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Slowly killing self :(

Claire,
Further to me reply to you yesterday and thinking about your problems overnight. Do you have a diabetic specialist nurse and/or diabetic clinic that you can go and speak to? Talking through the problems with specialists and especially in my case my SDN who is truly amazing even when I mix coeliac disease in with the problem. I have learned more from her, even though I am her only diabetic/coeliac, than from anyone else at all.
Cheer up, do please contact me if I can be of any help. I cannot bear feeling that between us the diabetic forum is unable to help you.
 
Hi Clair, I know exactly where you are coming from I have had Diabetes for over 35 years and have struggled with many, many problems associated with Diabetes Type one. I was a single mom( after my husband walked when he discovered you have to give as well as take in a relationship) it was so hard seeing my 17 month old son using my lifeline system to get me help, waking from a hypo to see those worried little eyes looking down at me and then light up when I spoke to him. I continued to struggle until 3 Years ago I went on a course to learn how to really Carb count it was fantastic and helped a lot however the biggest thing to come out of it was I learned about Pumps. My Diabetic Specialist Nurse then put me forward for one and in December 2011 A parcel arrived and in it was a small Pink device, my chosen colour, and that is when I met my new Best Friend an Animas 20 20 Insulin Pump complete with Pink accessories I went to pump clinic in January and was shown how to prepare, use and set up my pump. At first it was just saline that was in it then a week later I went live. How was it, FANTASTIC I now feel completely in control of my Diabetes for the very first time. Its seems to me that you are having the kind of problems that I had I know a pump is not for everyone but I definitely think its worth a try after all what have you got to loose. You can private email me if you would like to ask me anything about the pump etc, llynettejb@yahoo.co.uk. Regards Lynette
 
Hi Claire,

Sorry you're having such a bad time at the moment. You mentioned IBS - have you considered gluten intolerance? It's often linked with t1 diabetes, and can cause loss of weight and IBS-like symptoms. You could try going on a gluten-free diet for a few days and seeing if it made any difference. Nowadays there's lots of good gf stuff available, but be careful to read the labels - things like soup and processed foods that you don't expect can often have gluten in. Basically avoid anything with wheat, barley & rye. Oats are nomally considered ok as they have a different type of gluten which even most coeliacs can tolerate.

Philip
 
Hello Mr johnnycash, I read your post and wanted to reply to you about the pump. I am type 1 had it 24 years since I was 2. I was very uncontrolled from 11-22 and suffer bad neuropathy and retinopathy due to my denial. I just couldn't face being a diabetic. I didn't want the label.

I have completely changed how I act towards my diabetes now. With help from the diabetic team I have I faced my diabetes and now have great control with the use of a pump. Pumps are really hard work with at least 4 tests a day but are really worth it. I know you say your doctor just says no but there are clear guidelines by nice for getting a pump and if you fit you have to be offered one. The problem is you need to be making a huge effort and they have to believe you are doing as much as possible to help before they will consider spending the £5000 odd for a pump. Going on the daphne course to learn carb counting is one restriction to getting a pump and you need to show you are good at counting every carb because that is so important with a pump.

People ask me of I would go back to injections because they see all the work I put in but I always say no way. I feel in control without being a control freak about it. I can choose to eat whatever and whenever and I don't have to think about finding a toilet to inject or not eating due to nowhere to inject.

If someone said 2 years ago I would accept my diabetes and do more than a finger test a week I would have thought they were crazy. If I can get my head round this disease I believe anyone can. I no longer feel like I am scared to face it and can do my best to live with it.

Naomi



 
On the IBS issue - I have had it for years. Was tested for gluten intolerance but that was not the cause. Got an allergy test and after 6 weeks off 18 different foods it settled completely. Still have occasional flare ups but nothing too drastic. If I eat a lot of wheat I get a flare up within hours so I try to steer clear of it. Hope this helps.

Sent from the Diabetes Forum App
 
I completely agree with the person who said to keep fighting. Life is for living. It might not seem like it now but things will get better. better I am not diabetic myself but my husband is and he is also a manic depressive. I understand you not wanting to inject, but your little needs a mum who can show them how to look after themselves. Before Christmas, my husband was working away, and the day he was due home I could not get in touch with him. It turns out that he was having a bad DKA due to pneumonia. His organs had begun to shut down and he was not far from a brain haemorrhage. It was scary as hell, I can tell you that. I wouldn't wish it upon my worst enemy to see him in that much pain and so unaware of what was happening. You deserve better than what you are feeling now. We are lucky to have a brilliant nurse dietician at the Royal Derby hospital. Try your hospital team and don't be afraid to ask for help. You are only young and have got many happy years ahead of you
 
Hi Claire you sound as though your at the point I was 2 years ago
I've been diabetic 12 years now
I was diagnosed when I was 11 and hated it
I hated injections
I hated my mum asking if I'd done my injections
I hated blood test
I hated life
I've been in hospital DKA more times than I can remember. A few years ago I got told to talk to a theorist (didn't work if anything made it all worse) and was diagnosed with depression ended up taking anti depressants witch helped but didn't completely solve anything I still skipped injections and eat sugary food drank lucozade by the bottle. Last year I was told by a friend that I could have anxiety issues and that I should see a doctor, when I brought this up my doctor asked questions and offered a months trial on anxiety medication after two weeks I never felt better.
I FINALLY have my life back
I control my life now and my diabetes doesn't effect my choices


Sent from the Diabetes Forum App
 

Hi Claire, unlike most of the other people who have replied, I don't know what it's like, I was diagnosed as a T2 at 47 years old so I've lived most of my life 'undiabetic'. It must be hellish to have to inject constantly, but, (you knew there was going to be a but!!), your two and a half year old needs you AND you can eat what you want. But the important thing is your two and a half year old, focus on him/her and inject away with a smile on your face. When your baby is in their late teens then you can re-evaluate your situation, but not before, let's talk in 16-17 years, you can have my phone number and we'll talk then
 
Judging from Claire's profile, she joined the forum, posted once and hasn't logged in again since - though I hope other people in a similar situation are gaining insights from the members who are posting their thoughts and support on this thread.
 
Great words, goid for you..
 
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