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T1: Not testing blood glucose levels anymore

I'm afraid I have to agree with @iHs on this one @nick1572. People only change because something motivates them to. I've seen it in myself (which I wrote about here) and others who are not part of the online community.

The best advice that's been given here is to sit down with her and open up about how you feel. It shouldn't be a lecture or trying to give her any advice. It also shouldn't be a conversation where you make her feel guilty. She needs confirmation that you care for her and are there for her and will do what she asks. Hopefully this will encourage her to open up in a similar way to you.
 

I used to have rotten blood sugar results for years. (Fortunately, for some odd reason, I have no complications so far.)
I used to test all the time, but never write down the results, and my hbA1c was horribly high. Every time I went to the diabetic clinic they would tell me to increase my insulin. I'd increase it and end up in casualty in a massive hypo or crawling gibbering round the floor trying to get to the sugar bowl (or something similar). In the end I just gave up and ran my blood sugar high most of the time. I was a single parent and it seemed safest for me and my son.

What I know NOW is that back then I knew nothing at all about dose adjustment. I was, you may be surprised by what I've said so far, very physically active and sporty. I biked it to work and back every day, spent most of my time at work on my feet or walking. After work I regularly went swimming. I went to karate classes up to five times a week. I biked, swam and played tennis at the weekends with my son.

Not one doctor or diabetes nurse EVER gave me any advice at all about adjusting insulin for exercise or activity.

So I tested lots, mindlessly even, but had no idea what to do with the results. In effect all I was doing was checking I wasn't about to go into DKA or a hypo.

All that has changed for me in the last few years and my testing now has a purpose and my HbA1c is my doctor's delight.

So here's the question: does your wife know what to do with those results HERSELF? I mean, as opposed to collecting them to hand over to her Doctor-Judge at some point in the future when she will be issued with an edict and told to 'come back in six months' (if she isn't rolled into casualty first)?

Has she done the DAFNE course?




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thats a long letter..
Though laser treatment does not mean you cannot drive. I have had a lot of treatment and have been dvla tested and just managed to keep a license. Though vision is impaired. Also you say tick the dissability box, Type 1 diabetes is not classed as a dissability as we can and do still function as normally. It's only complications caused by diabetes which can result in a dissability. I have been type 1 for 50yrs.Have always worked and good at my job too.
 

This is not correct - for the purposes of the Equality Act (and before it the disability discrimination act) type 1 diabetes is classed as a disability. The test is whether you have a condition which without treatment would impair your ability to carry out day to day activities - without treatment a type 1 diabetic would be dead. The reason this is the test is so that we can have protections to allow us to continue with treatment - I.e so that we can test and inject at work & in restaurants without being chucked out, so we can have time off for hospital appointments (even if you have to work the time up later that flexibility is important). So it is important to "tick the box" if you want to benefit from those protections. You will still benefit from the protections, but it migh make things a bit more complicated and awkward & why make life more difficult for yourself?

Whether you class yourself as "disabled" or whether you qualify for disability benefits is an entirely different question.

For me, the beauty of the equality act is exactly that it stops me feeling disabled - I don't have to slink off to a special room to inject (even though HR did offer that if I wanted) no no, everyone just has to put up with me testing & injecting at my desk (I don't make a show of it, but it's an open plan office) and just like everyone else, I never get to leave my desk, hooray!
 
Sorry @nick1572 , for derailing, I have read this thread with interest and you have my sympathy. But I'm afraid as someone who is single and very independent the idea of being in a relationship with someone who would "parent" me, ask if I was testing, ask what my blood sugar is is actually my worst nightmare. But, I hope, I would not put a partner in a position where they felt like they had to parent me in that way - it does seem very unfair that your partner gets all the benefit of the denial, while you can see the realities of the consequences. If she has tangible diabetic complications and this has not helped her to see the light and break through the denial, I'm honestly not sure what will. I hope you have had a chat with her about how she would feel if the tables were turned and hopefully hearing what it is like for the people who love her to watch her not look after herself might be the motivation she needs to overcome the denial. She is lucky to have your support and it was very kind and self aware of you to come onto the forum and ask the questions in the way you have done.
 
hi I did the same thing except I inject. HbA1c was still good but knew I was loosing control of knowing exactly how my blood sugars were doing. Spoke to consultant at hospital and am now seeing dietitian who gives me encouragement to write everything down what I do eat, do and testing. Since getting back to testing more and writing what I am eating I have lost weight and feel good about myself once again. I started doing it from mid May so am pleased with weight lose in such short time and encouragement and pause from dietition.
 
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