Son with type 1

My daughter was diagnosed 3 weeks ago she was also really high. She is just now starting to get decent levels. We where told by the nurse she would be hungry all the time and she was, at meal times she was eating more than me! Apart from her meal and snack time we were told all she could eat when hungry was carrots, celery, tomatoes, cucumber, cheese and sugar free jelly. I keep all the veggies chopped into sticks for her and plenty of jelly, this is working well for her.

I understand how you feel I have been an emotional wreck when my daughters just got on with it! I'm constantly checking her throughout the day and I hate it when she's in school and I'm not there x

My daughter was also diagnosed in December with type 1, she is 2 and first few weeks she was incredibly insulin resistant which seems to happen when you are first starting insulin. So was very hard to get her down. It soon settled and she is now in honey moon phase. Which is nice as it gives you time to get your head round things! I personally wouldn't go over 10g snack limit and most of the time I try to get away with just 5 but you will settle into this pattern at first it's hard as they are so hungry my daughter would eat 3 bowls of cereal in the morning it's like nothing I had ever seen but I just added her insulin and it was ok and that settled pretty soon I just made sure I let her eat, it's part of the process to eat a lot and by doing this they bloat out and this is a sign that they are storing glycogen which is good then the body turns this to fat they have lost. I know where you are at and it's bloody hard at times but keep going your doing great by the sounds if things. If there is any advice I could give it would be to read read and read , knowledge is power and power in control. I have a fantastic book on child diabetes it's worth getting one.

natalier90 said:

Thank tou for your reply. I'm still trying to get the hang of what I can let him eat. His diabetic nurse always makes the point of saying let him eat but I'm juat so worried about the carbs. If my son had the choice he would probably demolish three bowls of cereal.

We've been given a "sliding scale" for his insulin. Hopefully the diabetic nurses will help towards the right amounts he needs atm to get the levels under control.

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What is a sliding scale? Yes the 3bowls of cereals was short lived. I also was told to let her eat to her appetite and my sister in law is a peidatrician who specialises in endocrinology and diabetes she told me to let her eat as it was some ridiculous amount of calories she had to gain back to build up stores and fat, as long as your carb counting I can't see it as a problem as it's so soon after diagnosis and it soon calms down quickly.
They are resilient little things aren't they, I can't believe just how adaptable and strong my little girl is. She amazes me every day. Think it impacts the parents for longer than the Children sometimes. X

natalier90 said:

Hi guys.

My 4 year old son was diagnosed with type 1 on Monday. It's been a very emotional week.but he is doing absaloutely amazing( a hell of a lot better than me! )

I was just wondering if any one could give me good snack and dinner ideas please as he is constantly hungry ( nurses did say he would be at this stage) any advice would be much appreciated.

Many thanks

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Have a look at the carbs and cals ap or I have the book and it's great for in the kitchen for a quick helping hand. It shows you pictures and gives you weights with the carb count xx

natalier90 said:

The sliding scale is a scale we go by to determine what amount of insulin to give him eg his "base' insulin at breakfast is 1.5 but if his bs is above 11 we would add .5 so give him two, if it was about 16.1 we would add 1.0 so give him 2.5 etc. It makes sense and seems to be working.

Yer they are amazing aren't they. I cannot believe how well my son is doing. His mood swings are terrible at the moment but that is understandable. I cannot wait to see daily readings less than ten mmol. His are still 10-20 throughout the day. X

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Good evening natalier90, just a line, the book diabetis explained by dr r bernstein 3 rd edition has some very good chapters on t1 insulin and how to treat hypos etc, he's been a t1 diabetic himself for 63 yrs.