Thank you for your replies and ideas. I spent yesterday in bed, looks like today will be similar. It is easier, when I try to get up my legs and stamina were weak with some dizziness. I’ve probably got a relapse of my chronic condition. But at least this is allowing me to focus on food as I can’t do anything else anyway.
In reply to recommendations: I’ve added multivits including vitamin d3. And I re-established a form of pacing that I came up with earlier this year - I call it “Food First”. Most of my energy is available first thing in the morning and lasts until it runs out (very occasionally it lasts all day, sometimes it lasts barely one hour). So by putting Food First, I try to make sure that the first thing I do is prepare the food I will enjoy eating that day, because if I run out of energy I’ll definately not be able to prepare food later. I’m using with disposable tin foil trays and dishes and eating with my fingers. Back to basics.
Thank you for your advice, it is good to know that I’m not alone and that others have similar difficulties. I totally appreciate your support and comments.
Do you have a slow cooker or pressure cooker?
Slow cookers and electronic pressure cookers are great, unfortunately the process you are describing is only possible on a really good day - and those days are totally unpredictable in arrival. At the moment all I can manage is putting sausages in tin foil trays in the table top oven and waiting for them to cook to eat.
I’ve tried to tell doctors of the level of fatigue - but they imply that they are powerless to help. In fact most of them seem to dismiss the fatigue as “part of being ill”, “if I had a pound for every patient who complained about fatigue and we couldn’t find a cause...”. At least we have finally determined that it is most likely due to multiple autoimmune conditions, that is progress.
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