Trulicty and horrible side effects

Good Morning Everyone. I really need some help. I have been on Trulicity now for months. When I first started the side effects were not good, but I seemed to be able to control it with eating small and often meals and knowing what days were going to be worse than others. However, over the last six months of so the symptoms are getting worse. Started with the horrible diarrhea and then a continuous headache, my whole body aching, jumpy legs and horrible indigestion. I went back to the doctors who said that they would give me tests, which they did stool and blood tests and said nothing was wrong it was IBS. Which seemed weird that I would develop IBS at 65 years old. Take buscopan and they gave me omeprazole for the indigestion and gabapentin for the jumpy legs. However, the last month things have become horrendous. I have chronic diarrhea, to the point I now cant leave the house, the indigestion pain makes me cry it gets so bad and my neck shoulders and arms hurt so bad. Sometimes when Im walking I feel like the ground is moving underneath me and I feel so dizzy. I have a horrible headache 24/7. I am taking so many different tablets to try and counteract all these symptoms and they are just not working anymore. The GP still insists its IBS. I feel I need to come off the trulicity now just to see if these symptoms then go away. Has anyone else had any of these problems. I feel like Im going mad now and I feel so incredibly down about it all. I have to get up in the night and go to the toilet around 7 or 8 times, sometimes more and in the day its all the time. If anyone can help or advise I would be extremely grateful. Thank you, Carol

catinahat said:

Hi, we are not allowed to give advice on medication because obviously we are not qualified. But I think I can tell you what I have done in a very similar situation.
As far as I am concerned it is my body and I decide what goes into it, Dr's are not gods, their word is not the law. If in my opinion a medication is doing me harm, I will not take it. The Dr's treatment is supposed to improve our health and quality of life, not make things worse.

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Yes, thank you, I guess its not really advice I want, just reassurance that other people have had these symptoms and have felt better when they came off it. I am definetly going to take myself off it what ever anyone says. I have tried it for 11 months and as I said it was previously manageable but for at least six months it been getting steadily worse, which to me says that my body is just not tolerating it and the longer I stay on it the worse its going to get. Reassurance or empathy? maybe, thats what Im looking for. Thank you for your reply I really appreciate it. Its nice to know someone is listening.

Outlier said:

While making it clear that I am not medically qualified and am not offering advice, I came off a quantity of meds that were doing me harm, and felt much better. I read the leaflets, researched information, came off one at a time over a longish spell so I could be clear what was firing the awful symptoms, and was very careful indeed. It worked and just over a year later, I feel better than I have for years. I am only on one medication now, a non-diabetic one, and have halved the dose, and seem to be okay, with horrible side effects much diminished. GP refused to take me off/reduce the dose of any of them and would not discuss, so I was on my own. I reiterate that I am NOT recommending anyone doing what I have done, just flagging up in answer to the question.

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That is really really helpful. Thank you. I spoke to the GP and he has agreed that I should come off the Trulicity as of now. He is going to give me a ring next week to check to see how I’m doing. It will only be about 17 days from my last dose but I’m so hoping things will be improving by then. It’s nice to know he isn’t going to fight me on this one and is going to help me map out how we handle the future. He’s doing another test to make sure there is no gut infection too but I explained this isn’t the only problem I am having and he listened to them all. So I feel it’s a start. If things don’t improve then it’s not trulicity but I’m feeling it is. Thank you for taking the time to answer and I really hope i get the same positive outcome as yourself.