Suffer/Suffered from A LOT!

gemma6549 said:

Hi Brian, I'm not active on the forum anymore but read your post and felt I could give a valid input(and was worried) I stopped my insulin for 6 years due to an eating disorder. Just over 2 years ago I did DAFNE and decided to take control so I have some good knowledge on what can happen when you do this. It's really important that you bring your sugars down gradually, the abrupt change will make your neuropathy, eyes and other things worse. Because your body is used to running with high sugars it's not going to be happy about changing. My neuropathy like yours became severe and I couldn't stand clothes touching my skin, I was in a wheelchair for a year and on morphine, the change also effected my eyes and I developed autonomic neuropathy and became incontinent. The good news is that 2 years on with a consistent hba1c of 5.8% I am free of all of those issues. I just want you to be prepared and if possible discuss it with a specialist so they can give you the right guidance. It's not a straight forward transition and you don't want to do more harm than good. Message me anytime if you have any questions.

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gemma6549 said:

Hi Brian, I'm not active on the forum anymore but read your post and felt I could give a valid input(and was worried) I stopped my insulin for 6 years due to an eating disorder. Just over 2 years ago I did DAFNE and decided to take control so I have some good knowledge on what can happen when you do this. It's really important that you bring your sugars down gradually, the abrupt change will make your neuropathy, eyes and other things worse. Because your body is used to running with high sugars it's not going to be happy about changing. My neuropathy like yours became severe and I couldn't stand clothes touching my skin, I was in a wheelchair for a year and on morphine, the change also effected my eyes and I developed autonomic neuropathy and became incontinent. The good news is that 2 years on with a consistent hba1c of 5.8% I am free of all of those issues. I just want you to be prepared and if possible discuss it with a specialist so they can give you the right guidance. It's not a straight forward transition and you don't want to do more harm than good. Message me anytime if you have any questions.

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gemma6549 said:

AndBreathe , i realised that just after i posted! lets hope that he's ok!

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gemma6549 said:

Clive I now fear I will spend the rest of my life worrying about what happened to ScottishBrian!!

Daffodils1 so glad you are doing well that's great news

I'm still on the chocolate orange tea too, expensive but worth it

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Daffodils1 said:

Hi Gemma

This is such an important point (that I hadn't picked up on till I read your post), that if initially diagnosed with v hig bs levels good to lower carbs gradually. I learn something from someone on this forum every time I come on

Ps Still drinking that fab choc orange tea you mentioned!

PPs... I saw the dn nurse this morning and she air kissed me she was so chuffed with results!! All helped by kind posters advice on this forum and thanks for what you've offered us all. All the best as you move on. X

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Daffodils1 said:

Hi there Signy, ah, sugars not carbs, gotcha, thank you.

Yes, feels good to be seeing nos going down, keen to get them lower ideally, but will have to see, consistent bs reading in the 5s would be nice! need to work a bit on my 'eat like this for life' mantra now.

Have a great weekend.

D

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