Thank you for your reply.
I take 34 units of Tresiba at night. I just switched about 3 weeks ago from Lantus. I take Humalog with my meals my ratio is 1::6 a breakfast 1:6 at dinner and 1:7 at tea time. I also take 175mg of Levothyroxine. Yes I rotate and are not damaged. I sit at a desk all day (I don't think this helps) and usually eat the same for breakfast and dinner most days. I'm mostly high all the time and am constantly chasing that. I worry about the amount of insulin I take it seems a lot. I take between 14 and 17 units with my breakfast including a correction. I can still some times be as high as 20 by lunch time. If I take more I have a hypo. They've suggested just getting my background right for now. I've had a few Libre and it shows I'm going low at night. Sometimes below 4 for a couple of hours. Which suggests I'm taking too much background? My last Hba1c was 8.9 I think. It has been around this the whole time. I don't think I have a real understanding of what I'm supposed to be doing even though I've been on a course and it all makes sense to me when they talk about it. I struggle to transfer that to actually doing it in real life. Nobody talks about the emotional effect it can have. That's what I find the hardest.
Type 1 diabetic. 3 years. Struggling with what has gone before and what is to come. Help needed.
Thank youHi @jo789, sorry you’re struggling at the moment! It’s pants when the ‘can’t get it right’ hits - it makes all of us feel we’re fighting a losing battle and are utterly useless. You’re not alone in this, many of us have been there one time or another. The real bonus (ironic) is that running too high makes us feel even worse.
Can you ask your GP to refer you to a teaching hospital for some expert help? They could investigate whether there’s anything else that would help your levels, and whether there’s anything in particular that’s led to your high doses. Have you always needed a lot of insulin?
Your workplace should accommodate any appointments you need under the Equality Act so don’t feel you need to wait or take holiday time.
Sitting at a desk all day, as you say, is not the best for a T1, is there anything you could do to get more exercise? A brisk walk on the way to and from work might make a big diffference, even if you drive there and go round a couple of blocks before you go through the door. I find exercise is a mood lifter too.
Three years isn’t long. You’re young, no complications, and despite the dire warnings that DSNs seem to have on a loop these days you’re more likely to have a long and healthy life than fall prey to any of the dreaded ‘the end of the world is nigh’ stuff that they keep banging on about. Some of us have had T1 for decades, getting it before the development of portable blood testing kit and sophisticated insulins.
Don’t despair.
When I had a dark time recently, before switching insulins, the best advice I was given was to take a week off from frequent testing and worrying and relax. Try it? Get a good book and lose yourself in it. See a happy film. Have a laugh with friends. And put T1 in the background for a few days?
Have a virtual hug from me too - you’re about the same age as my daughters, so have a proxy mummy hug
Thank youTID 51 years on insulin.
Glad to see posting and writing more about your situation.
Some thoughts based on my experience:
I maybe biased and have not ever tried Tresiba but i found the flexibility of taking Levemir twice daily gave me a better chance to prevent night hypos but take sufficient for daytime. Afterall basal levels fluctuate over the 24 hours, so can Tresiba really control that? Also i found Novorapid worked best if i took it 1 hour before meals. If Fiasp had been available back then i woukd have volunteered to try it asap. It was only after 45 years on insulin injections that i needed the insulin pump to maintain control although i was struggling probably from the 40 year mark.
Also exercise in moderation ( for me walking, gentle swimming, not running, playing squash etc) did wonders for my mood and blood sugars. However i also needed anti-depressants having diabetes and a strong family history of depression. O not be afraid to be assessed for mental health if things do not improve.
I worked at a largely desk bound job for years. The trick was to find every excuse to get up and walk about, use stairs not lifts and plan to be able to walk a good distance to car, bus stop etc. Weekends involved gardening, walking to and fro shops to do shopping ( and to the hardware store when i could get away with it!!)., kite flying and some socialvtime. Laughing is a form ofvexercise and stress relief. Joining a kite club helped also.
I hope the above might help you. Sometimes improvement is incremental and persisting to obtain the maximal benefit takes some time. Best Wishes !
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