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Type 1 diagnosis...Well, this sucks

Just to point out that the nice guidelines do not require the tests if the diagnosing practitioner is pretty sure it is type 1.

I wonder what would make them 'pretty sure' other than a child sitting before them. I think that's half the problem, not so many years ago they just said anyone not a child is 'type 2 or type 2 on insulin' which was a catchall situation. Beyond that declaration you would never actually know who was actually not a 'type 2 on insulin' but a type 1, especially when the view was (is) 'once diagnosed it's progressive anyway so it matters not if you are mistakenly placed on insulin, you'll all get to that point regardless of type'. I wonder whether there is any other life changing disease that seems to get diagnosed in such a casual manner.
 

I was diagnosed with type one and two
In February this year was immediately put on insulin slow release and four metformin after numerous tests and blood tests I’ve have finally had a diagnosis of lada autoimmune and also an auto immune
Thyroid condition now on slow release (smeglee)on morning and fiasp meal times carb counting I’ve gotta say it’s life changing my life revolves round food and bloods and injecting so I wish you luck
 
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Out of curiosity how and why did they decide you have both type 1 and type 2?

or did they ditch the type 2 possibility once they decided on LADA, a form of type 1.
 

thanks for this reply, yes feels as though I’m just hoping for t2 so I can make
little update to this, they carried out the c peptide test as stated (made a complete mess of my arm drawing bloods). The specialist nurse did say given presentation it’s likely we are looking at type 1 so I expect the worst case scenario. Already limiting my carbs as of now. It absolutely sucks now, find myself having random emotional meltdowns.
 

Hi Halph, thanks for letting us know. Yeah, it does suck. It actually feels like a bereavement in a way, for a 'carefree' life that has suddenly changed. If it's any consolation at all though, you DO get used to it and actually, food wise you end up with a little more freedom than a type 2 managing themselves on diet only. It's good that they are checking you out thoroughly and right from the start as many individuals get written off as a type 2 when in actual fact they are type 1s and need insulin straight off. Please come back to us when your results come back (or at ANY time) as there is loads of experience on this site for all types of diabetes. x
 

The good news about being T1 is you can still enjoy sweet foods like cakes, biscuits etc. You just need to give yourself the right amount of insulin.

The only things to avoid (in my opinion) are: pop and juice. This is because they are super fast. Insulin takes time to kick in; it’s all about timing.

You can certainly drink these when you are hypo, but never drink them just for pleasure.
 
You just need to give yourself the right amount of insulin.
For some it works like this. For others it's close to impossible to dose for cakes and biscuits without spiking high. By all means, try and see how it works out, and even if it doesn't work perfectly for you, indulge every once in a while!
But for many of us it's easier to go a bit slower on the very high carb stuff
 
They ditched type two as soon as it was confirmed lada
Yes took metformin off me and gave me fiasp insulin which I’m not happy with excessive weight gain still massive spikes in readings like 14.0 2hours after 3.5 and I just keep getting told we’ll do 1 unit for 15g carbs if that don’t work 1unit for 20g I don’t even eat that much carbs
 
I had a similar range at the beginning, keep a food diary. I find I just can’t eat rice, pasta bread couscous … very occasionally I will have one small potato that’s my limit. However there are some great cookbooks and actually I don’t miss these things now
 
I don’t eat much carbs tbf anyway the excessive weight gain has come from insulin fiasp I was fine on metformin trying to get a face to face appointment still with a diabetic nurse or consultant is no existed I’ve put a stone on witching 4 weeks since the introduction of fiasp
 

Hi,

Did you mention on another topic regarding thyroid issues?
Was that side of things looked into..?
 
I was also 39 at age of diagnosis (type1) and am just 4 months in. It also came out of the blue, I exercise a lot and was feeling well. I am paying for a libre2 which helps me to keep exercising and sticking where i can to low carb. It turned my world around completely for a while and am still blown away by it all!
 
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