I have recently been down a 2 year quest to pin down if I had CFS. I am T2 diagnosed in late 1990s principally this was driven by symptoms of extreme tiredness. But then I had other problems from the mid 1990s with my back. As I progressed through the diabetes therapy options - diet, tablets and then insulin injections I was concious of a number of new symptoms which could be attributed to some bad, long lasting adverse side effects from e.g. BP medication, Statins and Rozaglitazone, and Antibiotics
In 2010 I went to my GP when I noticed I could not sign my name and he suspected I had had a stroke, he asked me if I had any other problems and I mentioned that I could not stand up for any length of time. I have had a few minor strokes, but it is still not clear to me if the CT Scan showing the strokes are still a factor in my health issues
The Doc said that was called orthostatic intolerance could be due to CFS so I was referred to a CFS specialist, who initiated an extensive set of blood and BP tests, then had 4 head and spine MRIs, neurological tests, and vascular tests, through a diagnosis of exclusion.
CFS seems very difficult to diagnose and can be attributed to many different causes, and my CFS specialist
used an exclusion diagnosis. He was concluded that I do not have CFS, but the MRI showed a spinal problem which is the cause of my standing and walking problems. I am still hoping I can be cured.
As a non medical person, but trained as an IT Systems Engineer used to doing root cause analysis on system problems my own conclusion is this is a number of problems layered on top of each other, and this exclusion diagnosis used by the CFS specialist is the right way forward for me.
My advice:
1. Make sure you do not complicate the spectrum of problems your might have by getting the best diabetes management you and possibly achieve, and be relentless in continuously improving your own blood sugar performance, be hard on yourself in assessing your own performance very regulalry. Do not be seduced into feeling well and then easing up on your diabetes management and diabetes diary
2. Try to be the best manager of your diabetes symptoms you could possibly be? Do you keep accurate records of your medications, food intake, Blood Pressure, Blood Sugars etc. Do you review how good you are at record keeping and do you see trends in your Blood Sugars by reviewing weekly / monthly?
3.Are you clear on what adverse drug reactions you have? Are you using www.rxlist or something similar to research your medication and its effects? Pain and numbness symptoms led me to some disturbing conclusions on drugs like statins
4. Have you had an extensive CFS exclusion investigation like me, and have you had any other physical tests like brain/Spine MRIs?
5. Another possibly spurious area I investigated was Lyme Disease and Weill's disease as I had a UK camping holiday in a Lyme disease hot spot, and have had intermittetent problems with rats and our rubbish bins in the last 12 years in our new house . An extensive set of blood tests should show up markers of infections for these.
Thats all I can think of for now.
Good luck and stay curious until you find an answer!!