Severe pancreatitis leading to removal of pancreas/ diabetes

Re: Severe pancreatitis leading to removal of pancreas/ diab

Hello

Welcome to the forum. I am so sorry to hear what you and your husband have and are, going through.
What are your husbands blood sugar readings like? As he has a feeding tube I take it the hospital means that liquid food is absorbed a lot faster hence the tiny insulin ratios.
Does he have the half unit insulin pen as that could really help fine tune the ratios. (It's called a novopen echo)
Good luck and ask away on here, someone is bound to be along to answer any questions!

Kat x


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Re: Severe pancreatitis leading to removal of pancreas/ diab

Don't despair! My diabetes was caused by having acute pancreatitis. I was in hospital for over 3 weeks and was very ill. I had my gall bladder removed as well. I was diagnosed with having secondary diabetes (type3) which is managed as a Type 1. Now nearly 3 years on I am managing it very well but it involved a complete change of life style !! I am on Novorapid and Levemir and I also have to take Creon with all my meals. It's a bit of a pain as all diabetics will tell you. Good luck


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Re: Severe pancreatitis leading to removal of pancreas/ diab

Hello
Have you been on the pancreatitis supporters network, lots of info on managing without pancreas

Re: Severe pancreatitis leading to removal of pancreas/ diab

Hello,

Although my story is different to yours, I am a survivor of pancreatic surgery too. My ongoing saga is one of some 27 years' standing. To break down a very lengthy and complex saga into bite size chunks, in 1986 I had pancreatic cysts drained, my gall bladder removed, together with the left lobe of my liver, the latter due to a benign tumour. This was followed, in 1991, by the removal of one third of my stomach, my spleen and two thirds of my pancreas, the latter because of an entirely different benign tumour. I have had to swallow pancreatic enzymes with food ever since. I then developed an underactive thyroid in 2000 and am now being tested for diabetes, because of the random discovery of hyperglycaemia on routine blood tests.

All of the above has been against a background of feeling very unwell for the past 27 years, with no firm diagnosis ever having been made. Like you, I get the feeling often that my case is too complex and just too difficult for the medics, who are all too keen to pass me on another colleague at the first opportunity. I am currently back solely under the care of my GP who, although very supportive over the last quarter of a century, admits that he is out of his depth with my case. His response to my hyperglycaemia has been that it was inevitable and that he would expect me to be insulin dependant within two years.

I suppose we shall just have to wait and see what the future holds for both myself and your husband. I am, however, determined that, if a diagnosis of diabetes is confirmed, I shall receive the very optimal care, support and advice in order to manage yet another addition to my lengthy list of medical problems, from a team who are committed to managing a case as challenging as mine.

I wish your husband and yourself all the very best for the future and the only advice I feel it would be appropriate for me to give would be to keep fighting for the best and most appropriate care available. Your husband has, after all, fought for his life and deserves for that to now be lived in as full and rewarding a manner as possible. Good luck to you both!


Spridgett56

Spridgett56

Re: Severe pancreatitis leading to removal of pancreas/ diab

I can simpathise with your husband, I had part of my pancreas removed and developed diabetes within a year. I am lucky in that my consultant understands that because I don't absorb food properly I will have difficulty getting good control. Just had an MRI as they think that what I have left of the pancreas is calcifying and may need removed. My levels are constantly high but the thought is that if I get the pain and sickness sorted the levels will reduce.
I wish you and your family all the best for the future and hope you can get a good consultant to support you.

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