• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Some questions from newbie

Indie1

Member
Messages
14
Type of diabetes
Type 1
Hi,
I'm 28, not obese, was diagnosed about 1.5 months ago, but doctors are still unsure what type am I, probably type 1, but not certain.

I was diagnosed at 19 mmol/l, accidentally, without any usual symptoms. Initially was diagnosed with type 1 and after being on small rapid-acting insulin doses, blood sugar dropped to 5.8-6.5. So my endocrinologist cancelled rapid-acting insulin and left only long-acting (Toujeo, 6 units). After that glucose kept stable at 5.0-6.5, but usually high in the mornings (6.0-7.0)
Fasting C-peptide was 0.18 ng/l and stimulated C-peptide 0.55 ng/l, ICA test negative, so my endocrinologist ordered a genetic test for MODY diabetes.

I started to do aerobic sports a lot (1.5h daily) and this seem to help keep glucose levels at 4.5-5.5, few hours after sport.

Questions:
1) Am I experiencing honey moon? Because my doctor wants to lower insulin more or even cancel it, based on what I've read in internet it seems not a good idea, is that correct?
2) Can it be 1.5 diabetes? As I understood in this case you should better keep taking insulin?
 
Your c-peptide results definitely reflect that you're not making insulin however, that doesn't necessarily make you type 1/1.5.

To be type 1/1.5 you would have to test positive for antibodies. 40 years ago that's what the ICA test was for, but that's not a particularly effective test and most doctors now test for specific antibodies (GAD-65 and others). It's my understanding that the ICA test only measures how your antibodies react to animal pancreas cells. A negative result doesn't mean they're not attacking your (human) pancreas cells.

In layman's terms, your c-peptide basically suggests you are insulin dependent, but the cause is yet to be confirmed. I would question why your doctor ordered the ICA test but then skipped all the way to MODY.
 
Cookies are required to use this site. You must accept them to continue using the site. Learn More.…