the way, most GP's in the UK have little detailed knowledge of how to manage Type 1, so you really do need to be under the care of a consultant diabetologist.

Good luck with everything.
Sue
 
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